renee28

Thanks for the response - we have an endoscopy and unfortunately a colonoscopy sceduled in two weeks. Not looking forward to it, poor guy, but it may give us some answers. Thanks

I feel like we need the proper diagnosis, but am worried that if the scope is negative, is it really negative? or perhaps the sample they took just did not show the atrophy. or maybe he is gluten sensitive vs. celiac. or perhaps something else??

Hi there, Our four year old son has had three celiac blood tests. Two were normal and one had high ttg iga levels. We just got the results back from Enterolab and his fecal Anti-gliadin IgA is 44 and fecal Anti tissue Transglutaminase IgA is 25 (less than 10 being normal). His fecal fat is 1731 units with less than 300 being normal. Would you scope...

Hi, Just bring an easy prepared meal with you to the restaurant for your child (turkey burger and rice pasta with veggie of your choice)...you can pack some gluten free foods to bring with you on your mini-trip - this in not a big deal. .....things could be so much worse.

His symptoms went away once on the gluten-free diet....although his symptoms have always come and gone. He was great for the three weeks - then went back on gluten and was very irritable for three days, but then has been just fine since (3 weeks). He was extremely backed up with poop (they did an x-ray) and he is now cleared out...sometimes I just wonder...

He went off for three weeks then back on for two before the second blood test..hmmm. I didn't think just three weeks off would matter.

Alright...so we saw our GI doctor on Monday and he said that he was 98% sure that our son has Celaic as his ttg iga was 38, with anything above a 9 being positive. He wanted to do a biopsy - I asked if we could check just to make sure our son has the celaic gene before we go ahead with the biopsy. So, our doctor ran a second celiac test in addition...

can anyone throw me a bone here????

Hi there, Our three year old son came back with a 38 ttg iga (with anything above a 9 as positive) and a negative ttg igg which confuses me a bit. We asked the doc to run a series of tests on our son because he had stomach flu like syptoms for a two week stretch, then constipation, then a three week stretch of the stomach flu. Now he seems fine...

Hi there, Our three year old son came back with a 38 ttg iga (with anything above a 9 as positive) and a negative ttg igg which confuses me a bit. We asked the doc to run a series of tests on our son because he had stomach flu like syptoms for a two week stretch, then constipation, then a three week stretch of the stomach flu. Now he seems fine...