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ERH

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  1. His intentions were probably good, but pretending to be celiac can cause a lot of damage for those of us who really are celiac. Non-celiacs make exceptions and aren't that cautious about having a total gluten-free meal which creates the impression that it really isn't that important. The "a little...
  2. Have you discussed Refractory Sprue with your doctor? Even with a gluten-free diet, celiac symptoms continue and other treatments are required. The odds are small ... but it happened to me. Took about two years before everything was under control (and I still have some symptoms when I shouldn...
  3. Great video -- explains Celiac Disease in a friendly, informative way. Anything that helps people understand is a good thing!
  4. Some people get mesmerized with their illness and talk about it endlessly ... but you don't sound like one of those people! It is important to give your family and friends an overview of what being Celiac does to your body and future health so that they will understand why you have to closely regulate...
  5. Even doctors can be skeptical about the effect of "just a little gluten." It's ignorance! Even if you didn't have the overt symptoms, your intestines are damaged by even a few crumbs. Ignore the skeptics and be smart -- stick to an absolute gluten-free diet and spare yourself the "few days...
  6. There are worse things that could happen to your family than going gluten-free with you! You are probably the "shopper" so stop buying those gluten foods!! Your kids can survive by having some favorite gluten-foods at school, when they are out somewhere, or at other people's homes. As you adjust...
  7. Basic new way of thinking about food: Read the ingredient label every time for processed food. There are many new gluten-free mixes, cans, boxed foods at the market now -- these are safe because the label is part of the new federal law and companies are very careful because of the risk of fines...
  8. Two comments that may help. I am a refractory-sprue patient (Celiac to the extreme) in remission, so the gluten-free diet is finally working for me now. The damage to my villi, however, has created some additional problems that have to be carefully managed. Artificial sweetners (any of them) and...