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alevoy18

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  1. Hi everyone, I just recently had a 3 year followup scope due to multiple nutritional deficiencies and recent weight loss. Here are my results below. My 2 year followup showed very minor villous abnormalities and only plasma cells in the lamina propria. I am wondering if anybody knows what "foci of neutrophils" means? Or any other experiences are appreciated...
  2. Hi, I have been diagnosed with Celiac Disease (Nov 2009) and Addison's disease (May 2011). I also am being investigated for autoimmune hypopituitarism due to low LH/FSH/Testosterone as well. My question is regarding my vitamin levels. Here were my levels pre and post treatment: ------------------------------------------------------------------- August...
  3. Hi, I'm really sorry to hear you are struggling right now and I hope it gets better for you. I just wanted to let you know that I had orthostatic hypotension, salt craving, palpatations and autonomic dysfunction. I had to have a pacemaker put in because my heart would slow down inappropriately too much. I also suffered from weakness and had trouble with...
  4. Hi everyone, thanks in advance. I'll try to keep this short, but I'm basically wondering if my GP is overreacting or not. Here is my sequence of events: Nov 2009 - Celiac Diagnosis tTG=56 - biopsy Marsh 3B - b12=210 ferritin=60 Nov 2010 - tTG=40 - b12=180 - ferritin=52 Mar 2011 - Addison's diagnosis with low cortisol and high ACTH - started cortisone...
  5. Thanks to both of you. Yeah I've been strictly gluten free for these two years. I made mistakes in the beginning, but over the last year I cut out processed foods. But as I got stricter, my numbers got higher. I am happy to see only Marsh 3A since I expected 3C, but who is to say it even really improved because another biopsy could show 3B (this was just...
  6. Some of you may know my history from past post. To summarize what has happened. I was diagnosed MArsh 3B and postive tTg-IGA (56 when >20 is strong positive) two years ago. Recently I had an tTg-IGA test come back as 372 (normal <20). My Gastro was alarmed by this number and said he has never seen anything so high. He just did an enteroscopy and have...
  7. Thanks everyone for your responses. To answer your questions, First, I apologize, it has been 6 months since my last tTG, not one year (I just looked it up). Pills: The only new pill is my Cortisone for adrenal insufficiency. I have started cortisone due to my adrenal testing starting to show signs of failing, it is early but my ACTH was high,...
  8. Hi everyone, After two years gluten free, my tTG went through the roof. It was initially 28 (range <10) in 2009, then it was 26 (range <10) in 2010 and now it is 186 (range <10). I had a scope this morning with an extension on it to look further in the small bowel (called a Enteroscopy). The initial results are below. The doctor came and spoke...
  9. I got a call today from my Gastro doctor. He said that he is scheduling me in for emergency Endoscopy this week as he has never seen a tTG jump this much or one that was 20 times the range before. Not encouraging to hear from your doctor but hopefully all will end up well, thanks for the help!
  10. Hi T.H., thanks for the response. I too also pondered about whether or not being extra sensitive has anything to do with it, it is always a possibility, but going from the 20's to near 200 seems extreme. Who knows whats possible though. I have not spoke to my gastro since my results came back, just my GP, so I will find out if they are going to test...
  11. Thanks Ravenwoodglass, I appreciate the response. To answer your questions. 1. No, the only cereals I eat are Nature's Path gluten-free Mesa Sunrise, Nature's Path gluten-free corn flakes & Glutino Honey Nut O's. I avoid oats all together as I didn't want to risk it. 2. I am on a Cortisone for adrenal insufficiency and florinef/midodrine for low...
  12. Hi everyone, thanks in advance. To keep this short, I was diagnosed in 2009 with Celiac disease by positive anti-tTg IGA and positive biopsy. My tTg at the time was 28 (range 0 - 10) and my biospy put me at Marsh IIIb (moderate villus atrophy). My blood test at 1 year had my tTG up to 40 which was a disappointment, so I restricted my diet down to mainly...
  13. Hi, I was diagnosed by ttg/biopsy about 1 and a half years ago. I have been strictly gluten free ever since. Recently at my physical I had a blood test come back showing: April ----------------------------- RBC: 3.99 (normal 4.4 - 6.0) HB: 120 (normal 140 - 160) HCT: .34 (normal .40 - .50) WBC: 3.8 (normal 4.5 - 11.0) Absolute Neutrophil: 2.0 (normal...
  14. Hi Everyone, I was diagnosed by tTG blood test and positive biopsy (Marsh 3B) in November 2009. Over the last couple of years I've had a few ultrasounds, due to finding lymph nodes in my neck/armpit. Prediagnosis I had a Ultrasound that showed my spleen as 11cm long. 6 months later after going gluten free, I had another ultrasound which showed my spleen...
  15. Thanks again for the reply. I didn't know about the airborne issue. My fiance is on a gluten diet, but we have seperate everything. I do cook for her sometimes though, as I made her cookies today actually. I will have to remind myself of this in the future. Thank you both for the tips. I never had my antigliadin antibodies tested originally, I just had...
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