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rahga

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Everything posted by rahga

  1. rahga
    I had a similar experience. This lasted close to a year for me: sleeping 10 - 12 hours (sometimes more) with occasional bouts of insomnia. Vitamins (double dose) help, as do digestive enzyes and fiber. At least that has been my experience. I am 56 and was diagnosed in November of 2009. I was strict about my diet from day one and by October or November of...
  2. rahga
    When I had a TIA last fall I wanted to know if it was related to my newly diagnosed gluten intolerance. I found these articles and ran them by my GP, neurologist, and gastroenterologist (a celiac disease specialist). Each of them took the information seriously. Of course, this hardly proves gluten intolerance was the cause of my TIA. But given the utter...
  3. rahga
    New research suggests a link between celiac disease and strokes and TIA's (transient ischemic attacks). El Moutawakil B; Chourkani N; Sibai M; Moutaouakil F; Rafai M; Bourezgui M; Slassi I Celiac disease and ischemic stroke, Revue Neurologique [Paris] 2009 Nov; Vol. 165 (11), pp. 962-6. Neurological manifestations of celiac disease are various. An...
  4. rahga
    I was diagnosed this past fall as well and have been gluten free since Thanksgiving. I had a few days of incredible energy and clarity, but that faded and around the start of the year began to go down hill big time and it has pretty much been daily G & D ever since. The lesson for me has been that I need to go back to square one and proceed verrry carefully...
  5. rahga
    I'd like to change my user name to something more anonymous. Is it possible to do this?
  6. rahga
    I got the results of two blood tests yesterday. The doc said I have the genetic markers for celiac disease, but the other blood test was negative. He said the genetic test, taken together with the improvements I experience on a gluten free diet, leaves no doubt I am dealing with a wheat allergy "at least." He said he was stopping short of calling it celiac...
  7. rahga
    Thank you. That is very helpful information. I get my blood test results back on the 15th. If they find nothing there, I will likely follow up with Enterolab. This past week I had further confirmation I am on the right track. I have been gluten free since November 25 and, on balance, am feeling better than I have in years. The energy is back, the tarry...
  8. rahga
    Very helpful. I am learning more every day. "stool testing"? Never heard of it, but I will follow up on the lead. Sadly, the official paper test may be more necessary this side of the border. If the insurance companies do not see the diagnosis, they are not going to spring for the costs. Many thanks.
  9. rahga
    Where can I find the most dependable information on diagnosis ... for myself and my family and for future conversations with my doctors. I'm beginning to realize I am going to have to advocate for myself whatever this diagnosis is.
  10. rahga
    Love the dogs. Thanks. I am staying with the gluten free diet... at least for now as I am feeling better than I have in a long time. I would just like them to rule this in or out so I can attack the real problem and get on with my life.
  11. rahga
    That is very helpful. The "95%" line confused me as well. From the reading I have been able to do in the last few weeks that sounds off the mark. I do not know if he ordered a full blood panel or not. I know I paid for two blood tests. One of them was for genetic screening. I am going to have to ask for complete print outs as these doctors want to talk in...
  12. rahga
    I am frustrated and confused. Allow me to explain. I am a 55 year old male with a history of symptoms that sound a whole lot like celiac disease... but more on that in a minute I had an endoscopy last week and met with the gastroenterologist today. Mind you, there was no blood test before this. I went from a conversation with my GP, to a visit to the GE...
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