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LJ-Mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LJ-Mom

  1. LJ-Mom
    After 8 months I'm still trying to figure out my son's digestive issues. - All celiac, stool, blood, alergy tests negative - Mushy poops started 100% of time in December - Finally got a few breaks with "perfect poops" - 2 weeks May and 4 weeks July/August - Now back to mushy Son's diet has not changed in that time, so I'm wondering if it is just...
  2. LJ-Mom
    My 20 month old son had all of his celiac tests come back negative (very low #s). However, I find he does better without wheat. We don't get normal poops all the time, but we do see more of them. When we have wheat it is clearly worse. The pediatric GI said that gluten is just harder to digest whether your celiac or not and suggests keep trying to challenge...
  3. LJ-Mom
    We're in the same boat. Just got back all the celiac and allergy test and they were negative. Still gluten free, as it seems to make my son a much more wonderful person. Had one week of nice solid poops, now we're back to the same old. There seems to be so much that it could be, but our doctor is very skeptical about taking things out of his diet....
  4. LJ-Mom
    Tatum, Not sure where you live, but I found a contact at my local Children's hospital and called and called and called and called and called... and got in to see the pediatric GI specialist in 3 days instead of 6 weeks. There are doctors on call for "emergencies", so make it an emergency. Get the name of a doctor from friends, relative, anyone and...
  5. LJ-Mom
    My 18 month old son is suspected to have Celiac and every time I come to this site, or go to the internet I end up in tears. Every story is about how kids are having a hard time, or schools are being difficult, or doctors are not helping. How about sharing some stories about how your children are handling this well, how they're doing great in school,...
  6. LJ-Mom
    If you haven't had your daughter tested for celiac, don't start the gluten free diet. Our doctor told us to try gluten free, and it had only mixed results. Now we're faced with going back on gluten for at least a few weeks before we can get any testing done for celiac. Push for testing now.
  7. LJ-Mom
    Thanks for your replies. Sounds like (as with all things celiac) it depends on the kid. My son was perfectly healthy until I stopped breastfeeding at 6 months - sick as a dog from 6 - 10, and hasn't had any fevers or respiratory illnesses since. Of course we started with the chronic loose stool at about 10 months... I've kicked and screamed enough...
  8. LJ-Mom
    Hi, To keep myself sane and occupied I'm trying to document the signs of my son's celiac, pre-diagnosis. My hope is to help educate the pediatricians who missed every single sign, and to help parents know what to look for, and when to fight for more answers... When your child was an infant, did you have the experience of your child (pre-diagnosis...
  9. LJ-Mom

    ARCHIVED Questions About Enterolab

    LJ-Mom replied to sandsurfgirl's topic in Doctors

    Doesn't it make you suspicious that your wife had positive results? (though I don't know exactly what those results mean) You and she are not blood related - and if these types of issues affect ~1% of the population this says to me the test is not legit.
  10. LJ-Mom

    ARCHIVED Questions About Enterolab

    LJ-Mom replied to sandsurfgirl's topic in Doctors

    Thanks for the clarification
  11. LJ-Mom
    Can anyone tell me if they know anyone who's gotten (correctly) negative celiac results from Enterolab? I've read some posts that people think it is a scam, that testing gives too many false positives - and that it is generally confirming what people want to hear. If this is a legitimate way of testing that is better than what is out there today, why...
  12. LJ-Mom
    Thanks for your replies. It is hard to tell if he has any other symptoms. He's getting his eye teeth in right now, which are supposed to be really painful - so he has been very grouchy when he has been both on an off gluten. The only other sign is a little eczema on the back of his legs. I'm a little skeptical of the Enterol testing. Has anyone heard...
  13. LJ-Mom
    My 18 month old son was off gluten for almost a month and we saw little if any improvement. We'd sequentially removed gluten, then dairy, then most fruit and were still getting daily diarrhea with only 2 solid poops over 4 weeks. My son is also teething (8 teeth since mid-Dec), so not sure if that is confounding. Have put back gluten, still getting lots of...
  14. LJ-Mom
    My son was off gluten for almost a month and we saw little if any improvement. We'd removed gluten, egg, dairy, fruit and were still getting daily diarrhea with only 2 solid poops over 4 weeks. My son is also teething (8 teeth since mid-Dec), so not sure if that is confounding. Have put back gluten, still messy diarrhea but it is actually back to being...
  15. LJ-Mom
    Thanks for all the advice. We're going to stick to the diet for another week or so, if we don't get any normal looking poops - we'll go back to gluten for a week and get the allergy and celiac blood tests to start.
  16. LJ-Mom
  17. LJ-Mom
    My 18 month old son has had diarrhea for about a month, with maybe one regular BM a week. He's always had some loose stools which the pediatrician told us was probably normal up until now. Now she's bringing up celiac (which is terrifying me). Does it sound like celiac to you parents out there: Things that support: - Semi to watery stools -95% of time...
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