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If/when I get fresh blisters, I'll do my best to get a biopsy. Thank you for the information! update: I've been doing a LOT better. I've been 25 days without wheat mostly--I had a slip up at a restaurant. It hurt but after a few days, I felt better again. It's amazing how better my joints and muscles feel now. Eating at home isn't a problem but I'm...

Thank you, and best wishes for your recovery! I've had gut/absorption issues for years, and they interfered with running and daily life quite a bit but there were ways around that. I ran in the woods or planned my routes around bathrooms. When things got really unpredictable, I was told I had IBS and was prescribed Bentyl...at any rate, throughout all...

I kind of wish I had the official black and white proclamation too, lol...my blood tests were negative, and false negatives apparently aren't uncommon, but eating wheat every day was getting pretty painful, so my nurse practitioner thought it best that I scrap the diagnostic process, stop eating wheat and get better. That's ultimately the goal, right? I...

I didn't know that...interesting. I don't have any fresh blisters now, thank goodness. They were itchier than any bug bite I've ever gotten.

The achy joints and sore muscles are going away. I've been off gluten for two weeks after a gluten trial which really did me in, but I'm impatient! How long did it take you to get back to normal after ditching gluten? Did any of you end up feeling even stronger than before? (admittedly, that's what I'm hoping--I'd had a gluten-free period before the gluten...

Wow, that's interesting. I had no idea that it took that long on gluten to get a good reading. I had been eating it before the gluten-free trial before the three months on gluten, but not regularly. Wheat things made me drowsy, and after a few days of eating those, I'd lose my appetite and kind of float along on fluids and bananas and rice for a couple...

Thank you for the reply! Reading it made me feel so much better and you've answered some questions. I'll figure out what nomenclature works best for me. On the one hand, I hesitate to call myself a celiac because it hasn't been formally declared or whatever (maybe because this is still new, I'm feeling sensitive about it, lol); on the other, I want people...

Hi! Thank goodness for this board. My nurse practitioner suggested that I find an online forum to help me through this process. Is it possible to still have some sort of wheat/gluten intolerance, even with negative antibody test results? And if so, if it's an allergy or something and not celiac, what do I call it? I feel kind of weird insisting...