erica
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ARCHIVED Amusing, If Painful, Restaurant Experiences
erica replied to anglepoise's topic in Gluten-Free Restaurants
I've had too many experience like the ones listed to even begin. Just alittle tip for everyone... I've learned to just tell the waiter/waitress that I am allergic to flour. They will look at you with the same weird expression but it alleviates them from a lot of the thinking they can't seem to handle. On the reverse side, I once had a waitress who realized... -
Hi, I will be visiting Woodstock with my husband next weekend and would love any suggestions for places to eat. Thanks!
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Hi everyone, I am 26 living in NYC with my wonderfully supportive husband. I was diagnosed w/celiac disease a little over a year ago thru blood tests. I have had symptoms for as long as I could remember and never understood why I was always sick. I had horrible migraines, bone pain in my legs, tingling in my toes, was always exhausted and taking naps, and...
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ARCHIVED How Long To Eat Gluten Before Biopsy?
erica replied to mat4mel's topic in Parents, Friends and Loved Ones of Celiacs
Hi, I was told to go back on gluten for a preiod of three months by Dr. Green of the Celiac Disease Center in NYC. It's been 2 months and I feel horrible but I have been told that even if I have started feeling symptoms, it may still not be enough time to see anything via endoscopy. 3 months is a safe bet -
Hi, I actually have this problem when I am not off gluten. I had it for years before I knew I had celiac disease and it stopped when I went off gluten. I am now back on gluten for a short period to have an endoscopy and within 2 weeks of eating it again, my leg pains came back.
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I am so relieved to know I am not the only one. I am on my computer looking for answers at 2 am b/c I can't stand the itching anymore. I have tried warms baths, tucks pads, every anti itch cream on the market and suppositories. At first, they worked for a few hours at a time. Now they work for about 5 minutes before the itching comes back. I am on my last...
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You might want to call the Celiac Disease Center at Columbia Presbyterian in NYC- they might be able to recommend a ped who is familiar with celiac disease.
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Dr. Peter Green is the best Celiac Dr in NYC. He is the Director of the Celiac Disease Center At Columbia uptown. The # is 212-305-5590. I would just be sure that he takes your insurance first b/c he is very expensive otherwise.
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SadiesMomma, Get a new Dr- if your current one is so horrible, why are you sticking around? I too had to beg my Dr for the bloodwork. I took the test on June 10 2003 and called the office for 2 weeks straight to find out the results. They did not call me back until July 3rd. When I asked them to fax me a copy of my bloodwork, it indicated that they recevied...
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Sara, you have a gluten-free kosher friend! I actually made really delicious hamentaschen last night. I found a basic recipe online and just substituted the regular flour with Bob's Red Mill All Purpose Gluten Free Flour. I had to add about an extra 1/2 cup of the flour so that it wasn't so sticky but it worked really well. By the way, don't know if you live...
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ARCHIVED Wrigley's Big Red Gum
erica replied to tammy's topic in Gluten-Free Foods, Products, Shopping & Medications
According to my nutritionist (the nutritionist at the Celiac Disease Center at Columbia University), all Wrigley gum is Gluten Free. Big Red as always made my tongue numb- it's part of the cinammon flavor. It shouldn't have anything to do with celiac disease. -
ARCHIVED Could Someone Please Just Give Me An Answer...
erica replied to shanmac's topic in Gluten-Free Foods, Products, Shopping & Medications
too funny... I had my first appt with a nutritionist at the Celiac Disease Center in NYC. She started rambling off a bunch of normal candies that are definitely gluten free. I immediately thought of this post! -
I agree.. they never know if you bring food in. I always bring my own bag of microwave popcorn and sometimes even some grapes or other finger fruits. And besides, movie theater popcorn is highway robbery!
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ARCHIVED Cottage Cheese?
erica replied to fanfaire's topic in Gluten-Free Foods, Products, Shopping & Medications
Since we are on this topic... anyone know if Light n' Livey cottage cheese is gluten free? It's my favorite and I can't seem to find out. Thanks! -
ARCHIVED Deducting Food From Taxes
erica replied to SofiEmiMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tarnalberry, You are correct. To deduct medical expenses, they must be a certain percentage of your total income. I am not sure exactly how much but an accountant would know.