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Everything posted by kare101

  1. So sorry to hear what you've gone through, and I appreciate your sharing. Don't worry. I jumped right back on the wagon, and haven't gone off since. Don't plan to ever--even more now that I've heard your story, and another. Thanks. Take care of yourself!
  2. More good advice and kind support....All of you supportive, helpful people who've commented on this subject have really meant a lot to me. I think I've gained strength, and a new way of looking at things. Not that it's always going to be easy, but I think it will get easier and easier. My sincere appreciation to all!
  3. Thanks so much for ALL your support! It's nice to hear that it was also extremely difficult for you in the beginning. It's not just me. I'm feeling like I'm grieving, but I thought maybe I was being too dramatic or something. Hearing you describe it as that also is really helpful and validating. It seems like people who don't have this don't really get what a big deal it is. ... It's just a change in diet, right?... I don't really blame them, though. How can they understand something they haven't gone through? Thanks again to you and the others on this board who've shared with me their experiences, and given me their support. Also, thanks for the snack suggestions! I'm missing those.
  4. Sounds like a good idea. I'm going to try it.
  5. Thanks! I should make something positive out of this experience. I have been wanting to order from the gluten free mall, and should go ahead and make an order.
  6. This is the kind of support I needed. Just someone to understand what I am going through, and offer some advice. Thank you so much!! It's nice to feel like somebody out there understands. I don't intend to deliberately eat something with gluten again, but it's nice to know at least 1 person out there besides me misses some of the food, and thinks about eating the wrong thing once in awhile. I actually finally had a good cry myself today, and it helped some to get out the frustration, etc. I should have tried it sooner. It's also nice to hear you are in the UAE, and understand the difficulty of getting gluten free food over here. We should stay in touch and let each other know when we find any kind of resources/food available in this area. Thanks again and take care.
  7. A bowl of cereal is not worth it, that's why I was asking for some words of wisdom and support. This is a very difficult transition. I'm having a very hard time, and I feel like crying after reading your reply. I was afraid of getting unsupportive answers like yours when I posted this, but I decided to think positively. If you didn't have something kind to say, why did you even reply? Keep your mean thoughts to yourself!
  8. I've been gluten free for a week, and I already slipped. I love cold cereal with milk, and I miss it so much! Last night, I ate rice krispies. I'm pretty sure it's not gluten free, but I figured since it's made from rice, it wouldn't be as bad as some others. I have terrible insomnia right now, and late at night is the hardest time to stay on the diet. I don't know how I'm going to do this the rest of my life. It's especially hard because here in Saudi Arabia there's no gluten free food available, and I haven't ordered anything online yet. I'm so frustrated. Just starting to have a reaction to what I ate last night. It's been about 18 hrs, and I'm starting to have face flushing, hives, and what I think is kidney pain. I started getting it lately when I'm sick. It's so not worth it! Please help if you have any suggestions for kicking gluten for good... Also, I've read a lot about people having problems with corn. Last night, I ate some popcorn with just salt at the movies, and I started coughing a lot. I always do, and I always thought it was just because of the husks in the popcorn, but now I'm wondering if I have a problem with corn. Any thoughts?
  9. I don't have any suggestions, because I am only a week in. I just want you to know I totally understand what you're going through, and you have my support. Hang in there.
  10. I've just started on the diet and need something easy and simple to use. Preferably with all kinds of food in it. One that's available on the gluten-free mall would be great, because I live in Saudi Arabia and haven't found anything available here.
  11. Thanks for the interesting info. I am a woman, and I will mention this to my ob/gyn. I read in your bio that you had kidney damage. Celiac can cause this? I'm very curious, because recently I've been feeling pain in the area of my kidneys when I'm sick. It's only been a week since I started the diet, so I'm just starting my recovery, and I'm still experiencing it. Should I mention this to my gastroenterologist, and what kind of tests are there to find out if I am actually having trouble with my kidneys?
  12. Thanks so much!! It's really encouraging to think this cough will probably go away! It's always been so annoying. I'm happy for you that yours is almost gone. I also have had several sinus infections, and almost every time I get a cold, it goes straight to my chest. I've also had bronchitis many times. I'm just learning about all the problems this can cause. It's amazing. At least we have a way to help ourselves with the diet! Your feedback is once again very helpful. Thanks again!
  13. Hi everyone...I was just curious whether anybody experiences face flushing or gets a cough from gluten? I've had a chronic cough since I was a kid which has been attributable to nothing, and now that I've been diagnosed with celiac's, I'm wondering if it's related to that, and if it will get better now that I'm on the diet? I also get terrible face flushing with very red cheeks that feel really hot, and sometimes feel feverish at the same time. Never knew why. Now I'm starting to wonder about that also. Would love your feedback.
  14. I'm not sure, but speaking from personal experience...I often get everything at the same time. So, I wouldn't be surprised if they're all related to "getting glutened".(like that:)) I'm feeling it all today. Guess I ate something with gluten yesterday. Only thing I'm not sure was gluten free was some chocolate. Do you or anybody else know much about gluten in chocolate? I'm very new to this. Hope you feel better!
  15. This is the second time today I'm taking your advice! Thanks so much! Will all different kinds of gatorade do the job? Can't wait to try it. I'm going to have my husband get me some on his way home from work today!
  16. I am soooo with you!! It's only been a week for me, and I just have slight dizziness, but the fatigue and insomnia are really getting me down. Finally slept a good 11 hours last night. Felt fairly good when I woke up. Ate my gluten free breakfast of eggs and coffee. Now all the nausea and especially fatigue are back. Feel like I don't want to eat anything. I'm going to try the gatorade. Had another issue once where I needed it, and it totally cured me. Makes sense to me. I hope it works, and I hope you find what works for you. Take care.
  17. This info is so helpful! Just diagnosed with celiac disease and I was trying to figure out which books would be best. Was planning to get The First Year..., but now I won't. I'm definitely going to get Living Gluten Free For Dummies. Thanks!!
  18. I've also been recently diagnosed. Only about a week ago...Had an endoscopy yesterday. The dr took several biopsies. Said he'll give me the results in 2 weeks. Also said he found some damage to my small intestine just by looking. I'm 39 yrs old, and I'm sure I've had this all my life, but for some reason the last 3 weeks I have been so sick--terrible nausea, vomiting, diahrea, and the worst thing is a feeling of extreme fatigue and weakness along with insomnia. Starting to feel depressed about the whole thing. Don't know anybody else who has this. I hope this forum helps. It seems to be a place where everybody supports each other. So glad I found it. This is my first post. I feel for anyone else who is going through this. It's difficult finding out I have a disease that I'll have to live with the rest of my life...I keep telling myself it could be worse. That helps a little. I imagine I have started the grieving process that some of you have talked about. I hope everyone else who is going through this difficult beginning time will find this forum helpful.
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