melblondin

Hi everyone - I've been distant for awhile because life's just been busy, but I wanted to pop back again to report that all 3 of my boys are growing again!!! To recap briefly, my 3 year old had "weak positive" bloodwork for celiac, iron deficient anemia, and failure to thrive, while my 5 year old had neg. celiac bloodwork, but had elevated liver enzymes...

Yeah - I did talk to the counselors. I totally understand that the child had no idea how the food would affect my son; the bullying aspect of it is what bothered me more than anything. I''m sure things will be fine now and he is having a great time overall :-). I was just surprised that kids that young really care about what each other is eating/not eating...

Soooo, my son is at a Day Camp this week. Things have been going very well. I've packed his lunch and extra snacks for when they do that sort of thing and he knows to only eat what I've packed. However, yesterday there was another 5 year old who apparently couldn't understand why DS couldn't eat the graham cracker snacks that had been provided. He and...

One thought is to have them all do the genetic testing. It wouldn't give them an official diagnosis, but it might help you know which kids to watch more closely and to have blood screens done on every couple years or so. My doctor and I think that I have celiac disease (couldn't be officially tested because I was already wheat free from a wheat allergy...

Man I'm hoping we get to see some of this growth too!! All 3 of my boys are in about the 5th percentiles, but I just took my 1 year old in for his well child and at 4 mths he was 75th for weight, at 8 mths he dropped to the 10th, and now at 1 year he dropped again to the 5th He's been gluten free since the 8 month appt., so I was hoping for a little...

If I had to guess, I'd say you have DQ 2.2 because I also did the Prometheus testing and mine came back as "DQ2 heterozygous," which put me in a "high" risk category. At the bottom of my report where it lists what alleles were detected it stated: DQ2.5 (HLA DQA1*05:DQB1*0201) and other non-risk alleles. I'm assuming the only thing that separates the "DQ...

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that...

Thanks everyone for the responses and esp. for that website. I had tried contacting the company, but hadn't got very far, and then ended up just getting busy with other things and forgetting all about it. I will pursue that further for sure. I haven't had another migraine since Sunday and am praying things stay that way!!!

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine...

Just wondering if you ever found out anything more? My 3 year old was just diagnosed with "weak positive" bloodwork and slight anemia among many other symptoms. My other son is 5 and we put him on a gluten-free diet since he also shows symptoms although his celiac panel was in range. His liver enzymes were elevated though and I know that I am DQ2.5 positive...

Oh wow, Nora, thank you so much for pointing that out. From what I'm reading online, it looks like the deamidated IgG test has a 98.6% specificity rate. I guess that puts an end to my wondering if it was truly positive bloodwork for celiac! I was originally thinking that that number was sensitive to gluten, but not specific for celiac, but I hadn't realized...

As far as I know, he wasn't tested for total IgA and IgG. The exact wording is: Gliadian (deamidated) AB, Eval Gliadin AB IGG Gliadin AB IGA

My doctor actually is convinced that he has celiac. I just wasn't sure if technically speaking we could come to that conclusion by most medical standards w/o pos. bloodwork and/or a biopsy. I also believe that he has celiac, but there's part of me that wants to know for sure whether it's a gluten sensitivity or an AI disorder. I know it doesn't really...

My son was diagnosed as celiac today. He definitely manifests many if not all of the classic symptoms for children, so we are going to go gluten free as we have already seen improvement, but I have a question regarding his bloodwork because as I understand it, without IgA being positive and/or a pos. scope, he can't officially be diagnosed as celiac, correct...

My son is exactly the same. At his 2 year check up his labwork was inconclusive (like a point or two away from pos.) and now at his 3 year checkup they were normal, but he is also 3 1/2 yrs old and weighs about 27 pounds. He has tummy aches all the time, explosive BMs, and flaming red cheeks. I have issues with gluten too and just found out that I am DQ...