kellykay
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by kellykay
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Not a peripheral neuropathy issue.. that would be too simple... I am trying to get a hold of my blood tests.. I had a celiac panel done in april ... never heard anything so i figured it was negative.. might be a good idea to make sure... it wouldn't be the first time something was over looked..
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Is this the same testing they do with the blood tests from the dr... I see it is avaliable to canadains .. anyone used this test???
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ARCHIVED Enterolab Shipping
kellykay posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am seriously considering having the enterolab testing.. they tell me it is my reasonablity to have the samples couriered to them in two days....I live near Toronto ... what companies express post this kind of stuff and doesn't it have to stay frozen... help please -
I am pondering this question myself... and part of me thinks a OFFICIAL DX is not worth the pain and torture to get it My blood panel was negative... I have some very unexplained health issues (muscle weakness) and I can't help but wonder if it is celiac causes it.. and all my drs are in Diagnosis mode.... its so confusing...
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I am not dxed with Celiac.. My bloodwork was negative. SO I went gluten free on my own.. with some success... I have a long history of weird skin rashes.. one doctor thought I had Shingles.. but it kept coming back.. Long story short.. last week I was glutened several times and on Sat night at a party... I woke up this morning and my skin was itching...
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ARCHIVED Severe Muscle Weakness. Unknown Cause.
kellykay replied to mark6556's topic in Related Issues & Disorders
Sorry think this is a bit of an old thread.... but I am currently waiting to be seen by a MG specialist.. they don't think I have MG but need to rule out another condition that affects the neuromuscular junction as well.. the type of weakness is alittle more consistent as well as progressive.. (Lambert Eaton Syndrome) which even rarer the MG and even harder... -
ARCHIVED Help I Miss Pizza
kellykay posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I 'never ate alot of junk food.. but I am seriously missing pizza. and after a very bad experience with pizza pizza.. I am afaird to try it again. I live northwest of toronto... what is there out there .. and what about the frozen ones at the store.... I would even be willing to try and make my own.. I have a bread maker but have yet to use it... I need... -
I have reacted to these chips as well.. I don't have a celiac dx but definetly notice that gluten free makes a huge difference for me.... I also have an issue with soy too.. maybe thats why
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ARCHIVED Negative Test
kellykay replied to miaryan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just had the test done in Ontario.. it is only covered if it is done in a hospital setting... Otherwise the outpatient lab costs 105 where I had it done.. its been a week and I still haven't heard back -
ARCHIVED Ontario Testing
kellykay posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just thought I would pass this info on If you have the celiac testing done in an Ontario Hospital It is free.. If you have it done in an OUT LAB the cost is 105 dollars,, I was told by my immunologist the testing was around 200.... so instead of waiting months to be seen by a dr in the hospital I pd for the testing myself.. I am so anxious to go gluten... -
ARCHIVED New
kellykay replied to kellykay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the reply.. I did eat gluten yesterday.. and paying for it this morning... I called the drs and am goin to have the test this week.... so lets see what happens -
Hi there... well I have known for many yrs that I am sensitive to wheat..but have lived in denial about it... I recently went to the sjogrens society of canadas patient conference and there was alot of talk about the connection btwn Sjogrens and Celiac.. well I have Sjogrens ...and a very long history of GI problems... I used to complain about it all the...