Jump to content

Lesliean

Advanced Members
 View Profile  See their activity

  • Posts

    92

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lesliean

  1. Lesliean
    Grrr. Just read at www.geocities.com/HotSprings/ Spa/4003/gluten-free-contaminated.html - 14k that Hunt's gluten-free spag.sauce causes symptoms in some people. Did you have problems? Also, Spice Hunter's spices are milled on cleaned but not dedicated equipment. Should I throw them out? Still waiting for e-mail from Bob's Red Mill about TVP. Can you branch...
  2. Lesliean
    Checked the TVP with Bob Red's, the spag. sauce with Hunts (garlic onion, and garlic herb), and have an e-mail in to S&W (costco) stewed tomato italian style. Checked lip medex with a website. What could have made me sick? Or is it just a sensitive stomach to TVP-it did give me lots of -you know. But this morning constipation and bleeding for the first...
  3. Lesliean
    Temporary lactose intolerance can go along with celiac so you might want to monitor how you feel an hour or two after eating dairy. I've read a lot of medical articles that say the false negative rate for the blood tests for celiac are high. I don't consider a negaive blood work to be the final word. I went through 6 doctors to get some help, and 4 years...
  4. Lesliean
    Here is a question for you. The gp did reticulin, anti-glaindin, and tissue transglutaminase, but on day 21 gluten-free. My asthma specalist thinks with the lactose test positive and the blood work negative (day 21 not long enough to change tests) I must be negative for gluten intolerance. But would you think it could just be lactose if you stopped having...
  5. Lesliean
    I had the lactose breath test today and it was strongly positive with methane production. I feel like I did on gluten. Out of it, sick, sore side, hypoglycemic. Do you think this an indication of the intestinal damage? I am waiting for Enterolab testing and blood genetic testing with total A (he couldn't do more because I am gluten-free and don't want to...
  6. Lesliean
    Dark circles I have had since childhood are getting better. I am less congested too and don't blow my nose all the time. Amazing!
  7. Lesliean
    All brand-name packaged yeasts sold in the US are gluten free. Autolyzed yeast in a food product is generally considered gluten free. Brewers yeast, when it's a by-product of beer, is not considered gluten free. Brewers yeast nutritional supplements, however, can be made from either brewer
  8. Lesliean
    I am totally hooked on Open Original Shared Link massage bar which I use on my face day and night. Cheap and great and seems to be without all those untested additives.
  9. Lesliean
    I'm feeling overwhelmed with everything I eat that contains gluten (or casein). Maybe it was poor Red Bob's Mill Flour (much maligned by me) or Vitamin E, Vitamin Fish Oil, baby aspirin? I was ill for days following spagittee sauce but I had put my much loved TVP in it and it also had a bit of cheese in it (and who knows what else?). Thanks for the support...
  10. Lesliean
    I have read from scholar.google.com research that 5% gene negative people with symptoms have Celiac Disease. Trust your GUT.
  11. Lesliean
    Twice now I have tried Red Bob's. Once gluten-free brownie mix and second gluten-free flour mix. Both times sick for days. Has anyone else gotten sick? I read there is an allowable level in gluten-free foods of gluten. Leslie
  12. Lesliean
    Diane, My presenting symptom to the doctor was inability to get a deep breath. First he diagnosed asthma and inhaled steriods and albuterol helped some. Then diagnosed laryngopharneal reflux and pepacid helped some. Only when I stopped gluten and dairy (they can go hand and hand) did my vocal chords and throat stop swelling. Still on asthma Rx but off...
  13. Lesliean

    ARCHIVED Doctors

    Lesliean replied to hvacceliac's topic in Doctors

    I've been doing a lot of research using the new scholar.google.com search engine. One study involved gluten-free celiac patients with symptoms. 86% were improved when gluten-free products were removed as they are federally allowed to contain .03% gluten which caused the symptoms. You already know you may have difficulty breaking down dairy becuase of the...
  14. Lesliean
    After 12 days of a gluten free diet the bleeding in the morning and the soreness went away. The constipation went away on day 1 gluten-free and after four weeks the pain in a spot to the right of my belly button went away. Serology was negative on day 21 of gluten-free diet and was glaidin and transmurase only. The doc said it must be something else. Luckily...
  15. Lesliean
    Blood work neg on gluten-free diet but still need to know for relatives and peace of mind. Is Enterolab accurate? Do you trust them? Did your insurance pay? Thank you!!! Leslie
  16. Lesliean
    You asked if anyone has your symptoms. I did! Went to the md with reflux problems. Burging into my esophagus, pain in the stomach, bloating, itching becuase of the constipation and soreness inside, bleeding...Yuck. Within 4 weeks gluten-free and Dairyfree it all magically went away.
  17. Lesliean
    I keep hearing about loose stools but for me it was always constipation with bleeding.
  18. Lesliean
    I'm suprised they didn't do EMA blood test. Check the faqs question regarding testing and see how often the tests show false negative and positive. This is not an exact science. Shopping: rough corn grits (1/2 cup) with dried cranberries (1/4 cup) microwaved with a couple cups water for 5 minutes is a great breakfast. As cooling add soy milk. Corn tortillas...
  19. Lesliean
    Off Gluten 21 days when I had these tests-Antigliadin Antibody panel IGA,IGG Tissue Transglutanimase IGG, IGA Reticulin IGG Antibody IFA All were negative but I KNOW I am positive. What more do I need them to order and which go negative when gluten-free for a month? Thanks so much Leslie
  20. Lesliean
    My life improved completely when I stopped gluten and dairy. Tests came back today negative (tested day 21 gluten-free). Does that mean definitely not Celiac Disease? Could I have gluten sensitivity different from Celiac? Could it just be dairy? Thanks,
  21. Lesliean
    Feeling totally different (abdominal pain, gas, burping gone) since gluten free 12 days but still have a little bright red blood when go to the bathroom in morning. Have had this off and on for 5 years and 4 years ago the surgeon said not to worry. Come back for scope when 50 (am 48). Does it take more time to heal? Blood test will be a 6 weeks gluten...
  22. Lesliean
    I am sorry to hear that you go through that. Mine is different. I know I have a gluten sensitivity because the pain in my stomach and other gastro symptoms went away immedicately. But 10 days later and I have a crop (first time in 10 days-was almost constant and bigger ones)of small red blood blisters, small pinprick size and two more ant bite size, but unlike...
  23. Lesliean
    Do you get blood blisters in the mouth that come and go and vary in size and usually come in groups and sometimes the epiglottis is sore too? Is this a symptom of gluten intolerance? Thanks, Leslie
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.