Smarts

I know this does get confusing. If it wasn't for my 10 yr old daughter reacting to gluten too, I'd think I'd made it all up in my head. Anyway, absolutely ice cream cones are a no no, and believe it or not, they put wheat in some ice creams!! Also what type of vinegar did you use? Malt vinegar is a problem too. I'm becoming a bit of a super sleuth, going...

Yes I'm aware of that. The wonderful dietician did say that if this new doctor wants me to do the gluten challenge, then she will support me and advise me every step of the way. It's taken me 9 months to decide to go back to mainstream medics, if not for me, then I feel that I have to do this for my daughters. I was just getting on with my life and not...

Thanks - well obviously he never bothered to correlate it histologically then!! So moving on to the next doctor... next installment to follow...

Thankyou Roda - this was really helpful and insightful for me. I went to see my GP's in house dietician today. I was really not looking forward to it - I couldn't handle having somebody looking for more things wrong with me and not listening to me, so I wrote a long report of my entire family history and a detailed account about how the gastroenterologist...

Okay I've posted a few times and have sort of considered myself diagnosed because of a lifetime's worth of Celiac disease symptoms, positive gene test with DQ2 (despite gastroenterologist telling me it was negative), seeing my 'allegedly' positive capsule endoscopy showing villous atrophy - which the gastroenterologist later verbally retracted as a mistaken...

oh boy - if you hadn't said that your gastro was a 'she' I would have been convinced you were talking about my EX-gastro!!!! I've talked long and hard about this one ever since I was in your shoes back in July. If you want to read my whole sordid history then I posted again the other day on the post diagnosis forum. What seems to be clear to me is that...

I'm learning to deal with the anger that this brings up. What amazes me is that here is a true medical condition, for all of us, our lives are much improved simply by avoiding eating several foods, less health problems, less strain on the health systems - but then again our suffering is lining the pockets of some fat, greedy money hungry 'doctors'. What...

I haven't posted here in such a long time. When I last posted I was very confused. A top gastro enterologist was trying to get to the bottom of "The Family Tummy" as I call it, as stomach (and many other health) disorders have been passed down from generation to generation. After 2 years of testing and only concluding that I am very anaemic, have a hiatus...

I don't know about reimbursements here - I'll ask the doc tomorrow - but everyone is reluctant to formally diagnose me. My GP said it just wasn't important. vbecton - your story sounds like mine. I've had my GP for 14 years since I first arrived in this country and he is a really nice man, not at all patronising - but these days I do find him a bit vague...

Can this get any crazier - I don't know whether to laugh or cry? So I saw GP this evening - boy was I nervous. He looked at the gene test result and said that he had never heard of diagnosing by gene tests before and personally he thought a diagnosis should be based on symptoms and reaction to the gluten free diet alone (who cares about the silly tests...

Thanks for the Bipolar advice. The Seroquel comment was appreciated, I am cautious over "mind altering" drugs, but experience also tells me they can make life bearable. When I went on the tablets I read about all these people who complained that their life was destroyed by Seroquel because they couldn't get out of bed. Most were taking 200 - 300mg and...

Hi Nora - it was me who said my doc said I needed at least 2. Yup this is what I am dealing with. As usual you are all amazing. Having confirmed results is not only important for me but I feel my little girls too. I had to make a dash to the toilets in the shopping centre the other day so that 9 yr old could gag (she's on the gluten-free diet but maybe...

Thankyou Skylark - I do wonder why it is so important to me to have an undeniably positive result - crazy. But I do want a piece of paper that tells me I didn't dream up the villous atrophy thing. Got to tell you a funny thing re the Bipolar though. This new doc I saw today is miles away, it was an hour & half drive (and I never drive outside my...

Okay follow up of my GI who after he said he found patches of VA, ran blood work and said no way to any food intolerance considering I only have one Celiac gene which meant nothing. I have spent the whole week trying to get capsule endoscopy report and blood test results from him - am still waiting. So I went into my GP today who gave me print outs of all...

I'm hearing you all and gee I am feeling so mad after being told this week I am not predisposed to celiacs as I only have one positive gene and there is absolutely no chance that I have a food intolerance to anything, despite him finding villous atrophy. 4 years ago I was desperate to shed some kilos (I was hypermanic with Bipolar II then too) so I cut out...