tooney

I'm kind of in between. If there are no gluten ingredients listed, the product is not likely to be CCed, and it wasn't produced on shared lines with wheat, I'll use it and so far that has worked well. But in general, we don't eat a lot of processed foods. Husband has allergies to some of the artificial preservatives and colors so it's safer for both of us to cook whole foods from scratch as much as possible.

Hi! newly diagnosed with celiac disease!

I have noticed that on many ingre. listed that some state - this product was processed on a machine where wheat or other gluten ingre. were also. Is this being to picky or is this a no-no??

smp

Hello fellow Celiacs,

I was diagnosed in January and have led a gluten free diet since. I saw a dietitian and met with 2 GI doctors, found a new allergist, and continue to take steps to be healthy.

Through my short journey, I've realized that there have been signs of the disease for years. It took chronic diarrhea to finally realize it. Going on a gluten-free diet wasn't difficult. It was an immediate lifestyle change. However, it wasn't until seeing my second GI doctor for a second opinion that I found that I needed to go Dairy Free for 6 months (to let my gut heal), and that there are more things that have gluten then we know---such as salad dressings; vinegar; marinates, sauces, etc. I've also found that places that claim to have a gluten-free menu don't necessarily have a gluten-free menu. Shanes Rib Shack claims to have a gluten-free menu; however, their BBQ sauce has high fructose corn syrup. HFCS has properties of gluten. HFCS is in a LOT of foods.

I've done a great deal of traveling this summer and found that I would get contaminated constantly. Just when I start to feel better, I get contaminated and would be down and out for several days. To truly heal, I needed to be home where I could cook organically. Now three weeks after being back from my last trip, I am finally starting to feel better.

I know I've been contaminated when I have loose BM's; feel lethargic and tired; and agitated.

Right now, I'm doing a body cleanse that is gentle. I'm also forcing myself to get on a regimented diet with taking probiotics and calcium on a daily basis. I'm looking for a gluten-free vitamin if anyone has any recommendations.

A problem I have is that while I eat healthy, I am holding onto extra weight. I would like to hear what others have to say about weight issues. I've cut back on potatoes and avocado. My problem is that I sometimes forget to eat, and wind up eating later then I should. I am also working on daily exercise which has been difficult to implement due to the lethargy.

I am making progress! Feedback welcome.

Hello! I was told that I have celiac disease by a specialist on June 3rd! Wonderful news - but, I have been up to this point in deep denial! I also have been suffering from chronic diarrhea (for 4 weeks, now, how long can one have this condition & function??) I was so getting so close to dehydration that my kidneys were trying to shut-down!!Just so there is no shadow of a doubt & my peace of mind?, I am getting a second opinion from my doctor on Tuesday. I have really enjoyed reading the various emails from ones with this disease. I need all the information I can get to become gluten-free but there seems to be so many differing views - some places say that white vinegar is not OK other lists say it is OK but not Malted, 100% coffee is OK,etc....Also, I checked into some restaurants for gluten-free menu's but failed to realize that the grill or stoves cook on may be gluten contaminated?? Just cannot win with celiac disease??

So many things to watch for & very confusing - would trace of glutens slow healing process?? I cannot afford to go to special doctors (had to leave my wonderful job due to my health condition)& even the co-op I have to shop at now is not in-expensive!!

Woe is me but I guess I just have to keep my spirits up (been trying real hard to fight deep depression - at first, I wanted to just walk in front of an oncoming truck!!!

Like someone said in their email back in 08 - it has taken many years to put toxins into my body & it will take many years (yikes!) to get my body cleaned out (being older, 62y, will it be a hindrance or ??). Also, have type 2 Diabetes which loads a whole new set of problems along with having celiac disease.

I am glad that there is a support group here in Bellingham, WA. & when I feel better will take full advantage of that.

slow healing process

smp