ClevelandGuy

I just checked a copy of my bloodwork from February, and it had Calcium at 10.5 mg/dl, which is the exact upper limit for "normal". I'll definitely bring it up with the doctor.

Hmm, our household salt is also sea salt. Are iodine levels typically checked during blood tests? I will ask for one when I see my doc on the 20th.

K-Dawg, thanks for the encouragement. Kudos to you for having had the foresight to stick it out for 3 months... I wonder how many people simply give up before feeling better. I know I almost did. I'll be insisting on a complete thyroid panel when I see the doc on the 20th. BTW, I actually felt significantly better today. I went back to drinking coffee...

georgie, that symptom list describes me to a T. I have almost all of them. I saw an endocrinologist a few months back (before the Celiac test), and all he came up with was "you probably have Hashimotos; your meds are fine". I'm adding "Hyperparathyroidism" to the list of questions to ask my new doc on the 20th. Thanks for the info!

Wow, I had no idea you could have both Graves and Hashimotos at the same time. Sounds like some kind of regulator is busted. If you don't mind my asking, how long did you have the fatigue when you first went gluten-free? I expected ups and downs, but this has been ridiculous- it's all downs. I'm afraid that I'm about to lose my job over this very soon. ...

Hmm, now I really do wonder if my levels are low. It would explain a lot. I was actually expecting that they'd normalize, if anything. I wish we had simple home testing of thyroid levels, kinda like blood sugar levels. Thanks, Skylark.

I'm curious if it's possible/common for hypothyroidism to actually worsen for a period of time after going Gluten-Free. I'm on my 10th week gluten-free, and still feeling like crap. Although GI issues are better, the fatigue is way worse than when I began. I know it's common for thyroid issues to resolve after going gluten-free, but I'm wondering if it...

I'd be very suspicious of any kind of homepathic "medicine": Open Original Shared Link

AlysonAnn, you sound like me. Fatigue/brainfog is my worst symptom. I often feel it worsen 15-30 minutes after eating. I'm gluten-free for 2 months now, still waiting for that miracle change to happen...

Hi ClevelandRocks, I can't answer any of your questions, but I just wanted to say Hi to a fellow Clevelander. :-) Tommy's in Coventry Village has some gluten-free menu items, in case you haven't been there yet.

I think they consider it as moderate because it's heterozygous, meaning that I have one copy of it from a single parent. We really need better tests!

Yes, I've been taking B12, D and a multi for months. Also just started some sublingual B12 (thanks, ravenwoodglass). I'm hypothyroid, but within normal levels on Synthroid and Cytomel. I'm past due to get it checked again though. Thanks cassP.

Hi all, The results of my genetic test came in, and the doc says I'm heterozygous for HLA DQ8. She only ran the DQ2 and DQ8 panels. My understanding is that this indicates "moderate" risk, but is not indicative one way or the other of Celiac. She recommends continuing the diet, which I will do for now. I also asked her about the mild villous blunting...

Any recommendations for a good gluten-free multivitamin and sublingual B12? I take Procaps B12 (not sublingual though), a D vitamin and a Target-brand multi currently. I want to take Open Original Shared Link, but I wasn't able to get verification that it's gluten-free (I even called them... they weren't able to tell me!) Thanks ravenroodglass.

I'll definitely stay on the diet for a few months more. Even without a definitive diagnosis, the "mild villous blunting" is further encouragement that I might be onto something... I assume that villous blunting doesn't just happen randomly to healthy people. I just wish I could understand why my fatigue is so much worse now, rather than better.