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Gardening

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  1. Takala, the petition is for a cookie free of the top 8 allergens and also gluten-free. This way, one cookie would cover not only the celiacs, but also the peanut-allergic children, and anyone else sensitive to the top 8 - including soy. So many families have multiple children with food allergies to different things - it gets to tricky and limiting! It...
  2. KarenG, ITA, they will need another bakery to make them. Maybe Enjoy Life would contract out, since they are already a gluten-free, nut-free facility.
  3. A girl scout troop has started an online petition for Girl Scouts to come up with a gluten-free allergen-free cookie. Currently, the two baking companies for GS say there isn't enough of a market for them. There are SO many little girl scouts with celiac, gluten sensitivity, or other allergies (peanut, egg, etc) who can't eat the cookies they are asked...
  4. Thank you for all your feedback. Just to complicate issues My 5 year old woke up with belly pain last night. Felt like she was going to throw up in the morning, then it went away. By 1pm, she had thrown up at a friend's house. Felt naseous the rest of the evening, D at bedtime, and just woke up to throw up again. She's clearly sick. Now I...
  5. Also check zinc levels. I do think the symptoms warrant a trial. OT helped my daughter's SPD quite a bit, but even when she "graduated", she couldn't stand dress-up clothes. Yet several months after being truly gluten-free (she needed a clean-out to reboot her system), she was able to prance around the house in princess dresses.
  6. You feel the effects when? Friday night? Saturday morning? Later? Both my daughters are gluten sensitive/celiac, and I've been off gluten for 6 months - very strict - to see if it would help my fibromyalgia. It didn't seem to help. I tried something with gluten a week ago as a test, and didn't see any effects. So Friday night, my husband and I went...
  7. Dr Anca Safta is the pediatric GI with the Celiac Research Center in Baltimore. They are affiliated with the U of MD hospital downtown. The office is within the hospital - but the office is only for pediatric specialists and the surgical procedures are done in a children's hospital-within-a-hospital. The waiting room has toys and murals, the exam room...
  8. So far, she's getting backed up again. I was trying to be conservative in the doses - frankly, I skipped a couple of days after the cleanse, then chose the smaller of the recommended doses (doc said 1/2 to 1 scoop, and I've been doing 1/2, thinking she's only 35 pounds, why give her the adult dose?) I'm going to slowly increase her dose - want things...
  9. Up to 5 poops/day, mostly undigested food. Today, her first poop was at 1:30pm, and from a distance, it would have looked normal and formed (up close there was still undigested food, but not as much). So maybe we're turning a corner...
  10. My 2 year old has been gluten free for one week. I have not seen any changes yet. I know one week is not much, but I was so hoping for a magic bullet... When did you first notice changes/improvements?
  11. My older daughter has major constipation issues. Here's what her GI (who happens to be at the Celiac Research Center in Baltimore, but my daughter does not have an official celiac dx): 1. Do a 2-day cleanse. Only clear liquids for 2 days. Strained chicken broth, vegatable broth, clear juices, popsicles, etc, and WATER. Take a double dose of Miralax...
  12. Another possibility is that you are IgA deficient, and so you would otherwise spike a much higher number on Enterolab, but you don't make enough IgA. This is rare, but this is the reason a blood celiac panel includes Total IgA as one of the tests, to make sure the other tests (IgA tissues transglutamase, etc) are valid. I think it's worthwhile to try...
  13. JamieCarin - As long as the lab report has the correct age listed, then it should automatically give the correct range for her age. I don't have my personal labs in front of me, but my range is much, much higher and my actual number is something like 260, which would be waaaay high according to your daughter's range, but pretty much in the middle of...
  14. The Celiac Research Center is part of the University of Maryland hospital/medical school. It is not a stand-alone facility. They have all specialties there, and they have a children's hospital within the big hospital. Dr Safta is actually treating a 19 mos old who was diagnosed with Crohn's at 12 mos, which is quite rare, so she is not exclusive to celiac...
  15. Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher. She was knowledgable and really great with little kids.
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