bincongo

Oh, I just saw that exact thing!

They have that one page on their website, Open Original Shared Link

It listed foods that should no longer be on the list, and walmart had a whole bunch of products listed as bad, now. I've been going through this morning and crossing things out of the book since I found it, which is what got me wondering about how accurate it is and all.

I just remember the syrup because I had one of those 'yet another food that has no business containing wheat' thoughts and rolled my eyes over it, LOL.

It's nice to know that someone's been using it though. Gives me hope that this can be easier...someday, heh.

I really liked the book because I am new to this and it was so helpful, but I am glad to know that they have a web site that updates the book. As a newbee it is still confusing for me to read labels.

He actually may be symptomatic, the failure to grow and the ADHD can both be the result of undiagnosed celiac. False positives on blood work are basically unheard of but false negatives are common. Keep him on gluten until after the biopsy is done. The day the biopsy is done take him gluten free. You are in a great place to learn what you need to do to transition to the lifestyle. You should also have everyone in the family tested now even if they don't seem to be symptomatic. Silent celiac or celiac without strong GI symptoms can cause just as much damage to the body as to those who have daily D.

I am a new Celiac. I told my daughter to ask her doctor about being tested. She was told if she didn't have any symptoms that she didn't need testing. Is this not true or is this just a doctor who doesn't know enough about Celiac. I haven't had time yet to go through this whole web site to check this out.

I am just getting ready to make a salmon pate that uses McCormick onions. Is it a consensus of opinion that McCormick onions aren't safe to use?

I mean no offense, but why would you consider putting anything other than pure maple syrup on pancakes??? It's naturally gluten-free and delicious!

I can't remember why I brought it but am pretty sure it was before I was Diagnosed with Celiac so I wasn't checking labels. It will be pure from now on.

I use the book all the time. It really helps with the shopping but today I had some Wal-Mart pancake syrup that was on the books gluten free list but the syrup said that it may contain traces of wheat. I would think that would have taken it off the list in the book. Anyway I will still use the book but I will also have to read labels to double check.

Ordered off their gluten-free menu but it was nasty. Steak and shrimp with brocoli. Steak was tough, raw, and downright nasty. Brocoli wasn't done. Waitstaff nice and took off the bill. The whole plate looked nasty!!! Glad I didn't eat it probably wasn't gluten-free anyhow.

So came home and ate a gluten-free waffle which is carbs and sugar. Yuck.

Hate nights out like that.

Sometimes steaks aren't good even at good resturants. I would try again. I went last week and they had a new dish so I tryed it. It was pork roast with a sweet sauce and red potatoes. It was very good.

i just found some low fat refried beans from ortega. all the ingredients look safe, but just wanted to be sure. can't find any info on their website.

thanks!!!

I have a glutn free grocery shopping book that says that Ortega refried - fat free and regular are gluten free

Last month I contacted Estee Lauder by phone and found out that most of their lipsticks are gluten free but I am out of town and don't have the information with me. As I remember only the ones that have the gold tops had gluten. The ones with the black tops don't.

I am confused. I have the book Cecelia's Marketplace Gluten free grocery shopping for 2009-2010 and it says Dannon plain(Activia 24oz, Low fat, Natural and Nonfat are gluten free.

I use to love going to Cracker Barrel resturant. Does anyone know if I went for only grits, bacon and eggs if it would be safe to eat them. I think their apples are ok too but I don't know about the grits.

I have a book that says Wal-Mart's butter flavored pancake syrup is gluten free but on the label it says it may contain wheat. I usually trust the book and don't check the labels but I guess it is good to check both.

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section.

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks

I felt that I urinated less often after going gluten free. My theory is that I have less bloating and so there is less pressure on my bladder, makes sence to me.

you might want to check on zolpiderm which is a generic. I believe that is gluten-free. Last time I checked it was.

Thanks, that is the one I take. I was worried about taking Ambien but even it wasn't helping. Now for several days I have been much better and I do believe I was having a gluten attack and it also was causing my sleep problems. I didn't know they go together. If I can stay gluten free than maybe it will help my sleep. The only thing I did to my knowledge was licking an envelope. That was just an automatic thing and I remembered right away it was a no no. It took me days to get better.

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

I have a drug list that says Ambien is gluten free. My doctor ordered it knowing I am a Celiac but did order the generic brand. Does anyone know if Ambien is gluten free. I have used Melatonin and it doesn't help much. My sleep problems are even worse since I have been gluten free for 6 weeks.

You mention you are a long way from healing, are you still having gluten symptoms? Make sure you have checked all meds and supplements with the maker, check your toiletries for gluten and make sure to avoid CC issues in your home. Some of us even have to change our pets food. There are also nonfood sources of gluten. Things like drywall compound, wall paper paste, craft supplies and glues can all be a problem.

There a quite a few of us who have other intolerances as well, dairy and soy being the most common. Have you tried eliminating those? What are you typically eating? Whole foods are best.

6 weeks is early on in the healing and for some of us it can take some time. You may also be absorbing your meds more effectively and that is something to bring up with your doctor. The insomnia may even be a withdrawl symptom from the gluten, some of us do encounter withdrawl when we first go gluten free.

I hope you are feeling better soon.

I am always thankful for all the responses. I just don't really know yet what I might be doing wrong or if I am just being impatient. The problem is I was diagnosed by accident, having gone in for another problem, had an endoscopy and I ended up with a biopsy and a celiac diagnosis. I am not even that sure what a gluten attack might feel like although sometimes I think I know. I am always constipated and always have been and sometimes I am bloated. I don't know if that is because of the constipation or contamination. I have given up lactace.

i've had chronic insomnia for 13 years. that's how long it took me to be diagnosised with celiac. i also have hypothyroid. i've had that for 18 years but i didn't always struggle with sleeping so i believe it has more to do with celiac. have your vitamin levels checked. i have noticed since going gluten free that my sleep is improving drastically.

I have gotten worse since going gluten free but then it has been almost a year since I had blood work done so maybe other thinks have gotten worse. I am wondering if I take vitamins if they will be absorbed right anyway since I am a long way from healing. I think I am just wishing the healing process would hurry up because I can't say I feel much better and I am being very careful about gluten.

Love my Tom's of Maine toothpaste! I took awhile to get used to the taste but I've been using it for years now. I have a gluten-sensitive toddler, too, so I found California Baby soap, shampoo, conditioner, lotion and sunscreen in the baby aisle and I like their stuff -- very clearly labeled gluten-free. I get Tom's at Whole Foods and California Baby at WF or Target. Don't have much advice about makeup -- I'm still exploring that category but if you search here for old posts I think you'll find lots of tips and good brands. As for laundry detergent, I use 7th Generation from WF and don't think I've had any problems. Plus, not everyone will react to gluten contact on skin. I am more concerned about personal care products that could end up in my mouth by accident. But I did find these things called soap nuts at Whole Foods and I tried them on a whim and they seem to really work! No gluten, no toxins, less pollution. Kind of weird but neat!

I definitely had a noticeable improvement when I switched out my hair, face and body products to gluten free.

There is a company called Beauty Control that offers gluten free face care and makeup. People can order on-line. I have use one of there products for years and plan to switch to all their products now that I am a Celiac.

I am a new Celiac of 6 weeks. I have been on Thyroid medicine for over a year. I am thinking it is my thyroid medicine causing my insomnia and sometimes hyperactive during the day so I have tried decreasing my thyroid medicine a little until I get my blood work done in a month. Maybe it has helped with the daytime feelings but I get very little sleep at night. Is this part of the healing process of Celiac or the diet or both.

I had an xray the other day (I have a bad back, going to a specialist next week). Anyhow, the Dr said I am really constipated. I've always had probs with that but thought I was doing better on this diet. I thought on it... Maybe that's part of my weight, water retention & poor circulation? So, it's been my goal the last few days to "clean my system". It's not that easy... You know, if I eat Gluten, corn or milk products I get IBS really bad. But you lose so much water... Plus, the damage on the intestines...

I took Citrucil (double the done) with 2 stool softners. All it did was give me bad D, but more of a water loss. BTH, I drink allot of water, atleast 1 gallon per day at the least.

So, I've doubled magnesium, took my infants laxative, & some other things... Oh, eating allot of salads with primarily Romain Lettuce. But, nothing was working. So, I bought Milk of Magnesia which you are to take 2-4 tbsp. I took 4. Supposed to take 1/2 hour - 6 hours... Nothing. Took a Stool softner before bed. Nothing. But this morning I drank about 2 sips of coffee & boom. The big D, just not as bad as the other day. That seemed to help the best.

I have wondered if I am sensitive to soy... But not sure f I want to part with my creamer.... I really do enjoy me coffee.

Anyhow, what other ideas are there for Constipation? Is this normal if you are Gluten Intolerant? What about going on the diet... Shouldn't it be better?

Thanks & sorry about ll the info...

I can sympathize with you. It seems to me that most people talk about diarrhea only. I am a new celiac and I only have constipation and it has gotten worse with a gluten-free diet. I am guessing there isn't enough fiber in the diet but don't really know what I am doing wrong so I too would like a comment from other celiac's out there with the main problem being constipation. I have taken out lactose but not soy. Rice milk doesn't compare with soy. Help!

I take .05 every other day

Thanks I will try that for now. By the way I love Chocolate too. Land O Lakes has a good chocolate chip cookie recipe.

If they make these in the same plant that they make the other products I wouldn't touch as IMHO the CC risk would be high. If you need more fiber can you slowly add more fruits and veggies to your diet instead of going with a fiber supplement?

Metamucil Wafers Ingredients

Apple Wafers: Wheat Flour, Corn Oil, Sucrose, Psyllium Husk, Fructose, Oat Hull Fiber, Brown Sugar, Corn Starch, Soy Lecithin, Cinnamon, Natural and Artificial Flavors, Molasses, Sodium Bicarbonate, Ascorbic Acid (Preservative)

Cinnamon Wafers: Wheat Flour, Corn Oil, Sucrose, Psyllium Husk, Oats, Fructose, Oat Hull Fiber, Corn Starch, Soy Lecithin, Cinnamon, Natural and Artificial Flavors, Molasses, Sodium Bicarbonate, Ascorbic Acid (Preservative)

Inactive Ingredients

Apple Wafers: Ascorbic Acid, Brown Sugar, Cinnamon, Corn Oil, Corn Starch, Fructose, Soy Lecithin, Molasses, Natural and Artificial Flavors, Oat Hull Fiber, Sodium Bicarbonate, Sucrose, Wheat Flour

Cinnamon Wafers: Ascorbic Acid, Brown Sugar, Cinnamon, Corn Oil, Corn Starch, Fructose, Soy Lecithin, Molasses, Natural and Artificial Flavors, Oat Hull Fiber, Sodium Bicarbonate, Sucrose, Wheat Flour

Active Ingredient (per dose)

Psyllium Husk, Approximately 3.4 g

What about MiraLax? I am not sure it is considered a fiber or just a laxative but I think it is save to use on a regular basis.

You could be absorbing either thyroid medicine or iodine differently. Time to go to your doctor for thyroid bloodwork!

I have a doctor's appointment with blood work for September 21st and I am going to be out of town for the next two weeks. I am thinking I will cut my medicine in half because I can't wait until the 21st. .05 doesn't seem like a strong dose but I can't think of anything else that could be causing this.

I was diagnosed with hypothroid and put on Levothyroxine .05mg last year. Six weeks ago I was diagnosed Celiac. Now that I have been on a gluten free diet as best I can, I feel hyperactive. I wake up early and can't sleep until after midnight. Could I be absorbing my thyroid medicine differently now.