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twohokies

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by twohokies

  1. twohokies
    Thanks for the post! You've saved me some internet digging time - for both the twists as well as the Reese's cups. After the 3 kids got home the other night I began sorting and automatically just threw all the twists into a "gluten" box since I assumed they were like twizzlers......I hope the troops overseas enjoy them ;-).
  2. twohokies
    I read on another thread that while Kix are gluten-free ingredients, Gen Mills isn't stepping up to advertise or have them quoted as saying they are safe since they aren't guaranteeing the manufacturing facilities. I've been giving them to my 3yo and she's been fine with the Kix.
  3. twohokies
    Thank you for posting this list! I thought we had our bases covered at pre-school but after my 3yo had 2 "abnormal" bm's after art class today, I'm questioning if she was glutened. So although I will specifically look at the bottles of paint they used (tempura or finger), I can also give them this more robust list of items to use as a reference. Good stuff...
  4. twohokies
    When my 3yo was diagnosed, my husband ran out and bought all the super expensive organic gluten-free cereals. *I* buy her chex and kix and of course the Wegmans fruity pebbles. There are a few other options I've noticed on the regular cereal shelf, but since I haven't purchased them yet I can't recall. Chex does also make chocolate chex which is a GREAT...
  5. twohokies
    At least there's a Wegmans! That is my savior here in VA and I can find ANYTHING I need there. Have your husband shop and stock up on replacement items if he can't influence the food preparation...........i.e. no flour in the turkey gravy, no stuffing into the turkey but prepared on the side. Have your husband get some Hillshire Farms turkey from the refrig...
  6. twohokies
    I will tell you that my 5yo (non-celiac disease) LOVED all things dairy - she couldn't get enough of milk, yogurt and cheese. However, after 1 winter with 4 dx's of pneumonia, we suspected food allergies. Got her b/w done and no allergies, no celiac. However, just to try it out, I took her off casein. OMG. Her GI issues improved (loose stools), her skin...
  7. twohokies
    If you suspect celiac disease or food allergies, raise your concerns to your ped and they can run a bloodtest - celiac top 10 food allergens. If the celiac panel comes back positive (or you really question the negative result), then that is when you have to put your child under anethesia and do the endoscopy/biopsy. My 3yo did the procedure in August and...
  8. twohokies
    Do you have a Wegmans in your area? They make a fruity pebbles that they advertise as gluten-free, which I think means that they aren't made in the same facility. That is an option.
  9. twohokies
    I would suggest getting the bloodwork now while she is glutened. You don't want to have to re-gluten her when/if you want to test for celiac down the road. We experienced something similar, but with my 3 year-old. We thought about putting my 7 year-old son on a Gluten-free Casein-free diet to help with his Sensory Processing Disorder, but only went CF...
  10. twohokies
    I scanned over a few of the prior posts and saw mention of a 504 plan, etc. When I read your initial post and the effects on school that a gluten incident has, "IEP/504 plan/child study" was screaming in my head. I haven't done my research but it looks like others have and that celiac isn't directly covered. HOWEVER, if you approach your school administration...
  11. twohokies
    Sadly, that's the point I'm at. She's unwilling to accept responsibility for what my children did while under her care. The more I think about it all, the greater an issue it's become - far more than just contaminating my baby.
  12. twohokies
    My 3yo had regular, always loose stools, going 3-4 times a day along with stomach pains. And when she got sick or would ingest a lot of gluten, it would be liquid. Almost immediately, her bowels improved. As soon as we got the celiac disease b/w back with positive results, we cut back on gluten. And then once we got the positive biopsy, she went 100%...
  13. twohokies
    Thank you all for your feedback. I may have to try the rat poison analogy with her. She just does not accept responsibility for my children's actions when they are in her care. It can & probably is more of an issue than just gluten. For now, she won't be babysitting and left alone with my kids. It's sad, but I'm not sure what else to do other than...
  14. twohokies
    Wow. And I thought I've been through the wringer with my 7.5yo with SPD (Sensory Processing Disorder). I thought that it would be a little easier with my newly diagnosed celiac disease 3yo. My point to the original poster is that you should not be forced into homeschooling. Especially if it is not the first choice of you or your child. Your school...
  15. twohokies
    Looking for help on how to educate and fix a VERY touchy situation re: gluten-free eating. My mother is unwilling to be vigilent about what my 3yo eats, gets into, touches, etc. She babysat for us yesterday and we had an incident where 1) my mother cross-contaminated the butter (bagel crumbs ALL over it) and 2) where my mother had no clue what was in...
  16. twohokies
    I wouldn't jump to celiac at this point. Your baby is too young. And based on my limited knowledge, you need a triggering event (i.e. a virus) to spark celiac. Work with your lactation consultant and/or pediatrician on the spitting up. My 2 youngest babies spit up quite a bit as infants, one worse than the other. Make sure you are sitting up the baby...
  17. twohokies
    We just went through this at the end of August with my 3yo. I haven't gotten overworried yet about cross-contamination, so have not stepped up the game like the previous poster. But they have looked into soap ingredients, pulled playdoh from her group and supplied gluten-free pasta & clay as alternatives so that her group can still participate in activities...
  18. twohokies
    I agree............what's the harm in running a celiac panel? My 3yo was having similar issues that you described for at least a year. She would have some stomach bugs that would be liquid poo and the ped's nurses advised chicken nuggets of all things. Of course she got worse, but hindsight's 20/20. Our ped. suggested the celiac panel when we went for...
  19. twohokies
    I agree with everything that the other posters have said. First and foremost, you HAVE to get your husband on board. When my 3yo was dx'd a few weeks ago, I was ready to go gangbusters and make the whole house gluten-free. My husband was with me 98% of the way, but convinced me that he and my 7yo should still be able to have their bagels and sandwiches...
  20. twohokies
    The reason we tested my daughter at her 3yo check-up was because of the years of loose stools that would often come with days of liquid stools (I guess a lot of gluten). We took all 3 kids off of dairy when she was 2 but she didn't respond while my middle child did. Our ped suggested running the blood test to rule out celiac disease and my husband about...
  21. twohokies
    Yeah............I just figured I'd ask. I'm doing a lot of shopping at Wegmans and they go out of their way to label their stuff gluten-free. Thanks for the description of the body wash!
  22. twohokies
    Thanks for this tidbit of info! I picked up some shampoo & conditioner today but didn't realize there was a body wash as well. I also put in my comment to the comment box asking them to process the Kirkland nuts/trail mix in non-wheat facilities. We are only 2 weeks gluten-free and I had to return some unopened items today just for that reason .
  23. twohokies
    Jumping in here on the dairy discussion. From my experience, a dairy intolerence can produce extra mucous all throughout the body. We were taking my son off of dairy for his autism/SPD diet and when doing my research, I stumbled across the effects dairy can have on the body. My 5yo had pneumonia 4 times in one 6-month period and had loose, smelly, no notice...
  24. twohokies
    Follow your mommy gut!!!! Mine has never ever steered me wrong. It's taken me some time to get to the right answer, but eventually we get there. My 7yo had a skin disease that the peds wrote off as this viral thing; it didn't sit well, I followed up with a derm and though it wasn't the severe version that can affect various organs, it was something that...
  25. twohokies
    Thank you for you for your responses! I am so grateful that we have discovered her celiac so early in her life. It's good to know that *she* will know when she has been glutened and the reliance won't be so much on us and she can become more independent as she grows older.
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