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brett31em

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  1. I just wanted to let you all know that Burke's Steakhouse at Foxwoods casino was unbelievably knowledgeable about gluten-free diets. I was able to eat a steak dinner, with two sides, and a crouton-less, tableside prepared caesar salad all gluten free! If anybody goes to Foxwoods and is searching for a place to have dinner, DEFINITELY go to Burke's! It was so refreshing that they actually cared and had taken the time to understand the complexities of a gluten-free diet.

  2. Early on in the disease course yes. If your body is not absorbing nutrients it can try to counter that by signaling you that you want more food.

    So there is definitely digestive improvement, but there is something else going on with this water retention. I had an abdominal and pelvic sonogram and everything looks normal! Doctor doesn't think it's necessary to test vitamin levels/reproductive hormones...even though my last one said I was low in Vitamin D. I think this is absolute crazyness. What are some possible causes for severe water retention throughout (not just during period) the menstrual cycle?

  3. If your dining hall isn't being helpful, you should talk to the disabilty office. Your paying for this and should be fed. The other thing is have your parents call & email the head of dining, head of dorms, head of the school, the disabilty office & anyone else they can think of. Some colleges will pay better attention to the parent who is paying.

    Being in college with Celiac's effing sucks. Sometimes I have five classes back to back and find that there are limited healthy things I can bring that don't require cooking/refrigeration for on the go. I feel all your pain guys!

    I know at my school, you are allowed to get an apartment, even as a freshman, if you have dietary needs that cannot be met by your dining hall. All you need is a note from your doctor! You should see what your schools offer.

  4. Which Italian restaurant in Framingham made the mistake? I ask because I live near Framingham and cannot think of any Italian restaurant in that area which serves gluten-free food. I probably wouldn't go there anyway after what happened to you! :blink:

    While your experience does not confirm having Celiac, I know what you mean by your reaction. I am a confirmed Celiac and always, always know when I have ingested even the smallest amounts. That familiar intestinal cramping and aching like a toothache for a couple of days comes from nothing else but a gluten hit. Trust what your body is telling you and remain gluten-free.

    A diagnosis does not mean anyone will take you seriously, either. There is so much ignorance out there about food related illnesses, it's almost unbelievable. Most of it is denial based. Even though I nearly died from Celiac (seriously), I still get incredibly stupid comments from people about my being so diligent with the diet. I swear many think I am the one who is whacko! :P No one, except other Celiacs, believe how sick you can be from ingesting such small amounts of gluten. You have to brush off the ignorance and believe in what you are doing. The medical profession is mostly to blame for this because they insist on calling it IBS and refusing to test people for Celiac. Very, very frustrating!

    Hey there!! La Cantina on 135....

    Lately I have been so frustrated because I can tell when I have eaten regular pasta..like I said, I get that severe hunger pain-esque feeling in my stomach not a half hour/one hour after eating it. However, I feel like there might be something else in the equation here...throughout various times in the menstrual cycle (mid month, before and during period) I retain some serious water, and my stomach looks pregnant. I'm a healthy, active 21 year old college student. Do you or anybody else know of hormonal issues related to Celiac that might be causing this type of water retention and bloating?

  5. Recently received this....thought it would be helpful :)

    Dear Brett,

    Polar Beverages has received your inquiry about our products. As a

    fourth-generation, family-owned company, we are always interested in

    hearing from our customers.

    All Polar products are gluten, soy, MSG and lactose free. Our products are

    also sodium free, with the exception of our Vichy water and club soda. No

    Polar product contains any of the 8 major allergens.

    Thank you for choosing Polar products,

    C. Burke

    Polar Beverages

    Customer Relations

  6. Well I know it doesn't 'confirm' like a biopsy/gluten diet bloodwork...but the gluten free diet has reduced my bloating, spastic bowel, anxiety, and rash on inner elbow, so after being off gluten for about a month and then being able to tell, just from my stomach, that I ate regular pasta, I'm starting think that I might truly be a Celiac. When any of you get accidentally glutened, do you feel as though the food passes right through you? Then you get hunger pains like you haven't eaten for two days?

    Some of my relatives have undiagnosed digestive issues, with some of their doctors saying "IBS," starting to seem REALLY suspicious.

  7. Today, a friend of mine and I went to an Italian restaurant which advertises their gluten free menu. I had been once before, and everything was really good! This time, I went and ordered a veal dish with a side of gluten free pasta. When the pasta arrived, it looked suspiciously similar to regular pasta, so I made the waiter go back in the kitchen and make sure. He said it absolutely was, and even gave me the brand name. Halfway through the side dish, I made my friend taste the pasta and she said she couldn't tell if it was or wasn't (there was a lot of sauce on it). I didn't finish my entree because I was full.

    An hour later, at the mall, I began to get that crazy hunger and pain feeling that I used to get pre-gluten free diet...like as though I had never eaten. I called back, spoke with the manager, and sure enough...regular pasta. I WAS SO MAD. I don't know if people understand that we all don't do gluten free for fun.

    Anyhow...my question is...I am still in the process of trying to figure out if I 100% HAVE Celiac (even though my dietitian thinks I def. do). Many crazy symptoms of mine have disappeared on the gluten free diet. This incident seems to confirm it for me, because it was my stomach that told me I ate regular pasta. Does this make sense to you guys?

  8. Okay, so I am a 21 year old female college student with no medical problems.

    --As a child I had a ton of ear infections and was on antibiotics quite a bit (don't know if this is relevant, but I'm including it anyways).

    -- Seven months ago I went off of the birth control pill, which I was on for six months, because a ton of weird things started happening to me: face rash, abdominal bloating and distention, hair falling out, mood swings, cramps, weight gain

    --For a few years now, I have had a rash on the inside of my elbow that comes and goes. Sometimes it just looks like eczema, other times it's a bunch of little red bumps that are itchy, but not painful or blistery. It is in a perfect circle. Sometimes a few little bumps show up on my other arm, in the same spot, but not in a perfect circle.

    --Ever since gaining the weight on the birth control pill I have been having problems with bloating, gas, and abdominal distention. There doesn't seem to be any rhyme or reason to when it occurs, just about all the time, and worse during my menstrual cycle.

    --I have a RAVENOUS appetite. I eat more than my boyfriend! I can eat a bowl of pasta and meatballs and be hungry 1.5 hours later.

    --If I let myself get too hungry, my stomach blows up with air.

    --I am deficient in Vitamin D per my last physical (the only vitamin he tested)

    --I have pretty severe anxiety about school, work, family, etc. Sometimes it just seems irrational.

    So I have been on a gluten free diet due to suspicion of Celiacs (by a dietitian) for about two weeks and the bloating/distention seemed to be better for a few days, but now that I am approaching my menstrual cycle, I feel HUGE again. But, my appetite seems to really be under control. Based on all this, what do you guys think? Celiacs? Any other suggestions? Need any more info?

    Thank you all SO MUCH.

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