
LisaS
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by LisaS
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ARCHIVED I Need Help
LisaS replied to justmel74's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Melanie, Melanie, This sounds like your doctor tested you for the HLA-DQ2 gene which is connected with celiac. Did she say anything about gene testing? You can still be gluten sensitive if you do not have the HLA-DQ2 gene. Lisa S -
Mariann, Here is my formula for a good night sleep: Exercise for 20 minutes early in the day No caffeine No alcohol Have a generous portion of protein with dinner Have a small potato with just butter 3 hours after dinner. The potato thing is from Kathleen DesMaisons book "Potatoes not Prozac". It is a program that naturally boosts serotonin levels...
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ARCHIVED Anxiety?
LisaS replied to HappyCat22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Kerri124, Yes! read the book "Potatoes not Prozac" by Kathleen DesMaison. It does not work as well as Paxil, but there are no side effects. She has a web page at Open Original Shared Link. Lisa -
ARCHIVED Glutamine?
LisaS replied to whitelacegal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Whitelacegal, Check out the Baxter web site at Open Original Shared Link. This is the product that I use. It is great for healing the gut. Lisa -
ARCHIVED Anxiety?
LisaS replied to HappyCat22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
HappyCat22, I also suffer from Anxiety/Panic. I am eating gluten now because my biopsy is in May. The Anxiety is much worse now that I am eating lots of gluten. I did take Paxil for a while and felt great, but I do not like being dependent on drugs so I stopped. Since it worked so well, I believe that my anxiety is due to a seratonin imbalance as opposed... -
ARCHIVED New To All Of This
LisaS replied to MaryanneQ's topic in Parents, Friends and Loved Ones of Celiacs
MarryanneQ, Just some more thoughts -
ARCHIVED New To All Of This
LisaS replied to MaryanneQ's topic in Parents, Friends and Loved Ones of Celiacs
MarryanneQ, I am by no means a "Pro" yet. I have my biopsy on May 13. But I am planning on going gluten free after the biopsy regardless of the diagnosis, so I have been checking labels, looking for web sites, and contacting manufactures. I also plan to limit gluten for my two children (8 & 11). These are the gluten free items I think kids would like... -
Wasilla Alaska. The photo in my avatar is the view from my kitchen window. Lisa
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Laura, Here are my Enterolab results: IgA gliadin: 16 (normal < 10) IgA TTg: 16 (normal < 10) Fecal Fat: 425 (normal < 300) I have the HLA-DQ2 gene My numbers are quite low, but I had only been eating gluten for 6 weeks. My diet before was mostly high protein/low carb so I was not eating a lot of grains. I discovered I had a problem with...
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ARCHIVED Sitting On Pins And Needles
LisaS replied to the2ofus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the2ofus, I brought my Prometheus kit to my doctors visit, but to my surprise, my doctor accepted the Enterolab results and scheduled me for a biopsy on May 13. So, I did not need to send blood to Prometheus after all. Lisa -
Yesterday I met with my gastroenterologist for the first time. His name is Dr. Boisen in Anchorage, Alaska. He was great! He had heard of Dr. Fine and his research, and he accepted the Enterolab results, so I have my biopsy on May 13. He does the endoscopy himself and sends the samples to a lab in Dallas that specializes in celiac. I feel confident that when...
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ARCHIVED Sitting On Pins And Needles
LisaS replied to the2ofus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the2ofus, Was your doctor receptive to the idea of using Prometheus labs? Had he heard of them or used them before? I have my appointment on Thursday and I am taking my Prometheus kit with me, but I do not know how he is going to react to me suggesting a different lab. Good luck, and be sure to post your results. Thanks Lisa -
ARCHIVED What Is The Igg Blood Test?
LisaS replied to LisaP's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My daughter also tested positive to only the IgG gliadin. I have been researching this topic on the web. I found one site at Open Original Shared Link that talks about intestinal permeability (a.k.a leaky gut). They claim that people with a leaky gut will test positive for IgG and IgA (gliadin and casein) antibodies. Interesting huh? There is also an... -
ARCHIVED Enterolab
LisaS replied to concernedlady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mariann, Thanks for the info. I did not get the same quote about the penicillin analogy, but it makes sense to me. It is unfortunate that your family doctor wont give you the diagnosis, but at least you know and are taking the steps necessary to be healthy. Thanks, -
ARCHIVED Enterolab
LisaS replied to concernedlady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just got my results back from Enterolab and wondered if anyone else wanted to compare results. Here are mine: Antigliadin IgA 16 (Normal Range < 10) anti-TTg IgA 16 (Normal Range < 10) Fecal Fat 425 (Normal Range <300) anti-casein IgA 11 (Normal Range < 10) And, I have the HLA-DQ2 gene I would like to know what the top of the range... -
ARCHIVED Canned Food
LisaS replied to azza's topic in Gluten-Free Foods, Products, Shopping & Medications
Kathleen, I have seen several people mention that citric acid has gluten, but it is on the Celiac.com safe list. Do you know why it's not safe? -
ARCHIVED Flavored Yogurt
LisaS replied to soul04's topic in Gluten-Free Foods, Products, Shopping & Medications
Dannon in the US may not be gluten free. This is from their web site: Gluten is a protein found in wheat, oats, rye and barley. DANNON yogurt products are not formulated to contain gluten, but they cannot be considered gluten free. This is because the natural flavor system used might have ingredients added to stablilize the flavor. These ingredients can... -
ARCHIVED Short Of Breath?
LisaS replied to Interval's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Interval, Welcome! I just sent off my Enterolab test today so I do not yet know if I have Celiac, but your symptoms sound very similar to mine. For me, when I am bloated my lungs do not have as much room to expand. Anytime I feel like I'm not getting enough air it triggers an anxiety attack which causes that "can't catch your breath" feeling. I always... -
ARCHIVED Blood Type Diet
LisaS replied to aldociao's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How do I find out my blood type? Is there a home kit I can send for or do I have to see a doctor? -
ARCHIVED Frustrated And Really Pissed Off
LisaS replied to AntiGluten's topic in Coping with Celiac Disease
AntiGluten, Low blood sugar can also cause brain fog and irritablity. Try adding some whole grains like brown rice or beans. My favorite lunch is home made (gluten-free) chili. It keeps my brain clear and energy up all afternoon. Maybe there are some gluten-free canned chilis that you could try. -
Mariann, I already talked to Michelle Johnson. She had some great info about the blood tests, but her doctor is not taking any new patients. poohey! I have not been able to get a hold of the other contact. Sent a few emails with no response. I think I will try a local doctor to get the blood work done, then go to Seattle if I need a biopsy. Thanks...
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Thanks Sarah & tarnalberry. I figure the doctor wouldn't take me too seriously if I couldn't even pronounce it. You guys are great! LisaS
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Is celiac pronounced see-lee-ak? Why is it also spelled coeliac? Is this pronounced differently? Thanks LisaS
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Does anyone know of any good doctors in Alaska? I live in Wasilla which is close to Anchorage. I have family in Seattle so that could be an option too. Thanks LisaS