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kittyluvr

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  • Loey
  • up late

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About Me

TtG 384
AGA 256
Biopsy Diagnosed 2001
Still having neuro symptoms and tendon pain
40 plus years undiagnosed

Celiac, Sjogrens, Graves, Hashis

 

  1. Wow. This could be the reason why I have not gotten well. I have horrible allergies, seems like I am allergic to life. But I also still have a lot of unresolved systemic issues that doctors just cannot figure out. I am going to look into this further. Thank you!
  2. I thought it was the corn doing it. I stayed away from whole kernel corn, but would use corn starch (that was dumb!) for thickening. I agree it is the dang GMO stuff that is being put out as safe to eat when it isn't.
  3. Hi there, Loey I'm not quite sure how long since your diagnosis. I initially got better within about 9 months, and I no longer had the antibodies in my blood workups. I was very sick when I finally got a diagnosis at 48 years old. I actually had some alzheimer type symptoms, and could not find my way home from the grocery store 2 blocks from my house...
  4. You can test false negative with the Celiac blood tests and you can also have a biopsy come back "clean" - I did - 3 of them, as a matter of fact. There is a test for the IGA deficiency, too. You sound so much like me. I've had shingles 3 times, now. Although, I'm not getting as sick as I used to, but I think that is because my immune system is in hyper mode...
  5. Don't feel too bad. I was called a "cunundrum" by the last doc. I just today was able to get an appointment with a brand new internist in town. I go in a couple weeks. I hope this one will try to figure this out and not just say "oh well". That article on the food additives and chemicals was really informative. Gave me something else to consider. Thanks....
  6. Up late: Your post could have been written by me!! Although, I went undiagnosed for nearly 50 years so I had tremendous damage to my entire body (I was at the emergency room in a total body muscle spasm gripping my right side from the horrible pain when a surgeon suggested a gastro for me to see) when I was finally diagnosed. I've had shingles twice since...
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