debm5

Does anyone know if Tide detergent is safe. And fabric softners snuggle, downey. I have been writing the companies but they take some time for an answer. Thanks! Debbie

Hello, O.K. I'll try to keep this short. 3-19-04 I had a spell to where I could not talk,stand, focus. Body movement same as a seizure. ER stated psuedo seizure(fake). I was treated awful by the er doctors. They told me I could control this. I was given a relaxer and sent on my way. After being through the spell, and medicated, they offered no wheelchair...

Hi Julie, My seizures are classified as psuedo seizures. In the er they told me that they are fake! BOY, was I confussed. I am glad not to have epi spells, but the spells are hard to deal with. The next day after a spell I am wiped out. I had a strange one while at my neuro appt. He wants me to be monitored overnight with the probes in my head. All...

Julie, Please tell me more about your seizures. I have them too. I have no energy either. I gained 45 lbs since 8/04 gluten-free. Thank You!! Debbie

stargirl, I'm just wanting to find out if the group is still going on at Lassens. Debbie

Hello Bakersfield group, There is a conference coming up in Los Angeles. Annual Educational Conference & Food Faire( for the whole family!) Sat, May 21,05 8:30am-4:00pm @Good Samaritan Hospital(Moseley-Salvatori Conf Cntr 637 South Lucas Ave Los Angeles, Ca 90017

I also was anemic. They started me on infed as well. It felt as if I was in a High altitude after about 10 min of my first injection. My chest felt tight and hard to breath. This is why they said the first iv would take longer (2-3 hrs) than the rest of the treatments so they can monitor you for these kind of side effects. The iv went in my arm. They placed...

I also had anemia. My doctor put me on iv iron therapy. This was back in Sept. It brought my levels back to normal. The iron tabs did really nothing for me. I am having a cbc tomorrow. I am feeling a bit run down, but today I had a non epi seizure. They wipe me out. My spells show to be on of of the side effect to celiac, but the doctors say they don't...

Hi stargirl, Are the support groups still meeting at Lassens? I hope so!! It's been a stressful time for me. My mom past away march 6th. I feel I am not being as careful with my diet. A support group would be nice. Debbie

My spells can happen while walking, standing, sitting, lying. Sitting here at the computer can be difficult. Alot of times I feel my upper body getting tired and weak. I feel like a ballon being deflated. At this time I lye down because I'm not sure if it's going to be a active spell. How's your consentration(?) staying on task. Simple things I used to...

Thanks for your support! I am going to make another appointment with my neuro & gasterologist. I'm starting to have pain in my hands/ feet/ankles/knees. Slight swelling. My rash is spreading farther down my left arm and starting on my thigh. I know with all the stress during the past month, I can't tell if it could be caused by a accidental consumtion...

I have tremors of a different sort. I started having seizures. Well they seemed to have all the actions, tremors, faintness, weakness, confustion, headache post tremor. I have had mri,ct scans,eeg's ekg's, hospitalized. All negative for epilepsy. I was so glad. But still was having spells. I have been off work now since 3-20-04. Doctors don't want me to drive...

Hello group, I'm glad we are getting support. I really hope that I can attend Sat. My mom is at UCLA as of this past Saturday. They removed her kidney(cancer). So if i'm not there, keep me up to date! I notified the board re: my user name. They said theres not much they can do about it???? I checked my firewall and cookies, and to my knowledge it's the...

Hello, It's been a long time since I've posted. Previously momof3. I had to change my user name. Im glad to to back!!!! Stargirl, have you been to Lassens located on California ave, Mervyns shopping center? They are having a seminar re: celiac, Feb 26, 11:00am. They have a sign up sheet at the front door. They will call you you to confirm. I tried to e...