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Lynne Billington

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  1. Kaiti - I can't tell you what the tests were. They were the 4 or 5 recommended by CSA in their pamphlet. I showed it to the pediatrician and he kept the pamphlet so I can't name them. I know one was Igg -- as far as I know, they're the top ones that I keep reading about. Wish I could answer your question better. Lynne
  2. No, she wasn't gluten free before the tests. Had tests done on the same day we started trying gluten-free. Her dad is gluten-free. Thought it couldn't hurt to try it. And the results were very interesting. If she was gluten-free all day, she was fine. If she ate gluten, the next day she couldn't get out of bed. So, then another gluten-free day...
  3. Well, the doctor informed me today that my 13 yr olds blood tests were normal. Yet we seem to be able to control her fatigue like syndrome with food. Why are the tests so inconclusive so often? Lynne
  4. With the trigeminal neuralgia, he says his teeth often feel like they belong to somebody else. And as far as sinuses, he thought that's what his was. He's had four sinus surgeries in the past and his last one was six months previous to when the TN started. He went to her first and she scoped him and said there was NOTHING wrong with his sinuses or ears...
  5. My husband who is GI has been diagnosed with trigeminal neuralgia which is a facial nerve that affects the ear, jaw, sinuses. I'm thinking this would fall into the peripheral neuropathy they attribute to celiac disease/GI. He takes an epilepsy medication to control it. Some days it's much worse than others. Some days it's non-existent. Typically trigeminal...
  6. Now, can anyone tell me the difference between lactose and casein?? Can you have a problem with one and not the other? How do you differentiate the two? My husband has a gluten intolerance but something else out there is giving him additional problems now and he's wondering if it's dairy. TIA, Lynne
  7. The "cyclic" nature of this interests me too. I have a 13 yr old dd and last June she had a bout of a fatigue syndrome I'll call it. It last two weeks. She then got it again in Dec. for two weeks, February for two weeks, and she started again this week. BUT, I decided to play games with her food this time around. She was ill on Monday night, Tues. All...
  8. We thought gluten was my husband's only problem, too, but there seems to be something else in his diet that is continuing to cause problems. Can you tell me if corn, soy, peanuts are the same as gluten in that it's a sensitivity and NOT an allergy? Because he's been tested for the allergies and they're negative, but there's still something there. We discovered...
  9. Does anyone know if Adolph's brand meat tenderizer is gluten-free? It looks to be but wanted to be sure before I put it on dinner!
  10. Don't know if you've found a doctor in Vancouver but I've just been in contact today with one and he's supposedly an expert in gluten intolerance. He's at Sage Clinic. His name is Arjuna Veeravagu. He's a naturopathic physician. The web site is www.sageclinic.com Hope this helps.
  11. Over on Celiacforums.com they're saying citric acid CAN be a problem. That it can be made from mold grown on bread. And there's a link over there that I went and read because my husband had a reaction this weekend from a store brand strawberry jam and that's the ONLY thing in it that could have done it. This is getting way too confusing for me. My...
  12. You're all talking about 3 Lays chips that are made on dedicated lines, could you tell us what they are?
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