quakenbake

I would like to add that I was foolish enough to get the Activia with the extra fiber (assuming that since I've been ok with the regular Activia that I didn't need to look at the label for this one because it would be safe too). Boy do I ever regret that now. I just ate half of it, then noticed the bright yellow letters on the side that said "Contains Gluten...

It sounds like we are in very similar situations- I have my endoscopy on Thursday too. I've been back on gluten after a 4 or 5 day hiatus for 2 weeks now, and it is miserable. In fact, I felt worse going back on gluten after being off for even a few days than I ever did just eating it solidly (that's finally starting to get better). However, if it means...

If you were very healthy while on a strict gluten-free diet and exercising, then you should go back to that. Since there is so much food sensitivity (including actual Celiac) in your family and you're done with your tests, it just seems like a good choice all around to avoid gluten.

Hello, this is actually my second post here (my first was just a general "Does this sound like Celiac?"), and now I'm in the middle of being tested and such. Before I went in to the doctor, I ended up going gluten free because I was in the middle of college finals as well as participating in a friend's wedding. It was only 4 or 5 days, and I was back on...

You are most certainly not neurotic and sound like a great, and understandably worried, mother. I had horrible colic as a baby and needed special predigested formula. I have since suffered with all kinds of health and GI problems and am now just discovering that I am intolerant to gluten. You sound like you are doing everything right- trying to figure...

I too have had some, but not all of the symptoms (mostly the GI stuff, I have had problems with asthma and allergies/sinus infections so bad that they required surgery, I have bad headaches/migraines, and back and joint pain). I actually just has surgery to look for endometriosis because my periods have always been off too. I'm in the process of being tested...

I'm in the process of being tested myself, but from what I understand false negatives are not uncommon (at least 20-30% of negatives are false, I believe). If you're feeling so great going gluten free, then keep at it. You can even get false negatives on the biopsy, so if a diet change has really helped that much, why go back to eating the gluten and feeling...

That is my plan- I'm just going to eat the gluten until next Thursday, and I will be gluten free unless I'm told otherwise. I hadn't thought of IBDs before, and I can't say I'm not worried it will turn out to be one of those instead. I never thought I'd be hoping for Celiac so much; it seems kind of strange to want to be diagnosed with Celiac. Things like...

The doctor's visit went really well, I think. I am so thankful to have the GP that I do and that I am in Houston right now with some really amazing medical care. My GP sent me to an absolutely wonderful specialist who's been in the field for 40 years, I believe, and seemed incredibly knowledgeable, friendly, and helpful. He didn't want to say I had Celiac...

Well, I just got back from the doctor a few hours ago. He didn't want to say this is Celiac until I had some tests done, but he definitely acknowledged that there was something wrong. I can certainly respect not wanting to say "I think this is what you have" after not seeing any kinds of tests, nor would I want him to. He's apparently been in the field...

Here it is- the big day, or at least it is in my opinion. I am hopeful that after years of trying to figure out what's wrong with me, I might finally have an answer. Not only would it be an answer, but it could explain all sorts of those little random things that you don't think matter or could be connected to anything. I wasn't supposed to get in until...

Haha I don't think it's bad advice in this instance; although, I might be a little hesitant trying it with kids. I am planning on going gluten-free as soon as I can- I've only been back on gluten since Sunday and I already feel miserable. I'm so tired of feeling unwell that I don't care if I get an actual diagnosis (there seem to be a lot of false negatives...

Thanks. The doctor's office actually called today, and I can get in tomorrow for my consultation. I have all kinds of medicine (prescription heartburn medication, dicyclomine for stomach aches, Pepto Bismal, you name it), so I've been loading up on that while I load up on bread and pasta. I'm just worried at this point that they'll tell me that it's not...

I was just wondering if I could get some input and opinions from people who know a little more than I do. My diagnosis has been a mystery for well over a year now, and probably much longer now that I think about it. My doctor recommended that I go see a gastroenterologist to be tested for Celiac/Coeliac; he called it sprue, but from what I understand that...