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all4gals

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by all4gals

  1. Hi! I just wanted to encourage you. My daughter has Down syndrome as well as celiac disease. Please allow yourself time to grieve and adjust to your twins diagnoses. No it's not the end of the world. But it's not easy, and it does produce anxiety and stress for you especially as their Mommy. The path to acceptance is different for everyone...
  2. Here is how I'm reading it: All input respected and appreciated so please help! "In case of celiac disease, it means that if the mother has circulating antibodies to gliadin, these antibodies appear in the milk." This would mean the mom herself has celiac disease....thus producing antibodies right? "If the breast fed baby ingests gliadin (or the...
  3. Laura, that is the reason from my understanding that the baby would be protected. Is that what you understand the research to say too? But if the mom does not have celiac disease (and thus no antibodies) I do not think there is enough info to say whether her intake of gluten affects the baby at all. Just lots of research studying the effects of breastfeeding...
  4. Here are a couple of links: https://www.celiac.com/st_prod.html?p_prodi...-29105333101.2a and a bunch of articles from LLL: Open Original Shared Link While I have not seen a study breaking down the bmilk to look for gluten, and it is true that some food allergens can pass through the milk.....if you really research this you will see that moms...
  5. I have a good "pizza" that all my gals love. I use corn tortillas, put mozzarella between two, then top w/prego traditional, top w/more cheese, and add gluten-free pepperoni (hormel) and put it in the oven. They eat it up. Doing the 2 tortillas helps it to stiffen up for lifting. Also they do have to heat his stuff up if it's medically necessary for...
  6. I actually used a sharpie to write Gluten Free all over our new toaster for my daughter. Even then when my sis was babysitting she accidentally put a regular waffle in it. She bought us a new toaster before we got home. Sent her husband out. So sweet! If we double dip I use a sharpie to write contaminated on the jar and lid. I wonder if that scares my visiting...
  7. I have to disagree. Our dr said the same as yours. That it's not passed through. You can do a google search and find info supporting both. I would contact LLL or a pediatric gi who specializes in celiac to be sure. Good luck! I am always amazed at the differing opinions in medicine. My daughter has Down syndrome as well as celiac disease and I am floored...
  8. Kimberly, Thank you SO much! You don't know how much I appreciate your feedback. I'm going to give it to her and watch for signs. I'll let you know if she seems to be intolerant. HUGS to you! You made my day. Nicole
  9. Roo, before diagnosis Tarenne for all intents and purposes had no symptoms of the disease. Now looking back I realize she was refusing some foods, and had loose, frothy stools, etc. But much of the signs can also be associated w/her extra chromosome. For instance a distended abdomen is also part of her having low tone. And many people with DS have digestion...
  10. Hi there! My name is Nicole and I have 4 little girls. My second daughter who is 5 has celiac disease. She has Down syndrome too, and was diagnosed w/celiac disease about 2 years ago. She's a doll and handles her allergies like a champ! She'll ask, "Mom eat?" and if I say it has gluten she'll say "BLAH!". Too cute! Occasionally she'll try to get what her...
  11. I just want to share my "secret weapon". After my daughter was diagnosed I had a really hard time in the kitchen. Then I bought "Saving Dinner"...a cookbook on amazon. You can check it out at savingdinner.com. It changed my life! Perhaps one of my biggest blessings as a sahm. I can easily convert the recipes into gluten-free items. They meals are tasty and...
  12. Hi I'm new here. My daughter who has celiac is 5 years old, but was nursed until she was 16 months old. So this topic interested me. We did not get a diagnosis until she was 3, but she never had any related issues while nursing. If you do a quick google search you'll find lots of good information. The general thought seems to be that nursing would actually...
  13. Hi! I'm new here. My daughter is 5 years old that has celiac, she also has Down syndrome and is a jewel and our angel. We've been gluten free for almost 2 years now, and this is the first time I've been really stumped. Juice Plus says their vitamins are gluten-free. However when I received the products the brochure inside said they have fiber from barley...
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