HopefulMama23
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Latest Celiac Disease News & Research:
Everything posted by HopefulMama23
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ARCHIVED Need Help Figuring This All Out
HopefulMama23 replied to HopefulMama23's topic in Coping with Celiac Disease
Marilyn, you are so sweet. Thank you for taking the time to resond to me. I am having a VERY hard time these last few weeks. I had stupidly thought that not eating gluten was going to solve all of my issues- and for a while, it seemed to. But everything is back with a vengenace, and I am so defeated. Almost enough to throw in the towel and stop watching my... -
ARCHIVED Need Help Figuring This All Out
HopefulMama23 replied to HopefulMama23's topic in Coping with Celiac Disease
Thanks! I appreciate your response. What foods did you end up reacting to? And how long after going gluten-free? How did you figure out which food you had issues with? -
Hi all- I have been pouring over my test results, determined to figure out what has caused my latest bouts of symptoms. My history: After my 3rd child was born, I developed chronic D, lost a lot of weight, became very depressed and tired, and lost a TON of hair. I was tested for celiacs via blood test and the result was negative, but I have it in my family...
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Hi! It's been a while now. I'm 5 months gluten-free, and honestly, it's easy now. I don't even think about it. All that said, I am still struggling. Here is my story: Nine months ago, I gave birth to my third child. She was perfectly healthy, thank god. The pregnancy, however, was very tough on me physically and emotionally (much harder than the other...
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ARCHIVED Breads & Baked Goods- Any Tips On Keeping Costs Down?
HopefulMama23 replied to HopefulMama23's topic in Gluten-Free Recipes & Cooking Tips
Thank you both for replying. I can't even tell you how excited I am about the Barry Farm link- what a cool store that is! I ordered like $75 worth of stuff the same day I read your message. I've also passed it on to a few of my friends. I think I need to become more comfortable as a baker now that we're gluten-free. I know there are better ways to do this... -
ARCHIVED Breads & Baked Goods- Any Tips On Keeping Costs Down?
HopefulMama23 posted a topic in Gluten-Free Recipes & Cooking Tips
Hi! My son and I both are gluten-free. I don't eat a lot of baked goods myself but he's six and LOVES his bread, toast, sandwiches, bagels, etc. I am spending a FORTUNE on Udi's- they should give me some stock. I'm wondering if you all have any tips on baking my own bread that would be cheaper than $5 per loaf? With the costs of gluten-free flours, I don... -
ARCHIVED Water Retention
HopefulMama23 replied to fattycat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been gluten-free for three and half months- all around I feel a zillion times better but I have noticed recently I'm retaining a lot of water. I do eat a lot of protein now, and I'm on the pill also. Let me know what, if anything, helps you? Good luck! -
ARCHIVED Betaine Hcl
HopefulMama23 replied to HopefulMama23's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you both! I decided to go ahead and order some. I read something VERY interesting about the need for digestive ensymes. Supposedly, if you take a good B complex supplement and your urine turns bright (neon) yellow, then you are not breaking down the supplement enugh and need help (ie taking enzymes). They say if you take the diestive enzymes, your urine... -
ARCHIVED Betaine Hcl
HopefulMama23 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Does anyone take Betaine HCL or other digestive enzymes to aid in absorbtion? Any success? I have read a lot of good things about it. I am 2 months gluten-free and dairy free and I take probiotics and good vitamins also. -
ARCHIVED How Do You Do This?
HopefulMama23 replied to StephHappens's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is only my sixth week, but I do feel like it's getting a lot easier. I'm off dairy and gluten, and in the beginning after being so sick so long I was terrified of food- I would eat like 3 things. But now I'm learning what to make for dinners and even how to feed my family (of 5) this way. I mostly buy and eat whole foods- veggies, fruits, nuts, seeds... -
ARCHIVED 5 Weeks gluten-free/cf: Observations
HopefulMama23 replied to HopefulMama23's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you! I am feeling a lot better. Do people find probiotics or digestive enzymes helpful in healing? -
ARCHIVED Suggestions On How To Get 5 Year Old gluten-free?
HopefulMama23 replied to HopefulMama23's topic in Parents, Friends and Loved Ones of Celiacs
Thank you so much everyone for the feedback!! I absolutely intend to talk to his doctor and have him and my other kids (I have 3) tested, but in addition to celiacs I am also interested in him following the diet for the benefits in treating autism and ADHD disorders (with a gluten-free/CF diet), so regardless of test results I will likely pursue our family... -
ARCHIVED Suggestions On How To Get 5 Year Old gluten-free?
HopefulMama23 posted a topic in Parents, Friends and Loved Ones of Celiacs
My son is 5 (will be 6 in a few weeks). His whole life he has struggled with excema, raspy couching, skin rashes, concentration issues, and impulse control problems. He's a sweet, intelligent boy, but the impulse and concentration issues have started to affect him at school. I was recently diagnised with celiacs myself and in all my research on it, I came... -
ARCHIVED 5 Weeks gluten-free/cf: Observations
HopefulMama23 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey experts! I'm 5 weeks gluten and dairy free as of yesterday. Here are some of my observations: My D has pretty much stopped. It was daily pre-diet change. My stool is still very soft, which does concern me a little. I have not had ANY abdominal cramping since I changed my diet. Not once. I have gained 3 pounds. It's hard to celebrate this one... -
ARCHIVED Day 14: Observations And Questions
HopefulMama23 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So, I'm on day 14 of no gluten or dairy, limited soy and sugar. I've noticed some great, encouraging things, like: My upper arm bumps (KP?) are about 50% reduced My morning breath is gone My hair shed (I have alopecia) has been about cut in half I feel calmer and more focused No stomach pain Other things I'm still struggling with- stool is still very... -
ARCHIVED Day 12- Still Waking Up With D
HopefulMama23 replied to HopefulMama23's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Mostly whole foods: nuts, fruits, veggies, rice, etc. A few substitutes. I did add a probiotic last week too. I'm getting a lot of fiber, obviously, so could that be making the stool soft? -
ARCHIVED Day 12- Still Waking Up With D
HopefulMama23 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey experts- I'm on day 12 of no gluten and no dairy. I'm feeling a little better mood & energy wise, but I'm still waking up in the morning with either diarrhea of soft stools (light colored). Any tips? Does it take longer than 12 days to start to resolve? The diarrhea during the day is mostly gone, but the mornings are the same. I'm eating mostly whole... -
ARCHIVED How Long After Going Gluten Free Should It Stop?
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the replies!! I guess I'm not sure what I should eat anymore. Here's what I am eating and thinking is safe: fruit, veggies, rice, potatoes, corn tortillas, nuts, eggs, meat, fish, beans. I gave up dair and soy too yesterday- hopefully these are temporary though. Any input? What is a good safe diet to start out with and heal on? -
ARCHIVED How Long After Going Gluten Free Should It Stop?
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did stop dairy too, and soy, a few days after I stopped gluten. I'm also taking some probiotics to try and help heal my gut. I don't have stomach pain any more, just the soft, loose stools. I get so defeated every morning when I wake up and still have them! -
ARCHIVED How Long After Going Gluten Free Should It Stop?
HopefulMama23 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How long after giving up gluten should the diarrhea stop? I've been off it for 5 days, still wake up in the morning with soft stool or diarrhea, although bloating is gone and stools have changed from green to brown (I'm sorry, I know that's gross). Is this normal? Should it have stopped by now? -
ARCHIVED Which Of These Are Celiacs Symptoms?
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the responses! I am trying to find a new internist. I asked my Family doc for a referral to an endicrinologist and he said no. Unbelievable. I do have an appt with my dermatologist coming up- do you think she could run those tests? Or even give me a referral? -
ARCHIVED Which Of These Are Celiacs Symptoms?
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have a horrible doc- currently in the market for a new one. But he did test my thyroid, said it was "normal" and gave me the blood test for celiacs, which came back negative. I had severly cut down on gluten by the time I took the test, and I have fully eliminated it by now. If it is what causing me to feel this way, I'm not sure I could handle going back... -
ARCHIVED Which Of These Are Celiacs Symptoms?
HopefulMama23 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Can anyone tell me which of these could be symptoms of celiacs? chronic green diarrhea (daily for four months) bloated lower abdomen, right side cold hands and feet, loss of feeling in fingers scalp hair loss ridged finger nails body hair loss always colder than everyone else (need sweater in summer) bumps on upper arms (KP?) very rough skin on heels... -
ARCHIVED Gluten Sensitivity/ Celiacs/ Hair
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here are some other symptoms I have: cold, numb hands and feet, flaky dry skin, body hair loss, bumps on my upper arms and legs, fatigue, and depression. Could this all be the same thing? -
ARCHIVED Gluten Sensitivity/ Celiacs/ Hair
HopefulMama23 replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm sorry- I should have been clearer. M hair thinned diffusely over 10 years ago. I've struggled with fatigue, depression, skin issues, and thhing hair since puberty. This pregnancy sees to have kicked all of those into high gear. I'm wondering if it was the stress on my body of the baby. My grandma's official diagnosis din't come until after she had her...