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missj

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by missj

  1. missj
    I have my appointment on Thursday morning, so I am hoping I get a bright, fresh and REASONABLE doc. But just in case I don't get what I am hoping for, I want to make sure I have all my ducks in a row. Right now my plan is: Ask for genetic testing first, so I A) don't have to do a gluten challenge right away and B)it gives me some information that may help...
  2. missj
    When I tried my first 100% gluten free diet my constipation got worse because I wasn't getting enough fiber. I have heard FiberCon is the best supplement to try. Anything with that cilium husk stuff will bloat you up more before working. You can also try some magnesium oxide supplements as well, as they draw water into your colon. Just play with the dose...
  3. missj
    This almost makes me want to canel my drs appointment on Thursday!!! It explains why it seems my system can handle small amounts but when I load up I feel horrid. I may or may not get answers in the coming months but now at least I know that there is someone out there, exploring the fact that this could be a spectrum type disorder. I'm still going to go ahead...
  4. missj
    Beware that some forms of magnesium can draw water into your intestines as well, so if he starts having some D it could be due to the mag. The original reason my doc put me on it was for constipation and I started to do some research to see if it could be a deficency and I found out that breathing/heart problems can be connected to a lack of mag in your diet...
  5. missj
    Has anyone had breathing issues with Celiac? I get short of breath really easily but my allergist said my lung function is above normal. I even smoked off and on for a few years. I do notice that when I don't take my magnesium it gets worse, which I guess could indicate a malabsorbtion issue but I don't have any other malabsorbtion symptoms. Any thoughts...
  6. missj
    Yeah, I self talk a lot but I still just use a "low carb" response when asked why I pass on bread/ chips etc. And since I'm pretty health concious, people see me reading a food label and assume I'm looking at calories and fat, not the ingriedients list. It works quite well.
  7. missj
    I totally get the lack of support. That's why I don't want to just go gluten-free without something to back it up. But I also refuse to make myself misrable for the sake of a diagnosis. So I'm hoping I can find some answers in the genetic tests.
  8. missj
    I'm really not worried so much about getting an actual diagnosis as I am wanting an easier way to prove I'm not crazy. The testing doesn't bother me, I just don't feel what my doc wants to do is okay. One test at a time, basically because she's convinced that celiac is not a possibility. Yet I have not even had a full celiac panel done! I'm frustrated and...
  9. missj
    So I was reading that if I do the genetic test, I don't have to eat the gluten. I have been gluten light for over a week now and although I'm still tired and am still constipated, it's not AS bad and I have had 2 good weeks with enough energy for the gym. Plus, I have GAS! For the first time in months, I can feel things moving, I burp and toot and its fantastic...
  10. missj
    Good luck. I am having just about the same issue. A few years ago I cut my carbs to lose weight and started to feel like a miliion bucks. I added them back in and ever since then, nothing has ever been normal again. If I can't get answers from my GI in 2 weeks I want to try my allergist. I have seen lots of people on here talk about being diagnosed by their...
  11. missj
    Sleepytime Tea is my favorite. Chammomile blend I think is what that one is. I also drink Yogi brand Kambucha and Detox. Plus just your typical Lipton stuff but that is usually of the iced variety! Mmmm.
  12. missj
    36 hours with no gluten (that I know of). I had cake this afternoon around 2:30 and by 5:00 my vision was blurry and my mind was fuzzy. At dinner I had a deep fried stuffed mushroom and a slice of bread, along with my salad. It's now 8:30 and I've been nauseas since 6:30? It was about halfway through dinner that I started to feel it. Can other food...
  13. missj
    So I got my med records out and looked over them. The only Celiac thing that was tested was the following: Immunoglobulin A 172 TTG Antibody IgA <3 Gliadin ANtibody IgA <3 I had been told on one of my previous posts that there were more than just that. I know at the time of testing I was on basically a gluten-free diet. If...
  14. missj
    The knotting is exactly how I feel. I used to be able to feel the digestion process after I ate. Now I eat, there is no movement and when it's time to go, it's TIME! Find a bathroom NOW! Even though I have no dx yet, this is my exact problem and I'm glad I was directed to this thread. I am on magnesium oxide pills (by the doc) and a high fiber diet that...
  15. missj

    ARCHIVED Docs In St. Louis Area?

    missj replied to missj's topic in Doctors

    I have heard of Baht from a few people and they seem pretty happy. I guess it is a place to start if the one at Barnes doesn't work out. I have an appointment with her on the 24th. Thanks for the info!
  16. missj
    I totally understand the whole "Friends think I'm crazy" thing. I was told that my intestinal issues can only be UC or Crhons, simply because my mother had UC. So, I staretd a raw vegetarian diet so I could get enough fiber and maybe get some relief from the constipation. It hasn't worked. Go figure. They all thought I was nuts! "why? Meat is delicious!"...
  17. missj
    I'm wondering how common constipation is instead of the "D". That is my primary symptom along with nausea. My doc said that it is not a "classic" symptom but from what I have read on here, constipation is super common. Is this more common with gluten sensitivity than with actual Celiacs? How many of you have the big "C" and instead of the big "D" as the primary...
  18. missj

    ARCHIVED Docs In St. Louis Area?

    missj posted a topic in Doctors

    Possibly looking for a new GI and definately looking for a Primary Care that listen and take the time to try and understand their patients. I currently go to the CAD building at Barnes for my GI. Has anyone had any experiances with anyone there? Good or bad? Primary care is out of St. Anthony's and is probably the most horrible doc I've ever had. For...
  19. missj
    Thanks for everyones input. The thing with the doc, is that I did like her personality so maybe I will do as MsCurious has said and ask the question back to her "what would you do?" I never thought of that. I'll give her a second try (she is at the top rated facility in my city) and if it is the smae ol' stuff I'll go on another hunt. 8 Slices of bread...
  20. missj
    I have been struggling with intestinal symptoms now for at least 6 months. I have seen my primary care doc, who jumped to the conclusion of Ulceritive Colitis (no testing done. This was based on the fact my mother had it.) I went to a gastro, who charged me $328 to tell me to eat more fiber (without asking me about my current diet), take Phillips Milk of...
  21. missj
    Thanks! The more I go over the things people have said about their symptoms the more I go "that's me!" Since the wedding I was in (October), I went back to a typical diet and that's when things really got bad. But man, has it been tasty! lol. If I do infact have Celiacs, it's going to be a tough road for my taste buds.
  22. missj
    Hi there! I am 27 years old and have been tested (blood test) for Celiacs before. My doc said it was negative and told me I "probably just had IBS". Nearly 6 months later my symptoms have gotten worse and I am getting ready to see a gastro. I am slightly worried because I don't really know if this is even the right path! Any guidance would be great. My...
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