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Everything posted by Sparks

  1. I guess I have to decide whether I want to get a refferal to a GI or just say good bye to gluten without talking to one. Does anyone know what would cause a positive result on the anti-gliadin IgA test, but not the IgG?
  2. Hey guys! I just got my celiac results back, and I was hoping for some help with their interpretation. I was strictly gluten-free for a bit over a year before undergoing a gluten challenge for 3 months. All of my tests were negative, except one, which was "low positive". I'm not sure what I should make of this, or how accurate/specific this particular test is. Anti Endomysial, IgA Negative Anti Gliadin, IgA 22 (Reference Ranges: <20 U Negative; 20-30 U low positive; >30 U positive) Anti Gliadin, IgG 6 (Reference Ranges: <20 U Negative; 20-60 U Indeterminate; 61-90 U low positive; >90 U positive) Anti tTransglutaminase, IgA 3 (Reference Ranges: <20 U Negative; 20-30 U low positive; >30 U positive) Anti tTrasglutaminase, IgG Negative
  3. I guess it is acedemic at this point, as I did react--bloating, gas, burping every day for three months--but I suffer from pretty strong self-doubt. When I added gluten back after a month gluten free, I reacted with terrible D. I didn't have the same reaction this time after over a year gluten free, so I worry that it's all in my head. Or something. Self-doubt, ick. I'm not sure if I should push for an endoscopy or not. On one hand, my doctor replied with this "The weakly positive antigliadin IgA antibody is unlikely to indicate celiac.". On the other, this study from England ( says that people with positive AGA and negative EMA should be 'scoped. I figured I'd run it by all the smart people on this forum.
  4. No total IgA was run. I'm not scheduled for a 'scope. I am confuzzled! What's the accuracy/specificity of the Anti-gliadin IgA test? Are the others more accurate?
  5. Yup, re-formatted it. Hopefully it's better this way...
  6. One thing to keep in mind is that the percent of babies born each season is NOT constant-- April has the lowest number of births in the US, while September has the most. If the time of year with the fewest births has the greatest number of celiac births, well, that's interesting...
  7. Tonight it's crock-pot pot roast. Last night was shephard's pie, my favorite. Tomorrow will be leftovers. (I love both of these dishes, so having leftovers is great. )
  8. Chex muddy buddys were my favorite as a kid! Perhaps you could make them with sun butter (sunflower seeds) if peanuts are out.
  9. I agree that it's probably not worth it when the treatment is the same. And at least he didn't try to tell me it was all in my head. Edit: He's not the most enlightened doctor, no. Luckily I found this board so I know exactly what "minimize" means.
  10. I spoke with my doctor today, and based on my reaction to adding wheat back in to a gluten free diet, I've been diagnosed with Gluten Intolerance. He doesn't think it's celiac (even though I've never been tested for celiac...) and says the only thing I can do is minimize gluten. On one hand, it's nice to have a doctor agreeing that this is a serious problem. On the other, I'm concerned that he would dismiss celiac without testing at all.
  11. I haven't made this myself, but I came across this recipe and it looks delicious...
  12. I came across this recipe for Homemade Cadbury Creme Eggs (posted here:). It looks delicious, and may help curb a craving or two. I'm going to try and make them for Easter (when I can shove most of them off to nephews/nieces instead of eating the entire thing myself. )
  13. Sparks

    What Is This?

    Feeling completely unmotivated to do anything? Like, not even fun things? Sort of listless, but with anxiety over everything you should be doing? I felt this way a lot before starting my gluten-free diet, and it was the one thing I noticed a huge difference on. I think I experienced a brief return of this after eating gluten, but I attributed it to being tired.
  14. Sparks

    Delay In Symptoms?

    That's what I was afraid of. I thought it unlikely as I'd had a normal bathroom trip earlier in the day.
  15. Question: Could gluten cause a reaction 3 days later? I was diagnosed with IBS, and was trying a gluten-free diet to see if it helped. I was pretty grouchy the first couple weeks, but then I felt *great* (mentally, at least--I think most of my digestive problems stem from fructose malabsorption). Motivated! Happy! Energetic! Then life happened, work became stressful and most of the mental benefits seemed to fade. Saturday, after being gluten-free for about a month and a half, I ate a whole bunch of gluten. Hamburger bun, cupcake, couple girl-scout cookies. I felt okay. Maybe a little tired the next day, but nothing that I could pin directly to the gluten. Great, I thought, gluten isn't my problem! Now, I don't think grains are all that great for human consumption in the first place, so I kept avoiding gluten even after the 'test'. And everything seemed fine. Until last night. Yesterday, I went to the bathroom in the morning and had a normal bm. Everything I ate was something I've had regularly in the past month and a half with no problems. But last night, I had an attack of D. Not just loose stools-- I mean feeling sick, waves of cramping, etc. My question is: could this be caused by gluten? Or is it too late to have caused the reaction? I never had a problem with D before, only C ( which avoiding all dairy save butter has abated).
  16. The stomach gurgles can be caused by additional substances in addition to gluten-- it's not uncommon to have multiple food intolerences. Personally, I have fructose malabsorption and lactose intolerance, so milk and onions, etc give me terrible stomach gurgles.
  17. I had terrible brain fog. I couldn't even remember the word "iceberg"! I felt like I was getting dementia at 28. Luckily, that seems to be in remission.
  18. Thanks for the reply! I typed that up at work and I know it was rather... unwieldy. I haven't had any other vitamins tested to my knowledge, but I'll definitely look into that. I found out yesterday that my mother and brother have similar symptoms (and my brother was just diagnosed with hypothyroidism two weeks ago). On one hand, I feel terrible because who wants their family to be sick? On the other hand, I feel a bit better because I was worried this was all in my head. I used to pride myself on not being allergic or intolerant to any food. But now I'm even more fired up to find answers, because this isn't just my problem, but apparently a problem with other family members too.
  19. Hello everyone! I've been given the dreaded IBS 'diagnosis' and am trying to figure out if there's something in my diet that is causing the problem. I guess the best way to go about this is to start with my story, yes? I've pretty much always been constipated. I didn't even realize that this was abnormal until a few years ago. I grew up eating almost exclusively processed foods until I was old enough to drive--then I ate exclusively fast food. (Healthy, right? )When my income improved, I ate at better quality places, but still wasn't cooking for myself. I don't remember having any other digestive problems aside from the aforementioned chronic constipation and the pain associated with that. I rarely got sick, although I was prone to skin-based fungal infections (but not yeast infections). I was diagnosed with Raynaud's in 2008. I have tennis elbow in my right arm, but I think that's due to overuse. I have anxiety issues, but nothing I've taken medication for. I've also suffered from a general lack of motivation and energy, but this seems to ebb and flow. Fast forward to 2009: The first half of the year was exceedingly stressful. It was probably the most difficult period in my life. In the months that followed I made several life changes: dating my (now) fiance, moving, starting birth control pills (which I had been on in high school, but then stopped), and learning how to cook. Needless to say, my diet improved. Meanwhile, I started having problems with gas, bloating, painful spasms, stomach gurgling, burping. I tried to pin it to different foods I was eating, but could never conclusively tie it to anything. I've also noticed memory problems and brain fog. Sometimes I have to pause in the middle of a sentence and search for what I'm trying to say. I'm only 28, and I feel like I'm developing dementia! In 2010 I started trying to eat more nutritious foods, shopping at the farmer's market, reducing my sugar intake, not eating a lot of carbs. I switched from the birth control pills to an IUD (although it still has hormones, just less). I finally went to see the doctor about my chronic constipation. He gave me the liquid used to clean out your system before a colonoscopy followed by a month-long course of Miralax. That helped, for a week and a half. Then I cut out dairy. That helped with the constipation. My stools became looser and easier to pass. However, all the gurgling/gas/pain/bloating was still there. And then my hair started to come out in clumps. I've always had very thick hair, so I'm used to shedding a fair bit of hair. But now I can just run my hands gently over it and pull out bunches. It feels like there's less volume in my ponytail, too. I thought I might be having thyroid problems. I'm always cold. My nails are brittle and ridged. The memory problems, hair falling out, etc. It seemed to fit. I went back to the doctor and he diagnosed me with IBS and wanted to give me a medication which my insurance "may or may not pay for" which "may or may not help". He also tested my iron and thyroid levels. My iron levels were fine, and my thyroid hormone was on the high end of the normal range. The last half of 2010 I cut back on my wheat consumption, only having it a couple times a week. I seemed to have problems after I ate it, but only sometimes. Other times I could eat some of it and I didn't have a problem. I went on a cruise and ate wheat with every meal, and I noticed an increase in undigested food in the stool. But that could be caused by something else entirely. I started to look at Celiac. I once had a roommate with it, so it was on my radar. The more I researched, the more I wondered. My dad has psoriasis. My younger brother had some serious problems with potty training/digestion when he was a kid, although I don't know the exact cause or resolution. Unfortunately, we're estranged from my dad's extended family, so I'm not sure if there were any other autoimmune or digestive problems aside from one ancestor with diabetes (not sure if it was type 1). Coming back from the cruise, I've been trying a gluten free diet, but not very well. (I figured I hadn't eaten enough gluten for the past couple months for the blood test to be accurate, so I thought I would try the diet.) I've cheated a couple times (one time I was craving an oreo cupcake so badly I actually cancelled what I had planned for the day to go pick one up) and we've been eating out more than normal. I've eaten french fries that were touching bread. Bad, I know. I'm not sure if it's helping. I've figured out that in addition to lactose intolerance I have fructose malabsorption, and I've tried to follow the low FODMAP diet at the same time. But I'm still having stomach gurgles, gas, pain, etc (although I haven't had a *major* attack in a couple weeks). Phew. Thanks for reading to this point! My question is this: Is this something worth pursuing? Should I keep at the gluten-free diet? Should I abandon this and try to look for another cause? Is celiac even a possibility? Should I get the genetic test or do a proper gluten challenge? This is driving me crazy.