LIZARD66
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Thank you. Everything's been checked. Some were even found to be high. I started taking everything after my celiac disease was dx'ed. My D was severely deficient in '07, before my celiac disease was dx'ed. I worked hard for years to get it to optimal and still take 20K iu daily, due to being on D depleting meds.
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I did have an episode of what I think was DH several years ago when I was contaminated. I had a seizure and woke up the next day to see a blotchy red rash all over my neck and chest. Curiously, I also get a blotchy rash after the neuropathy stops. It lasts several minutes and gives me a "prickly" itch.
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I appreciate all the info. Thanks so much! My neuro is scheduling the skin punch biopsy. As far as I know, that's all that's left to do. Would it possibly indicate if it's from celiac disease?
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Thanks for this. I guess I'm just puzzled that the neuropathy would start after all this time if it really is from celiac disease. Could the Covid booster have kicked it into gear?
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Hey, everyone. I was dx'ed with celiac disease 15 years ago and have been devoutly gluten-free since Thanksgiving of '08. I was doing very well when I suddenly developed severe burning in my torso, arms, face, back, and on the tops of my thighs in December of '21 the day after my third Covid booster. The episodes lasted anywhere from a minute to an hour...
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New Here! celiac disease & Epilepsy?
LIZARD66 replied to Snap's topic in Parents, Friends and Loved Ones of Celiacs
I am a 52 yo mom who started having seizures in infancy, soon after beginning baby cereal. At 41, and many seizures later, I was finally dx'ed with celiac disease. Been completely gluten-free 10 1/2 years now, and my szs completely stopped about 9 mo after all gluten had been eliminated from my diet. I had a few "oopses" along the way but just marked 5 years... -
Thank you both. Sorry it's taken me awhile to get back. I have been researching and trying to get my own act together with some autoimmune goodies that include celiac disease (although I'm on top of that). I know now that my teenage son has to avoid gluten as well, and that's taken up a lot of time because he's such a picky eater. As for hubby, he doesn...
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Hey, folks. I am a new member who posted about my son a couple days ago, whom I strongly suspect is gluten-intolerant (neg for celiac disease). Due to this and my celiac disease, hubby and I agreed to make the house gluten-free, but he's said he still eats whatever he wants when he goes out while he's at work. He also has a very large gut (and is not...
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ARCHIVED Son Undx'ed And Going To Ihop With Class
LIZARD66 replied to LIZARD66's topic in Parents, Friends and Loved Ones of Celiacs
Thanks to you both! I just called them, and the girl I talked with knew the class was coming. I explained to her, and she said they cook the hashbrowns separately and to have the teacher remind the wait staff to make sure all the food is prepared so that there is no cross-contamination. 'Preciate the help! LIZ -
ARCHIVED Son Undx'ed And Going To Ihop With Class
LIZARD66 posted a topic in Parents, Friends and Loved Ones of Celiacs
Hey everyone! I am a brand-new member who just joined today. I have celiac disease and have been gluten-free for just over 2 years. My 16 yo son (high-functioning autistic) has been tested and was neg, but now I'm almost certain he's gluten intolerant and am in the process of making his diet gluten-free. We are about 85% there and are getting cooperation...