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patylu

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About patylu

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    Female
  • Location
    Missouri
  1. I'm going to continue with the gluten-free diet until told otherwise. For now, I don't want to add anything that would create more problems. I did feel better for about 10-14 days but now I'm back to feeling like I was - general upset stomach/nausea, tired, just overall not good. Occasionally I'll have a day when I'll feel VERY bad and have severe diarrhea, nausea, and sometimes vomiting. It takes me at least a day to recover from that - so that puts me out 2 days each time. I did start a food journal today along with symptoms I feel throughout the day. I hope it will start to point to something. I had gall bladder testing done today and it seemed to go very smoothly which makes me think that it's not my gall bladder causing problems. After the tests, I talked to 2 nurse friends and they didn't think (based on my reactions during the test) that my gall bladder will be to blame for this. I sort of hope it is though so I can get some relief.
  2. That's a good question. I really don't know the answer to that.
  3. I called and talked to the doctor on call yesterday. He said without looking at my labs but listening to me, he does not think I have gluten issues. He thinks that I have gall bladder issues and is going to get his nurse (who happens to be the same nurse as my doctor) to set up an ultrasound of my gall bladder. I really hope that this will provide me some answers. I'm so very tired of feeling so bad.
  4. I have been eating gluten-free for about 3 weeks. I was feeling a lot better but this past week has not been great for me. Last Friday I had a terrible day and thought it was the prilosec I was taking. I stopped that and felt better. Now I have been running to the bathroom and feeling nauseous since Thursday night. Could I have a gallbladder issue? I have no idea what to do about how I'm feeling but I'm so tired of feeling bad.
  5. I'm so glad you guys are posting about this! I was about to post something very similar. I have also been gluten-free for about a month and have problems here and there. I think I'm eating gluten-free but maybe I ate something with gluten and didn't know? Last night I felt terrible and today I feel a little better but just sort of blah and tired. I thought it was maybe something I had eaten at lunch yesterday afternoon.
  6. I don't know. I just know that when I asked if Prilosec was gluten-free, the pharmacist walked around the counter and picked up a box of the OTC. I told her that I'm on 40 mg of prescription and then she walked back around and looked something up in a book.
  7. I just talked to the pharmacist and asked if prescription Prilosec was gluten-free. It's not! No wonder I had problems! Prilosec is a PPI (not sure what that means but it's the type of medication) and there are NO gluten-free PPI's according to my pharmacist.
  8. I know! That was my thought too. I might need to find a new doctor. I've looked at all the side effects too. It says if you have severe diarrhea to contact your doctor. Well, that's what I did and he wants me to take more! I'm not going to take it for a few days and see if I feel better off of it than on it. They want me to call on Monday and let them know how I feel without it.
  9. About 2 weeks ago I went to the GI for a follow up on my upper GI scope and he said that although my labs are normal, I am on the high end for celiac. He put me on a gluten-free diet which I think I have been following. He also upped my Prilosec dose from 20 mg to 40 mg. I didn't take it Monday or Tuesday of this week because I just plain forgot. Wednesday I took it as usual and after eating breakfast felt a little nauseous but it got better by the time I got to work. Same thing Thursday. Then today I took my Prilosec, ate breakfast and became violently ill within about 20 minutes of eating. As far as I am aware I have not eaten any gluten. I have new containers and cooking utensils and I wipe down the counter tops every day in the kitchen. I called the doctor's office today to tell them about what was happening and they want me to take double my dose of prilosec - taking 40 in the morning and 40 in the evening. Are you serious?! Does anyone else take prilosec or something similar for heartburn that has had a similar problem?
  10. I have been gluten free for 1 week and have started to feel better in the past day or 2. It's fantastic! I feel more alert, have more energy, less upset stomach, less irritated, and less anxious. This is wonderful. I'm still a little jealous of my family's gluten-digesting-super-powers but I will learn to live with that in time.
  11. Thanks for all the advice everyone! This might be a little too much information but it also seems like my body is going through some sort of "flush" since I've started this diet. Well, really it's not still just the first few days. I was in the bathroom A LOT on Saturday but now it's back to normal. Anyone else had similar experiences?
  12. I know everyone is saying to avoid dairy but what about yogurt? It has probiotics which are also good for digestion. Can I eat that? There really aren't many breakfast foods I like and yogurt happens to be one of them.
  13. Thanks for the advice. I figured I just needed to give it more time. Eating gluten free has a big learning curve for sure. I'm hoping to be a quick study! I've already replaced plastic containers and cooking utensils. I'm getting ready to order some stuff in bulk online to stock up. I'm just tired of feeling so bad all the time and would like to see some improvement, you know?
  14. I recently have been told to try a gluten free diet. My labs (blood and samples from a scope) are both within the normal ranges (but on the high end) for Celiac but my doctor says that I present as someone with Celiac. I've been eating gluten free since Thursday (5 days). I feel a little better most of the time but sometimes after I eat I still feel a little nauseous. Is this normal? Do I just need to give my body more time to work this all out? My doctor told me to try gluten-free for a month with the hopes that because I'm borderline for Celiac that eating gluten-free will help my stomach issues. So far I'm not so sure it's helping that much.
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