October3
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Everything posted by October3
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ARCHIVED What Else Causes Elevated Ttg?
October3 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My son had an elevated tTG (48) but very few actual symptoms of celiac and a negative biopsy. The primary syptom we're trying to explain is recurrent anemia, which of course could be celiac but could be any number of other things as well. I am trying to figure out, then, why would the tTG be elevated if he does not have celiac or a gluten sensitivity... -
ARCHIVED Waiting For Results And Planning Next Steps
October3 replied to October3's topic in Parents, Friends and Loved Ones of Celiacs
We have considered going ahead and eliminating gluten. The problem with doing that is I'm afraid we'll see results and assume it is the gluten (therefore leading us to conclude that we need to eliminate gluten long term and strictly) when it actually could be any number of other things, such as the resolution of the anemia. To clarify, he has not been... -
ARCHIVED Waiting For Results And Planning Next Steps
October3 replied to October3's topic in Parents, Friends and Loved Ones of Celiacs
Well, his biopsies were normal. Sigh. We're thinking our next step will be to work on building up his iron and make sure generally he is eating well and getting enough sleep so we can rule those things in or out as causing the behavior stuff. The GI wants to check his tTG again in 3 months. If it is rising we will consider eliminating or greatly... -
ARCHIVED Waiting For Results And Planning Next Steps
October3 replied to October3's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for your reply Dixiebell. The GI did not run a full celiac panel, just tTG. If the issue is gluten sensitivity as opposed to celiac would that show on a celiac panel? I'm not sure I trust that school either. Especially since I'm not sure we would be able to detect an exposure. I'm thinking maybe at least initially we will just send everything... -
ARCHIVED Waiting For Results And Planning Next Steps
October3 posted a topic in Parents, Friends and Loved Ones of Celiacs
My 6-yr-old had his colonoscopy/ endoscopy yesterday. We should have results by the end of the week. Our GI feels confident that if he has celiac disease it will show on the scope, but from what I have read I am not as certain. While waiting for results I'm considering what will be our next moves in either case and would love some input from those who...