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Bis-quit

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  1. I had been off gluten for 5 months when I visited the new doctor, he immediately wanted me to resume eating gluten for one month and then have the endoscopy. Well after reading a few posts here on the forum, I see that most doctors want you to eat gluten for 3 months and THEN get tested. So now I'm wondering if the endscopy I had this past monday was a waste of time because the doctor only had me eat gluten for just one month. Was one month long enough?
  2. Hello everyone, I had my endoscopy done this past monday, and of course won't have results for a while. But I do have a couple questions you all might be able to answer in the meantime. First, can the doctor see any evidence with the endscopic exam that would indicate celiac, or is it strictly seen only thru the biopsy? Second, the endoscopy showed an irregular z-line, is this something that some people "just have," or is it a sign of something else? Thanks all
  3. The results were: HLA-DQB1 Molecular analysis, allele 1 0501 HLA-DQB1 Molecular analysis, allele 2 0502 And the exact wording from the results: Interpretation Of HLA-DQ Testing: Although you do not possess the main HLA-DQB1 genes predisposing to celiac sprue (HLA-DQB1*0201 or HLA-DQB1*0302), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Having two copies of a gluten sensitive gene means that each of your parents and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity may be more severe. This test was developed and its performance characteristics determined by the American Red Cross - Northeast Division. It has not been cleared or approved by the U.S. Food and Drug Administration.
  4. I got real sick last August, I was having D up to 12 times per day. After all the testing my results "suggested" I "might" have microscopic colitis. Celiac blood tests were negative. I went on and tested thru enterolab and my results said that I DO NOT possess the main HLA-DQB1 celiac gene, however I do possess two copies of a gene that predisposes me to gluten sensitivity. I recently seen a new GI doctor and he has me scheduled for an endoscopy April 4th, he wants to check me for celiac and he stated that microscopic colitis can go hand in hand with celiac. My big question is: Since enterolab shows that I do not have the celiac gene, is there any real possibility that I can still have celiac? Is the endoscopy a big waste of money if I do not possess the celiac gene performed thru enterolab?
  5. My doctor insists that I do the biopsy, he told me that bloodwork is not accurate enough to properly diagnose celiac.
  6. Just curious, how many of you had negative bloodwork for celiac done, but then went on to test postive with the biopsy?
  7. I had testing done thru enterolab, the gene testing revealed I have double gluten intolerance genes, but do not possess the celiac gene. Does that mean that their is no way possible to have celiac? I informed my doctor of the testing, but he still wants to go ahead with the endoscopy.
  8. I should probably add that I was still eating gluten when the blood tests were done.
  9. Hello everyone, I have quite a few questions as I'm trying to put this puzzle together. Here goes...one fine day last August I became very sick all of sudden. I was having D up to 12 times a day, I went to a GI doctor and they did all the usual testing including a colonoscopy with biopsy. The doctor said "it could be microscopic colitis" based on the biopsy. He put me on a drug called questran and sent me on my way. The D lasted for 4 months, and during those 4 months I did alot of research and learned about the gluten connection to microscopic colitis. So I stopped all gluten and things improved greatly. I then contacted the doctor and asked to be tested to celiac, he ran some blood tests and everything was negative and said no it wasn't celiac. That doctor has since skipped town and I just went to a new doctor. The new doctor basically called my old doctor a quack and he couldn't believe they didn't do an endoscopy to check for celiac. This new doctor said that blood work alone is not accurate for diagnosing celiac. And he said their is a strong connection with microscopic colitis and celiac and he feels strongly that it is celiac. The doc wants me to eat lots of gluten for a month and then go in for an endoscopy. I have been eating gluten now for 4 days, and have NOT had any kind of reaction. Here are my questions.... 1. If I was celiac wouldn't the consumption of gluten be causing me some kind of distress by now? 2. How accuate is blood work for diagnosing celiac? Is it possible for all the typical celiac bloodwork to come back negative, but end up with a positive endoscopy? Thanks for any help you can offer, this whole illness has been quite a mystery.
  10. Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment. I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?
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