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About canutillo

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  1. My son's pediatricians office just called with the results of his celiac panel. In the nurse's words, "His results were all pretty much normal." Huh? I asked for the actual numbers and such and was told she could not give them over the phone. I then said I'll come by tomorrow to pick up a copy. She put me on hold, came back and told me there was no need- everything looked fine. No need for a follow up or to talk to the doctor. That really annoys me!
  2. That was the complete lab report. The only other info is just my personal info. My son is having a variety of systems to include rashes. He was also just dx'd with psoriasis. Why do they not run some tests? Is it based on the results of the other tests? Thanks!
  3. I had a celiac panel done in 2008. My gi told me it was negative, but a derm dx'd me with dh after that. I have been gluten free since the derm, so about one year and am doing great. But I just pulled my records and am wondering about the results: t-Transglutaminase (tTG)AB IgA <3 <r> Endomysium Ab IgA TNP<r> Gliadin Ab IgA 6<r> IgA 150<r> Transglutaminase Ab IgG TNP<r> Endomysium Ab IgA TNP <r> Does TNP mean that there was none found? What do the numbers mean? This is more of an idle curiousity because you'd be hard pressed to get me to go back to eating gluten (this morning- for the first time in 4 years!- I don't have any open sores on my legs). But I am curious since my son is having the same panel done and we are hoping for the results Monday or Tuesday. edited because I can't spell Thanks!
  4. You can add me to the list! It is healing very nicely (one year later) but it will still starts to bother me at night!
  5. How are you today? If you haven't heard from your doc, you may want to head over to the ER. Drug reactions are not a good thing.
  6. My dd19 is cannot eat apples. Or any fruit with a pit. I would stop with the apples. Then when you are feeling good again, it is up to you if you want to try gluten. I wouldn't bother if you feel so much better. It takes time to heal. I read somewhere that it can take up to 4 years for gluten to get out of your system. I have been gluten-free for a year and will still on occassion break out in a new patch of dh or feel really icky for a couple of days- but am still improving. So that feeling 90% better can still reach 100% with time. Of course, there could be something else in your diet that effects you (corn, soy, dairy, etc)
  7. I just went to the home page of this site and there was a Papa John's Pizza banner ad on it! Maybe they're considering gluten-free pizza?
  8. My own experience led me to believe that doctors don't know as much as they think they do. I was told I was too fat to have celiac disease. My dermatologist wouldn't consider my rash being dh- because I didn't have celiac disease, because I was too fat. The rash that went from my waist to my ankles- the one that would ooze and bleed and scab was just "dry" skin. I had the blood panel done, negative- and the gi was quite insistent that there are no false-negatives. I had the endoscopy biopsy- he took one sample. Negative. The derm took a biopsy of the rash- and he took a blister instead of the area next to a blister. Negative. I was seriously considering suicide- I was beyond miserable. The dh was unbearable. Then I go back to my derm and he says that another derm was visiting from Europe and would it be ok if she came in. Sure. Honestly, in about five minutes of looking at my chart and my legs she told me that it was celiac. After I got serious about going gluten-free, the change has been remarkable. I think you should just try it and see if you notice a difference.
  9. A little background on me: I was diagnosed with Celiac Disease about a year ago after suffering from DH for 4 years (I mean suffering- it grew until it covered most of my legs, across my back side, and sometimes my elbows). I had every test done, all negative. Until a visiting doctor who had just studied DH was able to look at me. She looked at my records, looked at my legs and told me that she knew I had it and to ignore the tests. I've been gluten-free ever since and have never felt better. My legs are healing, I've lost 20 lbs (still have another 20 to go), and I actually have some energy again. Well, we have 4 kids. Our ds16 has always had, um, bowel issues. He often complains of stomach aches and cramps that will keep him home from school. Last week, he broke out in three spots that looked a lot like my dh when it was first starting. I took him to his doctor on Monday. He drew a celiac panel and also dx'd psoriasis (is there a relation since they are both auto-immune?) with a referal to a derm for that. We should have the results of the blood panel next week. My concern is the insane rate of false negatives. My gut tells me to just have him go gluten-free. He and my husband are against this, because it is very restrictive. But I truly believe that he will feel so much better. I know I don't have a specific question- but does anyone have any words of encouragement or advice? Thanks!
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