
fozbery
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Everything posted by fozbery
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ARCHIVED I Think I Can Really Rule Out Celiacs.....
fozbery posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi guys I posted a while back about various tests I had and I just got hold of my serology. I am having trouble interpreting it. I am in Switzerland so I think there measurements and units are slightly different: Immunglobulin - A 0.70 - 3.70 g/l result = 1.2 Anti-Gliadin (IgA) - < 7.0 U/ml result = 0.9 Anti-Gliadin (IgG) - < ... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi guys Just to give you an update, after 24 hrs of extreme stomach pain and diarrhea I am now starting to feel better. I would advise anyone with a sensitive stomach to ask for advice about barium contrast solution before agreeing to drink it. I was going to the toilet so much that I began to bleed, I also had a bad taste in my mouth and very sore throat... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dont get me wrong, moviprep is not nice, but its easier to get rid of, it just flows out like water! What happened with the allergist? -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know I didn't ask since I am eating Gluten at the moment. Honestly I would rather drink two litres of Moviprep which I had for my colonoscopy than drink that stuff again. Maybe I am just sensitive. Got an appointment with an allergist on Tuesday, not giving up (yet). -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I will never agree to drink that stuff again!! My stomach is going crazy, all night it has been growling loudly with painful spasms and watery diarrhea. Now its lots and lots of gas that is painful to pass. I hope this ends soon. I am worried about the bleeding but I am sure it is just from a cut or something form all the irritation. I have felt bad now for... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know I'm just going to eat safe foods probably. Did you have any other side effects from the dye or solution? I was shaking a lot on the table and my legs are still shaky now. It was quite bad, I couldn't control it. They feel kind of numb and tingly . I'm a bit scared to be honest, I didn't expect to feel bad afterwards. I also feel nauseous. They... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just back from ct scan and reacting very badly to solution! Watery diarrhoea non stop! I asked to lady before if it would make me sick and she said no!!! Well I Barely made it home! I am also bleeding but I think maybe that is just from a hemoriod. I really hope so!!! They did tell me that there are no signs of inflammatory bowel so thats at least something... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi thanks for your replys a1956chill, what did they see on your ct scan? Apparently I have to drink something which I am a bit nervous about! My big problem at the moment is that although the doctors did the biopsy they never did the blood test so I am eating gluten again in order to get that blood test done. They didn't do it because I told them I... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yeah, sorry -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok, update on me. I now have to have a ct scan (tomorrow) but Im not really sure why. They still dont think it is celiacs. He said if it was celiacs I would have malabsorption which I apparently dont due to my recent blood tests. Is this true? All I know is that I started to feel normal without gluten and now I am eating it again I am really sick :... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok now I just saw that I have a low level of lymphocytes in my blood test and nobody told me this! I am always sick, catching colds and viruses about once a month and now with this information I am getting really worried. I am so sick of diagnosing myself when there is obviously something wrong. -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello me AGAIN! I decided to get a copy of my results form my gastroscopy and it says: diagnosis: microscopic, impressive atrophy of duodenal mucosa YET THEY TELL ME I DO NOT HAVE CELIAC!! How is that possible?! I am so confused! -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your encouragement nuttmegs. I was also wondering what is the difference between Celiac and Non Celiac Gluten intolerance? Is NCGI also damaging to the intestines etc? Is NCGI just Celiacs that is not officially diagnosed through biopsy? -
ARCHIVED Another Endoscopy Today
fozbery replied to goodnews's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there I just thought I should let you know that my biopsy and claprotectin stool test both showed signs of inflammation. In the stomach, duodenum and intestines. But my biopsy was negative. It sounds like inflammation can be caused buy celiac and I still think I have problems with Gluten. I have been gluen free for about 3 or 4 weeks now and am... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for replying ravenwoodglass. I see that you were diagnosed by an allergist, maybe I should go to see an allergist. I am now sick again with a sore throat and headache but I suppose I have been stressed recently and not sleeping well. So fed up with guessing what is wrong. My immune system is at an all time low. But Im still sticking to the gluten... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again Im just posting again to update. I am still gluten and lactose free and starting to feel a bit better, mainly more energy and less gas and cramps. I have got an appointment with another GI in one week. Im just so confused, my stool test showed a really high level of calprotectin (indicative of inflammation) and thats why she insisted on... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your answer. I am living in Switzerland at the moment and I am lucky that I am seeing a specialist at a very well known hospital. I could try and find somebody who specializes in celiacs or ibs symptoms but it might be tricky. I am finding it hard to believe that a specialist doctor would overlook any signs of food intolerance, especially such... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there What is the difference between Celiac and Non celiac gluten intolerance? I am quite deflated and confused at the moment. My colonoscopy was completely normal according to the doctor. I just called and she said that the extra lymphatic tissue on my ileum is nothing to worry about and that it is quite common in young people and children.... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did raise celiacs again with my GI doc but she said Celiacs would be unlikely because of negative blood test as well as negative biopsies. So I feel kind of stupid for thinking about trying the diet again. She is about to diagnose IBS :-( -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello again I thought I would update you on my situation. Also because I am getting even more confused. My gastroscopy was normal except for reddened inflamed stomach lining and thin duodenum. All tests for celiacs negative. Stool test showed very high level of intestinal inflammation. Back from my colonoscopy yesterday and even though my... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. My gastro doc has said that I clearly do not have Celiacs so I presume all vili were fine. Forgive my ignorance but I dont see the point in trying the diet if the doctor has told me I clearly dont have a problem. There seem to be so many restrictions in my diet at the minute because of my IBS symptoms. I cant eat high fiber, anything to rich or heavy... -
ARCHIVED Advice About My Gasroscopy Please....
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again Just got my results and all biopsies and blood tests were negative for Celiacs. Thanks for all your advice and help. I now have something new to worry about. An elevated level of calprotectin in the stool. I now have to have a colonoscopy and I am pretty scared. I know this is no longer celiac related but does anyone know possible causes for... -
ARCHIVED Can You Have Celiacs Even If Nobody In Your Family Does?
fozbery replied to fozbery's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nobody else has been tested. There is really only my mother who has mild ibs and always tired. Everybody says they are completely healthy and normal. I wonder how many people with IBS have all the symptoms of celiacs but not actually celiacs. That's what I'm frightened of. A diagnosis of ibs would be so frustrating because it's so hard to treat and manage... -
ARCHIVED Can You Have Celiacs Even If Nobody In Your Family Does?
fozbery posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am currently waiting for biopsy results and my gastroenterologist thinks I have celiacs but nobody in my family does however my mother complains of IBS and fatigue. Sorry if that's a silly question! Thanks