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heather Goble

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by heather Goble

  1. heather Goble
    I was very excited to hear from a friend that peace a pizza now offers gluten free pizza, but was discouraged when she told me that they uses spelt. Spelt is not gluten free and is part of the wheat family. So bummed! I have missed real pizza so much and got really excited.
  2. heather Goble
    It seems strange that I didn't start getting this until after I stopped eating gluten. I once did get a patch on my chest, the very first time it happened. The patch on my chest was extremely itchy, but hurt when I scratched it. I had eaten peanuts from trader joes that were labeled gluten free. However, the back of the package said that they were made on...
  3. heather Goble
    Since I have been gluten free (about 8 months) I notice when I Get cc'd I sometimes get an itchy blister. It lasts for a few days, goes down, sometimes goes away, sometimes repeats this cycle. When it finally goes away, it leaves a purple mark. The odd thing is, I only get one or two at a time so it doesn't really seem like a rash, but what is it then?
  4. heather Goble
    I have the itching to from time to time, usually on the insides of my arms although I can't relate it to any of my hair or soap products as I have checked the labels and I don't see anything that stands out as a wheat ingredient. Recently my chest and neck have been extremely itchy with a small rash consisting of red bumps. They lasted a few days and then...
  5. heather Goble
    My doctor only took 2 and told me that 3 days back on gluten after being gluten free for over a month was plenty of time! Really frustrated and feel like it was all such a huge waste of time and money.
  6. heather Goble
    I had a similar situation. Negative blood work, negative biopsy. I had been gluten free for a littlemorethan a month when the GI suggested the tests. He told me to eat gluten for 3 days prior and that should be enough. He only took 2 biopsies when I had my endoscopy. I then had a follow up with a physician assistant who said he couldnt believe my results...
  7. heather Goble
    Thanks everyone for the helpful info. I have pretty bad reactions when I eat even a small amount. Usually get a really itchy rash which lasts for about a day, headache, fatigue, and terrible joint pain (which lasts for several days). All of which I have had before going gluten free, but now much worse. I know I can't eat it, so I don't.
  8. heather Goble
    Just wondering how seriously to take the "your results are negative, but assume you have celiac" the doctor said he couldn't believe they came back negative due to the symptoms I have. I guess I was just looking for a yes or no answer and am afraid family and others won't take the "assume that you have it" as a real diagnosis. I'm tired of explaining it...
  9. heather Goble
    Hi, I have just recently had blood tests and biopsy, both came back negative. When I went to the doctor today for the biopsy results I actually met with the phsyicians assistant (who didn't do the biopsy, but read me the results). After hearing my symptoms he said he was very surprised the tests came back negative. I told him that I was off of gluten...
  10. heather Goble
    Just curious- what type of test did you have done to for gluten? Was it the celiac blood tests or something else? I was just wondering since I went gluten free for a month and the back on for about 3 weeks for the celiac blood tests (and having endoscopy on Friday). I am still a little worried that the month gluten free will negatively affect the outcome...
  11. heather Goble
    I also have these same symptoms. I am in week 3 of a gluten challenge after a month off. I also occasionally experience acid reflux with this. I have tried Tums and pepcid ac which have no affect. I only get relief when I am sleeping.
  12. heather Goble
    So glad to see this post as I have the exact same question! I went gluten free for just about a month as well. I wasn't super careful at first of cross contamination, but ended up having bad reactions with even the smallest amount after a week, so was very careful the last three weeks. I went to see a GI who wants to run the blood tests (looks like not...
  13. heather Goble
    Lately, I have been experiencing this mostly on my stomach which is different especially as I haven't been "sick." No rash, no bumps, no redness at all even though each time I think "there's got to be something there!"
  14. heather Goble
    This happens to me as well. It used to only happen when I was sick or getting sick. I never knew how to explain it, my skin just hurt. Now it happens when I am not sick. I thought it was something that was common to everyone. I remember the first time I told my husband "You know how your skin hurts when you are coming down with something?" He looked...
  15. heather Goble
    Did your daughter ever have tests done? Just wondering if the doctor made the diagnosis on gluten challenge alone. I'm in a similar situation, went gluten free for a month, but now have reactions when I eat it. But in hindsight, should have waited to go gluten free so I could have been tested.
  16. heather Goble
    I recently stopped eating gluten. I have dealt with annoying symptoms all my life that I just brushed off as just annoying stuff that happens. It wasn't until I was finally completely frustrated by them that I looked into what may be causing them. Extreme fatigue (from as far back as I can remember), horrible memory and lack of focus, bad coordination...
  17. heather Goble
    Itching is always my first reaction when I accidentally ingest something with gluten. I itch all over without any visible rash. I do however get a couple pimple like bumps here and there, which I never experienced before going gluten free. Actually, I only remember having the itching issue once before going gluten free, it was while I was pregnant with...
  18. heather Goble
    I picked up a corned beef yesterday at the grocery store, they had 3 different brands and everyone of them said gluten-free on the package. It was written in small letters and somewhere off to the side or bottom corner. I was super excited, I look forward to corned beef and cabbage every year!
  19. heather Goble
    Really? Rice Dream says that it is "gluten free" ARGH!!!!
  20. heather Goble

    ARCHIVED Test Results

    heather Goble replied to heather Goble's topic in Doctors

    Thanks- that info was helpful. I was just confused by the itching reaction since it wasn't anything I've experienced before. I've been itchy to some degree, but never all over like that. It happened again a few days(5) later, even though I didn't have anything with gluten in it (maybe cross contamination?) I don't know..... It happened after lunch and...
  21. heather Goble

    ARCHIVED Test Results

    heather Goble replied to heather Goble's topic in Doctors

    I am just worried that 5 days wasn't enough to be off of gluten to get a reliable reaction when I (gave in) and ate some, and also thought the itching reaction was weird (more like an allergy symptom). I haven't tried it again yet and just don't know how long I'm supposed to wait to get a legitimate reaction. I feel a little silly to "need an answer," but...
  22. heather Goble

    ARCHIVED Test Results

    heather Goble replied to heather Goble's topic in Doctors

    Hi Looking for answers, No I have never had allergy tests done, but am thinking about starting there. Hopefully it will get the ball rolling as far as some sort of diagnosis and answer.
  23. heather Goble

    ARCHIVED Test Results

    heather Goble posted a topic in Doctors

    Hi, I have always dealt with multiple annoying symptoms that I thought were just normal things people deal with, maybe some more than others. I am tired, make that exhausted- all the time, ever since I can remember. I would come home from school and crash until dinner because I couldn't make it through the rest of the evening. It is to the point that...
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