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  1. Has anyone had itching without a rash? I have noticed a lot of itching mostly on the back of my neck for a couple of months now and more recently near my ears and on my neck below the ears, but never have a rash, once in awhile I will get a bump but seems to go away pretty quickly. All of my symptoms seem pretty mild in comparison to many of you but I seem to have mild symptoms of all three areas digestive, skin and neurological. I'm waiting on biopsy results but received a weakly positive blood test.
  2. Hello everyone, I'm new to this group but have been reading here for a while now. I had my endoscopy last Wed the 9th, my blood tests came back "weakly"positive. The doctor said everything looked ok but I was a little inflamed in the intestine. I apologize for the long post here, I am so overwhelmed!! I think my problem started about 2 months ago while on a cruise, I got sick - really sick, they think with rotavirus. After several weeks I still felt very bloated. Prior to this illness, I had what I thought was mild IBS symptoms like loose or hard stools, gas, sometimes excessive and occasionally some nausea. After reading many of the posts, I think back and realize that I've had many vague symptoms as well, I was diagnosed with Hashimatos about 15 years ago which is probably a little bit before the IBS symptoms began. I started gaining weight about the time I was diagnosed with thyroid condition and have lost and gained many pounds since then. For the last two years I have been mostly eating healthy food, exercising and losing weight, though it has been extremely difficult for the weight to come off, sometimes taking weeks to lose a single pound. I did eventually achieve a 50 lb weight loss, though it is beginning to come back now! When I was child I had major problems with canker sores and scalp lesions, both went away following a teenage pregnancy but have recently started to return (not nearly as bad though). I also had very thick almost unmanageable hair back then whereas now it is extremely thin. It has been falling out for years now, though never any bald spots, just thinning. Since my mom has the same issue, I just thought it was hereditary. I had a 5 year bout with migraine headaches but they too stopped suddenly. I do now have issues with brain fog, memory loss, anxiety and depression. I am 46 years old. I wonder if I'm reading too much into some of the vague symptoms as many of them did stop suddenly, is that normal, could it be that the symptoms change course and manifest in another way? I'm curious if others had any of the same issues with symptoms suddenly stopping? I feel like my symptoms are not as severe as many people here, but also notice that I have a some degree of symptoms from digestive, neurological and skin. Does anyone else have this too? I was planning to go gluten free after my endo, even doctor agreed the only way to know for sure is to try the diet. Instead I find myself indulging more than ever on foods that I fear I will never be able to eat again. They are all foods that I have significantly limited since adopting a healthier lifestyle, and because I do not notice any significant symptoms after eating I'm now trying to rationalize the notion that maybe this is not my problem after all and if my test results come back negative, I'm off the hook. Or I keep telling myself that I can reduce my intake slowly and see if I notice a difference before going cold turkey. I think I'm in a state of denial now and I'm getting caught up in rationalizing my symptoms as typical for my age, as most of my symptoms seem much less severe than many of yours! I should also add that my family will not take this seriously if I get a negative biopsy and even have my doubts about their level of support with a positive biopsy. Anybody willing to share their experiences would be appreciated! Thanks!
  3. Hello All, I've been reading on this site for about a week now, haven't posted because I'm trying to tell myself that this is not what is happening to me. I go tomorrow for my intestinal biopsy and have had a blood test that came back "weakly positive. I'm curious if anyone has had a weakly positive blood test and a negative biopsy. Is that possible or am I only in denial about the possibility of having this condition? I don't see myself as having alot of the same digestive issues as many of you describe. I have had some IBS symptoms for many, many years, but mostly constipation or loose bowels, typically not diarrea. I've never noticed any changes after eating gluten foods and until recently thought this was normal for me until getting a virus while on a cruise ship. I've been home for 2 months now, and have not felt "normal" since before the vacation. I do however recognize many of the other symptoms that I have had going back to my teen years, I am now 46 years old. When I was young, I was plagued by canker sores, often having 10 or more at a time, I also had sores in my scalp that I would scratch constantly until they bled. All of that seemed to go away after my pregnancy at 18 years old, as well as my long thick hair which began to thin considerably. I never had another canker sore until I was 45, my son however started getting them at a young age and had them as bad if not worse than I did. Fast forward many years, I can't recall anything specific except that I never felt quite right. I would go to the doctor and left feeling as if i were a hypochondriac - a label I was given by my parents long before! I've since had extreme bouts with migraine headaches which I had for years but stopped suddently after seeing a chiroprator, anxiety, depression, thinning hair, weight gain and in the last 15 years ibs symptoms and in the last 5 years or so my memory has gotten significantly worse and I often cannot focus or concentrate. I can watch a movie or tv show and can't remember anything hours later or can't follow a fast adventure type move! I'm feeling very anxious as I type all of this, my heart is racing, I'm scared of what is to come! I'm nervous about the disease, the damage and the diet. I'm so overwhelmed I don't know where to start! Most of my family members have already dismissed this as if it is not serious, and just more of my needless worrying. I'm pretty sure, with the exception of one of my sisters and my husband that I will not get any support from anyone else. I know it could be much worse and feel guily for feeling sorry for myself especially about all of my favorite foods, especially moms cooking that I may never be able to eat again. Bread and pasta are probably my most favorite foods and I haven't heard many good things about the gluten free options that are available. I worry about never being able to travel or eat out without risk of contamination. I'm worried about my son as well, he has many of the symptoms when he was an infant which seemed to improve as he got a little older until his teenage years when the canker sores, bad acne and intestinal problems which really started after a major move and change in schools which effected significanlty psychologically. The drs blamed it all on nerves and blew us off, I feel so guilty for not digging deeper! I'm sorry the long winded post! Any advice would be greatly appreciated! Thanks, Patty
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