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power

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Everything posted by power

  1. it's now june 9 and much has changed.Mikes protein levels gradually increased over the three weeks following his immunization and had to go on prednisone,as he was being weened off it he relapsed again after catching a cold.It seems any thing challenging his immune system can cause a reaction including his gluten allergy.
  2. hi valeriaZ.just an update to the second part of your question about relapses during a cold or illness.Mike,the one with nephrotic syndrome received a vaccine against menengitis and it did raise his protien levels slightly(between trace and .03 for about a week).he upped his fluid intake a bit and it dropped back down to neg.We're still showing great results...
  3. My son developed steroid dependent mcn when he was 2,He is now 17 and has been on cyclophosphomide,cyclosporine.tacrolimus mmf,and finally for the past 3 years,rituximab.I happened to meet a mother who's 12 yr old son also has nephrotic syndrome and that she had it when she was a child but had grown out of it.She also said she later developed crohnes.I began...
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