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Jules

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Everything posted by Jules

  1. Jules
    April Thanks - She does get Pediasure in her G tube. WE have scoped again and there has been no change. I call today for the results from the one done after 6 month so we shall see and we go to an allergist on Thursday for testing for other things as her dad has food allergies.
  2. Jules
    Hi My daughter was tested for celiac disease several times in her blood work and was negative all 4 times they did it. She did end up havng biopsies done and it shows early warning signs of it..... Hope this helps. I still question this diagnosis and am waiting for another biopsy to confirm that she is getting better after 6 months of no glutten....
  3. Jules
    Thanks all She was a good eater and just stopped one day like someone flipped a light switch. That is what bother us most. Our GI thinks like some of you it just hurts to eat so she stopped and she will start when she is ready again. I too worry about her not being hungry while using the feeding tube but the drs do not want to stop it until she eats...
  4. Jules
    My daughter has had 3 since we found out but they have been: 1 to find out, 2 when we put in a feeding tube and again yeasterday when we put in a new type of feeding tube. This has been done since April 2008. My GI said he would probably do it again at 1 year since she is showing no signs of any improvement... The 2 biopsys did not change so am awaiting...
  5. Jules
    Thanks all for you advice. It is just so hard to sit by and watch and feel like I cannot do to much to help her. Her GI wants to put her in a behavioral eating program that force feeds and I am not on board with that so we are just going to try to help her as much as possible and see where we go from here as she is gaining weight and growing and looks healthy...
  6. Jules
    Can anyone tell me how long it takes for kids to show signs of improvement. My 2 year old was diagnosed as having celiac disease in May of 08. She did not test positive in the blood workup but the drs say she showed the early warning stages in her biopsy. We have been working on a gluten free diet (when she does eat something) she is being supported...
  7. Jules
    I too have a 29 month old daughter who at 23 months decided she was done eating and starting and fell off the charts - she was 18 lbs at 2 years old. No one knew what was wrong. She is now on a feeding tube and is still not eating enough to live on on her own. We go again on Monday for a Mikey button to be placed in her stomach. We has one test after...
  8. Jules
    Just wondering if anyone has found Pediasure to be a trigger for any of your kids (it is suppose to be gluten-free)? The 2 yr old little girl I work with (I'm an occupational therapist) is NOT allergic to milk or soy products according to the MDs. Her family and I suspect that there still might be some other additive or something in the Pedisure...
  9. Jules
    April, Thanks so much. I would appreciate if you could post my original description on the kids with allergies site that you are referencing. I omitted my post that this child has been tested for the main food allergies (although who's to say it's not some uncommon allergies that the drs. didn't bother to check on yet). People have been sooooo helpful...
  10. Jules
    thanks all for your advice. We are going to follow up with her dr about EE and EGE. She does not exhibit the normal symptons that other kids have. No diherra, no bloated stomach - she has not slept through the night since birth and some night are better than others - but in April of 08 she just stopped eating and drinking. She is still not even drinking...
  11. Jules
    I was wondering if anyone could give me an approximate length of time (I know that its different for everyone) that it should take the intestines to heal after going on a strict gluten free diet (with no known gluten mishaps)? The child I am referring to is 2 years old and has been on a gluten-free diet since April. Thank you.
  12. Jules
    I was wondering if anyone could give me an approximate length of time (I know that its different for everyone) that it should take the intestines to heal after going on a strict gluten free diet (with no known gluten mishaps)? I am an occupational therapist working with the family of a 2 year old little girl who was diagnosed in April with celiacs and...
  13. Jules
    Yes she has been tested for the main food allergies... All were ok. She also has had an MRI for a brain tumor. She had thyroid testing done also. She was down to 19 lbs at 2 years and is up to 24 lbs but that is because she is getting 37 ounces of pediasure per day to grow. She did not test positive for Celiac in her bloodwork only in her biopcies. ...
  14. Jules
    Hi Everyone, I'm an occupational therapist working with a family that has a two year old daughter who had a series of chronic ear infections and was hospitalized in March/April. Upon returning home from the hospital her family was concerned as she had no appetite and was not eating. Eventually she was put on a G-tube (stomach tube) and is now fed at...
  15. Jules
    I was recently diagnosed with celiac disease. I suggested that my brother and mother get tested as well. My brother's doctor just notified him via telephone that his blood work came back showing a high liver enzyme count. His doctor doesn't seem like he has a good grasp on celiac disease. Does anyone know if a high liver enzyme count is a warning sign...
  16. Jules
    Hi. I'm new to the forum and have been reading many postings about folks suffering with diarrhea and having difficulty gaining weight. My case is actually the opposite. I have spent many years trying to maintain my weight. I have had terrible constipation that I've been hospitalized for, this was usually followed by weeks of diarrhea. I have recently...
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