I am new to the forum and I have some questions. I am a 25 yr. old female that was diagnosised w/ Celiac Disease in 2002. I am still having alot of problems. First off I am currently applying for disability because of the celiac disease and my diabetes have severly prevented me from working. When I go to my doctor he tells me that I am not sticking to the diet and I should see the nutritionist. When I see her she tries to get me to buy a book and tells me to stick to the gluten-free diet and buy all the gluten-free products. The problem with that is that the gluten-free products are so very expensive that I can't afford it. I also live with 5 others that are very country and live by the rule fry it in oil with fatback and flour. And they are not to pleased when I try to use the gluten-free products I have bought. Oh and we have ONE kitchen. I also believe that I am allergic to other foods and my doctor won't send me to a allergist and due to insurance reasons you have to have a referal and he won't do it and I can't see another doctor. I have also mentioned to him that I have lost controls of my bowels and do not know when I need to use the restroom and I end up having accidents so therefore I must wear depends. How embarassing. He doesn't seem to think I have a problem and does no further testing. I have had one scope test and that was when I was first diagnosised. He just seems to think that since I have gained weight (8 lbs) in 3 years that I am doing much better. So if any one can help please respond with suggestions.
New To Forum
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
Hi all:
I am new to the forum and I have some questions. I am a 25 yr. old female that was diagnosised w/ Celiac Disease in 2002. I am still having alot of problems. First off I am currently applying for disability because of the celiac disease and my diabetes have severly prevented me from working. When I go to my doctor he tells me that I am not sticking to the diet and I should see the nutritionist. When I see her she tries to get me to buy a book and tells me to stick to the gluten-free diet and buy all the gluten-free products. The problem with that is that the gluten-free products are so very expensive that I can't afford it. I also live with 5 others that are very country and live by the rule fry it in oil with fatback and flour. And they are not to pleased when I try to use the gluten-free products I have bought. Oh and we have ONE kitchen. I also believe that I am allergic to other foods and my doctor won't send me to a allergist and due to insurance reasons you have to have a referal and he won't do it and I can't see another doctor. I have also mentioned to him that I have lost controls of my bowels and do not know when I need to use the restroom and I end up having accidents so therefore I must wear depends. How embarassing. He doesn't seem to think I have a problem and does no further testing. I have had one scope test and that was when I was first diagnosised. He just seems to think that since I have gained weight (8 lbs) in 3 years that I am doing much better. So if any one can help please respond with suggestions.
Thank you
cori