Kristin07
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I have had gastrointestinal issues my whole life (35 years old). I get stomachaches often but have always had issues with severe constipation (never diarrhea like most celiac patients) and figured it was all related to that. They coined it as IBS back in 2003 and that was the end of it. Recently I was seen by the doctor for some unrelated issue and she asked me about my history of stomach issues. She asked if I was ever tested for celiac and I said no. She order the following blood tests and here are the results:
ENDOMYSIAL AB, IgA-DYN Positive
Mitochondrial Ab Screen <20.0 (Normal)
So even though these test results were odd (1 positive 1 negative) to say the least, they sent me for the biopsy. The biopsy came back as likely mild positive. When I have asked what that means, they said and I quote "they saw something but they are not even really sure you have it, they want you to try the diet to see if it reduces your symptoms." I am not ok with this response. This could be a drastic life change and I want to know for sure.
Can this be false positive? Is a second opinion required here?
We're Not Sure - Let's Try It
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Posted
Thank you so much everyone. I have really been struggling with this greatly and then to get wishy washy answers by the doctors\PA's makes it worse. This site has been a fantastic resource.
The GI doc was sure it wouldn't be positive because I was constipated instead and because the liver test was normal. But I did figure if I have the antibodies then something is up.
The PA also told me because I am "mild if at all" I don't have to worry about cross contamination and I can use the same tools as the rest of the family and don't have to worry about going to restaurants. But....from what I understand any gluten can set off the immune system and cause troubles right?
I am also worried if I am only slightly "sensitive" will I make myself more sensitive.