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aili

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Everything posted by aili

  1. aili
    sorry if this question seems stupid, but what would gluten ever be doing in a salad dressing? would it be the vinegar?
  2. aili
    well, if one eats chinese food in china, then it's not hard to be gluten-free. shopping at traditional wetmarkets is what you see is what you get. eg. soy "milk" is soybeans and water, sometimes sugar. Fresh meat and vegetables are just fresh meat and vegetables. rice is rice. Tapioca or potato starch is used as thickener--not flour, so the biggest worry...
  3. aili
    We did this last year and were forced into a gluten-challenge at the airport. (my daughter is gluten-free). We live in asia, and so know what and how things are cooked, and what we can eat out in situtions where we've eaten all our snacks from home. And frankly, most places in asia have diets that are rice based so it's much easier to be gluten-free. Once...
  4. aili
    tests so far: blood IgG: elevated fecal igA: acceptable gene: HLA HQ2 (yes for celiacs) diet: not sure So now i'm considering getting a test for total serum IgA to rule out a total IgA defiency. Because if this is true then i cannot rely on enterolabs IgA result. What i'm not certain of is what to think or do when i get the results. IgA deficient...
  5. aili
    daughter had elevated IgG levels to gluten so we to enterolabs to check fecal IgA. Came back in the acceptable range --> 6 (<10) however now i'm wondering if she could be IgA deficient which will be another thread i'm going to write now....
  6. aili
    hi, i just thought i'd bump up this thread because i have the same question. my daughter has just started gluten-free diet. she's 3.5 and has always maintained a -5% to 5% spot on the charts since she was 3 months. She hasn't gained any weight in the past year nor height in the past 8 months. She was a former preemie so had been told that that was the...
  7. aili
    my daughter's really started temper tantrums (as opposed to pain tantrums) a week into our CF/gluten-free/SF diet. I discovered that one cause was sucrose, so we cut out sugar too. The other cause was due to a hypoglycemic reaction; she was hungry. she would calm down as soon as we got her to take a bite of something (not an easy task!) When she was on...
  8. aili
    tarnalberry, thanks so much for your tip about raw rood recipes. I had just decided to throw out my attempts to recreate baked goods (dd and me cannot have dairy, gluten, soy, eggs, or sucrose) and thinking in that direction is perfect for us.
  9. aili
    most definately yes! especially the part about being a neurotic mother! to answer your questions: the reaction (screaming and not wanting me to talk, hold, even touch her) would happen during every nap every day if she was at home in bed. It would last about 20 minutes. If she naps in the car she will not have the reaction. Reactions became worse after...
  10. aili
    wow. i have been keeping a written log of food, activities, and responses. i just checked out the online diary at fitness.com and i didn't realize i could be doing all that. what a huge help. thank you! i don't think i will need to prove it to anyone (people aren't really that interested, kwim?) but it is useful to ease my own mind.
  11. aili
    that's my daughters (3.5yrs) reaction from both naps and when she goes down for the night. it would be impossible to get her temperature but i'm sure it would be high because if the screaming and the fact that her pillow is soaked from sweat. This reaction always occurs one hour into sleep. What was the time your son woke up? i'm still trying to figure...
  12. aili
    thank you all for replying! i didn't realize that the enterolab's stool test doesn't require a gluten laden diet. that's perfect! i absolutely cannot do another blood test. It took 4 adults to physically pin her down to the bed (she's barely 11kg) and 30 minutes. She screamed so violently she got bruises under her eyes. It took me two days to recover. ...
  13. aili
    recently my daughter had a blood allergy test done that came back showing an IgG sensitivity to gluten. Do i need to go further in getting her diagnosed for celiacs? i'm putting her on a gluten-free diet anyway. I'm wondering what the benefits are for diagnosis. And if i did get her tested, is there a method that doesn't involve drawing blood or a biopsy...
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