Bowilove

You know, I didn't do anything different with the way I cooked my food. I wasn't told to, and really didn't realize it could be that sensitive. Is it that way for everyone? I can't imagine being able to follow a completely gluten free diet if it's that easy to consume gluten. Never getting to eat out, having to watch the makeup I wear even. That's insane...

Ok I will continue with the gluten foods, and should have a dr appt by next week sometime. I have fixed my photobucket photos, please check them out again if you would for any possible other valuable info, maybe about the vitamin levels etc. THANK YOU! http://img.photobucket.com/albums/1003/prettybow/P1160637.webp http://img.photobucket.com/albums/...

Thank you so much for your input. I will definately have a new dr do a new celiac panel on me and bring that list someone suggested, of all the actual things I need tested in case once again, I get a dr who isnt through. In the mean time, I do need to be consuming a diet containg gluten in order to get accurate results, correct? I also was curious as to whether...

Wow. I am still in the process of figuring out whether I have celiac, but I totally relate to the memory loss or brain fog. I am only 27, but recently my memory has been so bad that I was starting to think I may be getting alzhiemers. I make lists for each day, can't remember things even when it's important info that at the time I KNOW I will need to remember...

Hi guys, I have copies of what my dr tested me for and was hoping it would help those that I have been chatting with, see exactly what my blood was tested for and let me know more as to what they think about my diagnosis and possible celiac. Here are the copies, hopefully I post the correct code for the images to show up: http://img.photobucket.com/albums...

Ahhh, too bad this has so much guess work. I want to bring the list of what to check my blood for to my next dr appt this week, but I am afraid of the cost of more medical bills :/ Especially if I don't get a for sure answer once again. I know that when i did the gluten free diet, I was living off of food that i bought that was the gluten free brands, and...

Thanks skylark for all of your advice. I feel like ive been helped more here already than i have by my dr. Whats your theory on why my TTG was still elevated once I finished those 3 months of a gluten free diet that the dr ordered I mentioned in my first post? the dr told me if I had celiac, my TTG level would most likely have dropped quite a bit after having...

Lilu- that's very smart! good idea! I will definately do that Thank you!

Wow, the EMA test *sounds* like it would cost us an arm and a leg! So the ttg is what was elevated in me then right? And you are saying that it commonly comes up high for other diseases such as arthritis ibd and diabetes? Just making sure I understand correctly! You seem to know your stuff, and I am so new and get mixed up easily but i want to get all the...

As for the false positives I just found this on webmd, the bold is what stood out to me: Endomysial antibodies and anti-tissue transglutaminase antibodies are highly reliable in diagnosing celiac disease. An individual with abnormally elevated endomysial and anti-tissue transglutaminase antibodies has a greater than 95% chance of having celiac disease...

Do you happen to know why the EMA is a harder test to process? My GP has a lab right there in the same buliding. It's PAL (Physician's Automated Lab)..not sure if these are just in my town, or elsewhere too. I have a checkup on the 16th for something else, so I plan to bring this list of tests to show my dr, and ask them then and there if they could run these...

Yeah I am unsure if the test included all of those different things to test for, but I just remember her saying the one thing. And also, I remember her telling me sometimes there are false positives and that maybe that was the case for me. Sounds like from what you guys are saying, maybe my dr didn't do all that she could do for me. I wonder if i could just...

Thanks for your replies guys. I guess i was confused about the colonoscopy..it's been awhile. The colonoscopy was done after finding nothing wrong with the biopsies of my small intestine when they did the endoscopy. They thought maybe there was something going on with me such as colitis or something of that sort, but nothing was wrong. I am sorry I am a little...

Hello, I am hoping someone here can help me out. I have been through so much and still have no answer regarding whether I have celiac or not. Back in 2008, I gave birth to my first daughter. About a month after, I started getting horrible stomach cramps after pretty much everything I ate it seemed. The only thing out of what my daily diet consisted of that...