melissa222

Thank you everyone for the responses so far! I hope they keep coming! If you know of anyone who may want to help out please pass the link along. I am trying to spread awareness and educate others as much as I can. I honestly thought I was dying and that I would not live to see my kids grow up before I figured out what was going on with me. I was having arrythmias...

4. Lost count! 5. 1 to 2 weeks!

A few more questions because the survey only allowed 3 questions. 4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count! 5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months ...

Yall were right! After about 11 days gluten free my energy levels picked up and I have felt incredible...more energy, anxiety is gone, more focus...I have not felt this good in years. Now I'm going to patiently wait for my physical problems to improve! It's almost miraculous. To think had I not figured this out on my own, I would've lived out the rest of...

I'm curious if the diet has helped you? I also had a high DGP IgA, and just got my biopsy results...normal. Dr said it is not celiac, but celiac explains everything. Now I'm depressed because I had so much hope, but maybe there still is hope.

My biopsy came back normal. Dr says it is not celiac but to try gluten free diet. I'm bummed because I thought I had hope to feel better.

I just got my results back I had deamidated gliadin antibodies at 36, along with a DQ8 gene (I got the genetic test at the same time). Other tests were negative. I have major celiac symptoms. I'm having the scope done next week. My GI Dr, who was recommended to me by a local celiac support group, said this test was a very strong indication that I do have...

I just wanted to close out this thread by saying my labs from Prometheus came back with a high positive, as well as I do have the DQ8 gene. Still have endoscopy scheduled for next Tuesday, but it looks like I was right! No thanks to any of the doctors I've seen over the last 2+ years. Also, LabCorp reported the FALSE negative initially, so beware!! Thanks...

Janet Rinehart with the Houston chapter recommended the following GI doctors: Ray Verm, Ian Sachs, Alberto Barrosso. They are all in Houston.

I'm still waiting on my genetic test results, done through Prometheus. I'm a bit skeptical only because on the paperwork they indicate the test is for DQ2/DQ8, but I don't have the results so I'm not sure what it is going to look like. Prometheus and the GI doctor I saw were both recommended by the local celiac support group. Additionally, they informed me...

I have had lots of popping in my joints, particularly my wrists and fingers, since junior high. I'm waiting on Celiac results but was also wondering if it is somehow related. Curious! I wonder if going gluten free will help...

I know you are right. I'm having an internal struggle with it. Dr and Celiacs keep saying eat gluten until tests are over, my family and body are saying no more gluten!! I'm in a tug of war... But I'm dedicated to this, so I just ate a cheeseburger. Ugh. Thank you for the response about the muscle issues. It helped. I also found an older thread discussing...

Let me know how yours turns out! I'm also a wife, mom, and was accepted into a BSN program but my illness got in the way. I hope this is Celiac so there is some hope for healing vs. a progressive decline in health. Me and my kids are too young for me to be so sick. I was so excited about turning 30, I had no idea that my health would suddenly fail me so soon...

Thanks everyone! I went to a GI Dr yesterday and he ordered Promethius Celiac Plus panel, which includes their gene test. I'm so anxious. I guess I'll know next week. He wants to do an endoscopy but I think I'm going to wait for the results before I schedule it. I stopped eating gluten after my test, I figure if I have intestinal damage it won't heal in a...

Well I received the results already via email so have not seen them personally. Just an email that magnesium and celiac profile is normal. I'm not surprised about the magnesium, I happen to know a blood test for mag deficiency is inaccurate. The tests were through LabCorp, and after hearing not to trust LabCorp results I am not totally discouraged, but I...