millersinkenya

My daughter, 14 months, had bloodwork done. My son is dx celiac (-BW, +ENDO), so we had her tested because she is showing so many of the same signs that he had. Her Immunoglobulin IgA came back low- the doctor says she has IgA deficiency... What does this really mean? I mean, I understand it all, but as far as her life goes, do we need to be overly...

I could be. Has she started any solids yet? My kiddos had diarrhea really bad and then when we started solids, it was awful. I mean, 15+ stools per day when not ill. If they were ill, they had 25+. I was literally changing diapers all of the time. Once we cut the gluten out for my daughter, now she has extremely solid poos. I had to cut it out of everything...

Thanks, Kaysmom. We have had him screened. I think he was quite a bit younger than he is now... do I have to have it done every so often? I don't think he has a problem hearing, but I guess I wouldn't know unless we had him tested. Thanks for the encouragement

Thanks, everyone! I guess I just really need help with cutting more things out of his diet. I assumed I would have to cut everything out and add it all back in slowly- impossible for a four year old to understand. I think I will start with milk. We don't have anything with soy, so I think that is already cut out. I will go back and read all of...

Yes, he was diagnosed via biopsy. I do suspect that there is some intolerance to something... all RAST have been negative. We have not done a skin prick test. He has NOT been tested for any deficiencies. He goes to preschool each day. His teacher has celiac as well, so she is hypersensitive to his needs which is a huge blessing. He does have times at...

I am not sure where to even start. My son, almost 4 years old, is dx celiac as of August this year. Ever since he was young, we have had so many issues with his health and his behavior. He is so intense, screams or hours, hits, kicks, etc. He can be so happy one minute and then pissed off for the littlest things. After we got the diagnosis, we immediately...

no, they are in the esophogus... the GI saw them during the endoscopy.

THanks for your reply! We wont get her labs back for another week or so. They had to be shiped to South Africa to be processed. Since my son has it, we went ahead and did the testing. The doc said that the folds looks smoother than he thought was normal, but we do not have the biopsy reports back. They look smoother on the photo than things I have seen...

Try this: Open Original Shared Link

Sorry! I just got it off of google. I didn't sign in to see it, so I had no idea. Anyways, I will see if I can find another one.

My 12 month old daughter had an endoscopy today because my son is celiac. We are testing everyone in the family. She has started to show a similar pattern as he did at her age. The GI doc came out and gave me 4 photos from the endo today. He said that the biopsies will tell us one way or another, but there were two characteristic things he noted....

Let's chat about rashes... My son (3.5) has just been dx with celiac through biopsy. When he was younger, he had a persistent nappy rash- it was terrible! Bleeding, red, nothing helped it go away. It finally went away once he potty trained a year ago. My youngest daughter has started this same nappy rash in the last couple of months, about the same...

I would totally agree with you. We are just a few weeks in and I am sad for him! It is just one more thing to add to the list of life issues he will have to deal with. It is just hard. Glad you are here, though, and doing what is best for your little girl!

I dont think my son has ever been healthy. He is 3 1/2 and has been suffering from migraines, asthma, restricted growth, borderline anemia, sleep disordered breathing, chronic infections, nose bleeds, behavioral issues, diarrhea and vomiting his entire life. It has been a nightmare. We are two weeks and 2 days into the gluten free diet and he is a totally...

UPDATE: The GI doctor has written back to me and stated that it does show that he should be diagnosed with Celiac Disease. They are sending me information on Monday. I guess we are officially gluten-free around here.