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bny06

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by bny06

  1. bny06
    thank yall!! Yes ravenwood- After fearing the absolute worse I think simply staying away from gluten is the best daignosis ever!!!! It has been quite a mind trip the past week or so! Everything else is getting so much better- my stomach, bowel habits, gaining weight and my hormones finally are getting back into order (I didn't have a period for a long time...
  2. bny06
    thank yall so very much for all the advice.... we recieved GREAT news this morning - no ALS!!!! Phewww!!!! I had minor nerve damage on my leg that he says will resolve.. from the weight loss irritating my nerves the way i sit.. but no signs of ALS.. THank God!!! So now i'm just hoping my sypmtoms at least don't worsen much more, and hopefully improve....
  3. bny06
    thanks so much for all the advice.... I go for the emg tomorrow and i'm absolutely besides myself terrified...
  4. bny06
    I live in Dallas, and recently discovered i had celiac.. but i'm also having wierd neuro symptoms since starting gluten free- I really want to see a doc that knows the relationship with celiac and neuro- we are willing to fly somewhere, but of course would rather not. ANY advice greatly appreciated! thank you!
  5. bny06
    Takala.. thank you.. Yea I know my dr kept asking me about my stress level, and the only thing I could say was the only thing stressing me out is this whole issue! When I saw the neurologist and they took me so seriously and scheduled the EMG for first thing monday morning (the soonest they could do it) though i'm glad they took me seriously, it also freaked...
  6. bny06
    Thank yall so much.. I am just beside myself with anxiety with this whole thing.... I just so badly wanted the neurologist to tell me "oh no, of course it's not ALS", but when I saw the look on his face with some of my tests/reflexes and then the mention of those three horrible letters, I have since been a mess!! Do yall know if my B12 levels were...
  7. bny06
    I have been gluten free for 4 weeks now..... when i started going gluten free I noticed My right knee felt a little weak.. then two weeks ago my wrists felt weak and numb.. then I noticed last week my thumbs and other fingers were actually weak - loss of dexterity and pushing buttons my fingers kind of fold up on me.. i'm a 30 year old female, so I know ALS...
  8. bny06
    Thanks so much yall!! Well I had my MRI's and they look clean- phew! I got my biopsy results as well, and they were "normal" but i had been eating gluten free for 2 weeks so not sure what that means! My b12 levels were in the 1000's supposedly.. can you have B12 toxicity??? I started thinking maybe i have some wierd presentation of carpal tunnel or something...
  9. bny06
    Thanks so much yall! I have only been gluten free for almost 4 weeks, and i'm sure making lots of mistakes along the way! My neuro symptoms seem to be getting worse, defintely not improving! I have an MRI of my head and neck tomorrow, if it was something like MS I need to do something to stop the progression of losing my dexterity! It's freaking me out...
  10. bny06
    thanks! I was wondering about the mints too actually! I had wintergreen altoids and wasn't sure if they were safe either! thats good to know about malodextrin -i dind't know what that was! thanks yall!
  11. bny06

    ARCHIVED Magnesium

    bny06 replied to bny06's topic in Coping with Celiac Disease

    thanks!!! Yea, i was taking too much and unfortuantely was causing more GI issues.. but did help the muscles.. I eat at least an avacado a day or so.. and about three bananas ha! Sooo.. i'll ask my dr if they can rx any magnesium that doesn't cause any GI upset, i'm not a fan of the twitches, though I can totally live with it of course!
  12. bny06
    Ok, i'm new to all of this, but are all gums/sugar free gums gluten free?? Thanks!
  13. bny06
    I was curious who all on here has been evaluated for MS and it ended up being celiac? I am almost 4 weeks out on a gluten free diet, and continue to have loss of dexterity/fine motor skills in both hands with numbness/tingling and i'm worried that my symptoms seem a lot like MS, so am now awaiting a workup for that too. ugh! Anyhow, anyones experiences/advice...
  14. bny06

    ARCHIVED Magnesium

    bny06 replied to bny06's topic in Coping with Celiac Disease

    thanks yall... avr- I have stayed off dairy for about three weeks now- I realized after eating a huge bowl of ice cream a couple of times about 4 weeks ago to try and ingest calories and then my tummy getting REALLY mad at me, that diary must also be an issue! Do the bathroom trips usually slow by almost 4 weeks?? I have just figured I had so much damage...
  15. bny06

    ARCHIVED Magnesium

    bny06 replied to bny06's topic in Coping with Celiac Disease

    Thanks yall!! I started taking magnesium malate supplements two days ago and I have to say that my muscle twitches do seem to be better already, though my muscle weakness in my hands is defintely not changed, which freaks me out!!!! gfreelady- I wish constipation was my issue! I'm not quite 4 weeks out on my gluten free diet and unfortuntely have to use the...
  16. bny06
    Thanks so much yall!! I"ll take the hunger, though in reality I don't have the time to always be thinking about what to eat or eating, but WHATEVER it takes for me to feel "normal" again I"ll do!! I don't konw what i'd do without my enlive (ensure juice) drinks! My stomach is finally feeling better, hunger is about the same, its just this crazy nerve/muscle...
  17. bny06
    I tried the magnesium the past couple of days and it defintely seems to be helping the muscle spasms! however I still have pretty crazy hand weakness - typing feels like i have lost some of my dexerity and I'm totally freaked out by that! (did yall have anything like that??) did magnesium or the gluten free diet seem to help with those type of sypmtoms too...
  18. bny06

    ARCHIVED Bone Pain

    bny06 replied to pondy's topic in Coping with Celiac Disease

    I am completely with yall on the forearm/hand discomfort!!! It started with a fatigued muscles on the top of my hands/forearms after typing at work (all fingers, not typical carpal tunnel like symptoms), and since I feel like my hands are weak and wrists hurt if i put my weight on my hands. It's like my muscles are not happy with me trying to overuse them...
  19. bny06
    Thanks for the reply! I'll talk to him about it at my follow up appointment (hoping to at least have biopsy results on wednesday). As I read more online about it (what did we do before the day of internet surfing??) it looks like a false positive is common when receiving proton pump inhibitors.. I was getting IV protonix for 24 hours when they drew the lab...
  20. bny06
    Thanks so much yall!!! I am going to go get some good vitamins- I not only need the nutrients badly at this point, but also don't want all my efforts of being gluten free to be counteracted by ingesting a gluten containing vitamin! I appreciate yalls help!
  21. bny06

    ARCHIVED Magnesium

    bny06 posted a topic in Coping with Celiac Disease

    So i'm awaiting my biopsy results which I should get this week, however I have been wracking my brain trying to think why am I overall feeling better (3.5 weeks or so on gluten free diet) but my muscles seem weaker when I use them a lot.. then I started thinking, the only day that I have felt better as far as my muscle weakness/twitching goes was the day...
  22. bny06
    thanks so much! i'm glad to know i'm not the only one feeling this way! All my friends joke that I must have tape worm or something, i am eating SOO much, and was losing weight until going on the gluten free diet. Now i've gained 5lbs in 3 weeks whooo! I'm really excited about that!! As far as the thyroid goes, a few months ago (i'm currently 6 months post...
  23. bny06
    I am awaiting my biopsy results to confirm celiac, they didn't see any evidence of crohns on my colonoscopy/endoscopy, ct scan, etc.. however today I got lab results for an elevated chromogranin A.. I am not familiar with this test, but it appears it can be elevated in crohns and celiac, and some other things that are kinda "scarey" cancers and such.. I'm...
  24. bny06
    Hello! i'm new to this all too! I'm 3 weeks in to what I think is gluten free, though i'm sure i'm making mistakes! I feel like just the past few days I have noticed some improvement in my stomach symptoms... maaaybe.. my muscle weakness overall has maybe improved a touch, but I still feel weak all over, and just overall a little less "crummy" than I did...
  25. bny06
    I'm having so many of these symptoms as well- my hands and wrists feel so weak! It's hard to type as fast as I usually do.. and i feel like the symptoms have gotten a little worse since going gluten free as well (3 weeks) anyone else get worse symptoms when they went gluten free at first, if so how much longer did the worsen (the thought of this getting a...
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