semily

My 3.5-year-old son was diagnosed with celiac disease just over a year ago. His TTG has gone from well over 100 to normal during that time, and all symptoms are gone. However, in all routine bloodwork done since Oct 2012 his liver enzymes have remained elevated. His GI ordered some additional bloodwork last week to look into it. All the typical liver...

I totally understand your concern about your child not participating in shared snack - we're in the same boat. In the 1s and 2s classes at our daycare parents provide all food each day, but in the 3s room there is shared snack like you describe. Our son graduated to that room last week, and so far he's been fine. Not at all traumatized or upset like I...

Our son (now 3) was in preschool full time when he was diagnosed last year, and we've had a very good experience so far. I did send in a lengthy health notice that's posted in the classrooms, pasted below. I was terrified at first of him eating other children's snacks, crumbs, playdough, etc., but with good teachers it has been totally fine. I'm amazed...

My understanding of the genetic test is the same as StephanieL's; a positive genetic test means you have a predisposition to develop Celiac (or another of a handful of autoimmune diseases including diabetes and Hashimoto's). My older son was essentially diagnosed at 27 months, and without a biopsy. He had been growing extremely slowly since 6 months...

My older son was diagnosed with celiac disease this fall (at 26 months old). His GI recommended that the immediate family all be screened, including our 8 month old younger son. We each had blood drawn and it showed that none of us are positive for the gluten antibodies, but my husband and younger son did test positive for the gene pairing that predisposes...

We decided not to do it. We were very surprised when our phone rang at 9:20 pm on Tuesday- it was the doctor calling to see if we needed to talk, because he hadn't been able to talk to my husband personally yet. The three of us spent 40 minutes on the phone and it was extremely helpful. The doctor said he has to recommend the biopsy because that...

Update: I took my son to Children's Hospital Colorado last Friday to see a pediatric gastroenterologist (an hour flight for us). It was truly an incredible experience and I was beyond impressed from start to finish. The facility is brand new and there was awesome stuff for him to play with everywhere. We checked in for our appointment and didn't have...

pricklypear- Here is the email I got from Crisco: Thank you for your inquiry regarding the presence of gluten in one of our Crisco

I think my DS was glutened on Saturday after eating two peanut M&Ms and a bite of Snickers - both listed as safe on a halloween candy list I printed out too. His appetite (and behavior) have been off since that evening. But we can only do the best we can do! I'm learning to check with the manufacturers for everything - I googled whether Crisco vegetable...

stanleymonkey- Thanks for the ideas! Roda- I can't imagine doing a full gluten trial either. He was so sick we weren't going to give him one more speck of gluten - it absolutely didn't feel right to keep him on it while we found a better doctor to do the biopsy. And as our primary doctor said, how sure did we need to be if we had a positive blood test...

My son is 27 months old and we recently determined he has celiac disease. I'm still wrapping my head around what this means and what we need to do. I apologize in advance for how long this is! Background: His growth has struggled since he started eating solids at 6 months old. Birth- 25% for height and weight. (6 lbs 3 ozs, 18") 2, 4 &...

The wrist x-ray is to check his bone growth age. My son, now 27 months, had his 2 year pediatrician visit this summer and the doctor was concerned about his lack of growth so he ordered a bone growth x-ray of his hand and wrist. It was reviewed by a pediatric endocrinologist who ultimately determined that 2 years old is too young for the test to be conclusive...