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Latest Celiac Disease News & Research:
Everything posted by kathrynk
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				ARCHIVED Hashimotos- "normal" Levels But Major Symptoms?
kathrynk replied to bbdailey's topic in Related Issues & Disorders
I found an endocrinologist with really good reviews, who prescribes armour thyroid based on symptoms and labs (not just labs). I am in the process of obtaining all my medical records to bring to that appt. on Monday. I am hoping that helps! Thanks for the link to stop the madness-It has been very helpful!!! - 
	
	
				ARCHIVED Hashimotos- "normal" Levels But Major Symptoms?
kathrynk replied to bbdailey's topic in Related Issues & Disorders
I have never heard of Addison's, will look it up. I am hoping my endo will put me on armour as well. What are some ways to go about discussing this with my endo (without sounding like I have no idea what I am talking about)? - 
	
	
				ARCHIVED Hashimotos- "normal" Levels But Major Symptoms?
kathrynk replied to bbdailey's topic in Related Issues & Disorders
I was just going to post about the exact same issues. I am fatigued and big time brain fog. I can't even remember what I am trying to say mid-sentence. I am completely off gluten and my stomach pains did go away (neg blood test for celiacs). I am seeing my endo this Friday, and was looking for advice on what to say. My TSH levels are about the same as yours... - 
	
	
				ARCHIVED Marshmellows
kathrynk replied to kathrynk's topic in Gluten-Free Foods, Products, Shopping & Medications
THANK YOU! - 
	
	
				ARCHIVED Marshmellows
kathrynk posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I had a couple at our bon-fire last night-turns out they have dextrin in them...Does anyone know if kraft jet-puffed marshmellow dextrin is made from wheat? - 
	
	
				ARCHIVED Need Some Encouragement!
kathrynk replied to Tarantula44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am on UNDA numbers 1, 20, and 243... You mentioned thyroid antibodies...did you get a dx of hashimotos? The reason I'm asking is because cruciferous (SP?) veggies are not good for thyroid function (kale, broccoli, cauliflower) Also...I have read that the risk of getting a false negative is much higher for people with hashimotos...I will see if I can dig... - 
	
	
				ARCHIVED Need Some Encouragement!
kathrynk replied to Tarantula44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there T, I am in the same boat (off gluten for 2 weeks now) Just finally heard today my bloodwork was negative. Because I have been off gluten, I am not going to pursue further testing. The severe gas pains, bloating, and cramping has stopped. I have lost a few pounds, and the swelling in my face has gone down. IIf I do not have celiacs, I have an obvious... - 
	
	
				ARCHIVED Negative For Celiac
kathrynk replied to kathrynk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you, yes I am off dairy as well! I don't think I am going to re-introduce it as I am feeling so much better without both in my diet. - 
	
	
				ARCHIVED Negative For Celiac
kathrynk posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
my celiac test came back negative. Now I need to decide if I want to explore further testing, or just stay off wheat because I feel better. I am thinking the latter-maybe I will *try* gluten over the holidays and see if the stomach issues start up again. Then I worry the small amount will increase the attacks on my thyroid, so I am leaning towards just staying... - 
	
	
				ARCHIVED Grain Fed Meats
kathrynk replied to kathrynk's topic in Gluten-Free Foods, Products, Shopping & Medications
thanks! and bummer that you are not feeling better My Dr. has nicknamed me "autoimmune girl" however, she says it is all genetics...I don't buy that. I think food plays a big role. I am hoping to heal my gut as well! - 
	
	
				ARCHIVED Off Gluten 2 Weeks!
kathrynk replied to kathrynk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
gotcha-I am not good at forums, or where to post things. I'm learning! - 
	
	
				ARCHIVED Grain Fed Meats
kathrynk replied to kathrynk's topic in Gluten-Free Foods, Products, Shopping & Medications
I was just diagnosed with hashi about 2 weeks ago...I was told that based on my labs my thyroid is functioning within a normal range, so I am not on any meds. I am waiting to get my lab results so I can post them on here and gain some advice on how to progress. I do not have many symptoms-just cold intolerance, reynauds, and sometimes anxiety/heart palpitations... - 
	
	
				ARCHIVED Grain Fed Meats
kathrynk replied to kathrynk's topic in Gluten-Free Foods, Products, Shopping & Medications
no, I'm not that hypersensitive, although I do love brocoli. I was actually in the process of cutting out meats and eating more grains and vegetables until all these health issues came about. Now I am reading a ton about the importance of meats-especially with my thyroid. - 
	
	
				ARCHIVED Grain Fed Meats
kathrynk replied to kathrynk's topic in Gluten-Free Foods, Products, Shopping & Medications
that makes sense, thanks! - 
	
	
				ARCHIVED Off Gluten 2 Weeks!
kathrynk replied to kathrynk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
thank you! That is my 2 year old I can't bring myself to cut his curls! Thyroids are nasty-I haven't even began to figure that one out yet. I'm taking it one day at a time, and learning a ton! - 
	
	
				ARCHIVED Grain Fed Meats
kathrynk posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I know meats are gluten free right? What if the animal was grain fed? Do grain fed animals contain gluten? The beef I buy is grass fed up until the last few weeks of its life, and then they grain feed. The chicken is not fed by products or hormones, but is "grain fed". Has anyone had reactions to grain fed meats? - 
	
	
				ARCHIVED Off Gluten 2 Weeks!
kathrynk posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am STILL waiting on my blood-test results for the celiac panel. The labs came back on Wed of this past week. I have been calling daily, and they are on the Doctors desk for review. I still have not heard from him. I have a feeling it was negative because (I assume) he would have called otherwise? I will try again on Monday... I have been off gluten for... - 
	Do you have a flexible spending account for healthcare? That is what I used for the ND...I made sure to put extra toward it this year to cover alternative therapies.
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	will do...he seems very pro gluten free, which is why I want to check him out...I'll see what he says that the seminar. I'll see how my PCP responds to everything on Friday. I am putting all my dx together with symptoms, and asking for my thyroid labs (I know a copy was sent to her). Thanks again for all the support!
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	LOL...gotcha! I promise I'm not soliciting...just found that book somewhat helpful (and also very overwhelming) I called the rheumatologist this morning for my celiac test results. This time the nurse picked up. She looked up my test results and said "I can't tell you yet, I need the Doctor to review these before I tell you" So I asked how long will it be...
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	sorry, I did not know we can't link books on here...
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	read this book: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Still-Thyroid-Symptoms-Tests-Normal/dp/1600376703/ref=sr_1_1?ie=UTF8&qid=1322744020&sr=8-1 I found it VERY helpful, (and a bit overwhelming). He says iodine adds fuel to the fire when it comes to thyroid treatment and should not be used. I need to re-read...
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	if I am tetering between hypo and hyper (which is how I feel things are right now), would synthetic hormone replacement help with that?
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	thank you, I will work on all of that this week! I appreciate the help!
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	the meds that I have for my thyroid (I am NOT taking them yet) were prescribed by a homeopath and are as follows: thyroid synergy (which has 100 mcg of iodine in it with other minerals and elements as well) thyroidinum I am also a mother of 2 young boys (aged 5 and 2) and I am still nursing my 2 year old, so I don't want to take anything too potent...