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maramelia

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  1. Dear friends, my boy ended a period of 3 months with gluten free diet, and during the first two months, we were happy, because he gained 1,5cm in height... but this last month, he stopped, and lost 400g... i now it is so early to be sad, but he improved a little to eat, but we need almost always to give food to him, because he is difficult to eat. and...
  2. the best thing to do is to mantain the gluten diet, at lest to do the rest of celiac panel - antiendomisio, bowel biopsy, and probable repeat the TTg... then, you may start the gluten free diet. take the gluten out now will be bad, because the biopsy may come negative... u need to understand, wait just more few days, till your son have done the...
  3. ctenny, the case of my boy, 6yo, is "better"than yours: 6yo - so young short stature few gastrointestinal symptoms almost no diarrhea anemia hypothiroidism (no congenital, appeared last year, concomitant with short stature) decreased growth velocity - dropped in growth chart percentiles just TG antibody slithly positive no antiendomisio / no...
  4. Cynnlynn, my 6yo boy started to go to many doctors because of a short stature, just like your girl. he was ever at 25-15%, and dropped to 3% last year... he had few gastrointestinal symptoms, no diarhea, some abdominal pains, mostly when he ate food. he had no hungry... very thin, just 15kg for 5 yo of age...very small. we started at an endocrinoped...
  5. sorry, kaity, i dont understand. is your son with confirmed celiac disease? did you change his diet with medical supervision?
  6. anthony, great news!!!!!!! hope that your son will improve more and more, in everything that the gluten had done to him all these past years... This is just the beggining... Congrats to all!!!!!
  7. good news. im glad about you. PS. i want to inform you that my son is on GFD since nov 18 this year, and his growth velocity appears that is improving a lot!!! we here in brazil usually uses metres and cm to metrics... the normal growth velocity is 4-5cm/year, for a child at 4-6y... we went to an appointment with our nutricionist, and my son had a...
  8. Hi TJ. Usually, in the AP report, the most important part i that of the duodenal biopsy --- and usually the doctors / pathologists describe those duodenal biopsies with more exactly numbers, to better understand if you have or not an enteropathy: "areas of villious blunting" - usually they write if the ratio vili/cripts is 3:1, 2:1, or less than this,...
  9. i read the abstact, didnt read the hole article, but i have some considerations: - methodology = in the 10,000 pts article, did they use the EMA as the celiac disease confirmation? in my opinion, this is not a good accuracy method to compare the HLA tests... - in my opinion, the best would be to compare people with a kind of multiple dignostic...
  10. Dear julie, its really lovely to see you with this care to your love. And ill pray to have a girlfriend like u to my boy in the future... ))) he is now just 6... )) rgds mara
  11. my boy, 6yo, is on gluten free since nov 18 (1 month)... he growth 1cm last month (so good for his age), and his problem is short stature... and is doing very nice about his abdominal pain and distention that his had ever and ever, no more GI symptoms since gluten free. thanks god!
  12. anthony, i studied a little about your sons case... there is a thing called Hypogonadotropic hypogonadism... which leads to delayed puberty and low hormones, including what u have mentioned... please, go to internet to study / to read about this and to see if there are some aspects about your boy. i just want to help. good luck all you. take care....
  13. hi kb!!!! in the case of my boy, he is 6, and we discovered last month... he did the biopsy, because his case was very difficult to screen, few GI symptoms, short stature as the main symptom, some other symptoms (persistent anemia, a strange acquired hypothyroidism... ), and I'm a doctor, i do neurology, and i do know that the biopsy with endoscopy is...
  14. meggie, sorry for my question, I'm not from US, and english is not my native language. It was not clear for me: first: DID YOU DO OR NOT THE GLUTEN FREE DIET? second: if you did it, for how long? did you fell better with NO GLUTEN?
  15. by the way, I'm one who answered your poll / research!!! my pacient (my boy) is a negative HLA and positive Biopsy... i don't know if he is celiac, but he is doing very good on GFD. We know biopsy results are not so specific for celiac disease, they may show just an inflammatory enteropathy... but... whatever!!!!
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