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chi1968

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by chi1968

  1. chi1968
    So, we've been doing SCD for almost two weeks now. I can't believe how much harder it is to do SCD than just doing gluten free. Corn is in EVERYTHING! We went to buy a roasted chicken at Cosco the other day -- one of our gluten-free staples when we are short on time -- and it's seasoned with sugar and corn starch! gluten-free salad dressing with sugar...
  2. chi1968
    Mushroom - our sons' GI doc (2 of my kids have celiac) was on our case when both of their levels came back positivie after 5-6 months of going gluten free. Saying we weren't doing enough. Now, I'll tell you, we completely -- and I mean completely -- changed our way of eating. We got new pots and pans, new toaster, new utensils, cutting board, cookie...
  3. chi1968
    So, after reading a post here the other day, I was intriqued by the the book, Breaking The Viscious Cycle, which describes the Specific Carbohydrate Diet (SCD). You see, after a period of over one year (very strict adherence to the diet), my oldest son's ttg IgA levels are still positive (currently at 95 down from a starting point of about 150+). His...
  4. chi1968
    I just bought BTVC, based on a post I read elsewhere on this forum. Last year, my oldest son was diagnosed with Celiac and, as a result, the rest of the family was tested, It turned out the me and one other son also had it. Now, we had no symptoms, not really things you would notice. But, my oldest is very small for his age. We thought nothing of it because...
  5. chi1968
    So, after getting a call on Friday from my kids' GI doctor saying their preliminary test results looked normal, TODAY (3 work days later), I get a call saying that their celiac panels show elevated levels. The NP said something like "well, it wasn't the celiac panel they called about last time, it was everything else (I'm assuming iron, thyroid, or whatever...
  6. chi1968
    Wow! I echo what Tarantula44 said above -- about feeling great for 5 days, thinking that you are getting better, and then starting to feel bad again! I never had GI symptoms, but I did have fatigue. After FINALLY feeling like I was getting a good night's sleep after going gluten-free, I suddenly started with GI symptoms. First, it was dairy. Then,...
  7. chi1968
    Hi -- no I'm just buying regular eggs and separating them out. I usually make 4-5 egg whites for breakfast every morning with my oatmeal. I haven't done that in a few days, though. Still feeling sick but not sure if that was because I went to a birthday brunch for a friend and the only thing I could eat (besides bacon) was -- of course -- eggs! So, I...
  8. chi1968
    I've gone through 26 pages of posts, and I didn't find anything that talked about having Celiac but also intolerance to egg whites. I know I'm not allergic to egg whites, as I had a comprehensive food allergy test a couple of months before my Celiac diagnosis. But, since I went gluten free in January, I've started to notice that my stomach gets upset and...
  9. chi1968
    Good luck to you. I hope you find something. Have you had any food allergy testing done? Do you find that you are sensitive to any foods other than gluten? I've only been off of gluten for 3 months. After the withdrawal period, I finally started to feel rested and like I have some energy. Now, I'm back to feeling tired. But, I think I've found that...
  10. chi1968
    I would just like to know what people's experiences are with any sort of tendonitis; back, joint, or hip pain, other kinds of "itis"; and broken bones. I'm 44 and was just diagnosed positively about a month ago. Before that, I didn't have any sort of GI symptoms or anything to point that DRs to test for celiac. I found out about this by accident (long...
  11. chi1968
    What's weird is -- I eat pretty clean. A lot of protein (chicken and egg whites), veggies, salads, and I try to steer clear of gluten-free "substitutes" except in moderation. But, last night, I indulged on some gluten-free pretzels (about 20?), and my system was more normal today. You would think it would be the opposite. That my body would react differently...
  12. chi1968
    My tests came back as a low positive. I had ordered the tests through my allergy DR after I found out that one of my sons had Celiac. Then, we were all tested and me and one other son had it! The allergy doc said I could see a GI or just try going gluten free, but I wanted to know for sure so I saw the GI. What kills me is that when we were going through...
  13. chi1968
    I was diagnosed by "accident" with Celiac. One of my sons had a test for Celiac disease during a routine screening for growth and development issues. When he was diagnosed, we were all tested. I, and one other child, came back positive. None of us had any symptoms, at least the "classic" GI symptoms. Now, for years, I had canker sores, off and on, some...
  14. chi1968
    I'm SO glad that you insisted on getting the blood test. And, if it comes back positive, you MUST get an endoscopy, as much for your peace of mind than anything else. Yes, the doc is right that a positive blood test doesn't mean you have it, but you won't know for sure until you have a biopsy of your small intestines. Even though one of my sons was...
  15. chi1968
    Lisa -- that's an interesting question. I've seen posts before of people experiencing withdrawal symptoms. Some people are having things like headaches and feeling generally blah, but other say that's crazy and you should only feel better. I, my son, and my husband (who, incidentally, doesn't have Celiac but decided to go gluten free since we had to...
  16. chi1968
    I, too, am what I think you would call a silent Celiac in that I didn't have (at least I don't think) any GI symptoms. I was diagnosed purely by accident after getting tested when my husband and I found out that one of our kids had Celiac (and HE was diagnosed by accident). Since his diagnosis, we found that me and one other kid had it. None of us had what...
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