
LouiseF
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I did a post earlier stating that had intestinal pain for 25 years. I forgot to mention something important.
5 full years ago I found out that I have celiac disease.
I have been real strict about staying off of gluten ( as far as I know).
My intestinal pain never went away.
Last October I started with a new real bad pain in my gall bladder area.
Since then I have had ultrasound, Hida Scan, Ct Scan, colonoscopy. All test results came back negative.
I had bloodwork showing IgA deficient. Now my GI dr is perplexed and suggested I come here and see if someone can help me.
Endoscopy showed villa sprue damage as if I was still getting gluten. I don't see how.
I am trying to eat only warm foods, no food combinations that will promote fermenting of foods in my belly.
I take 30 billion pro-biotics. It all isn't making it go away. This pain has been here for 4 months now.
Any suggestions would be greatly appreciated.
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Hello,
My GI Dr suggested I come here and look for some help because he is at the end of testing and doesn't know what else to do.
I was diagnosed with celiac disease 5 full years ago. Have been diligent about staying away from gluten. Each year I get my celiac disease tested and my numbers are always well below 10.
I had intestinal pain before this for 25 years. After getting off of gluten it never went away. Last October a new severe pain started in my gall bladder area. I have had an ultrasound, Hida scan, CT scan and colonoscopy. All test results came back that everything was fine. I had an endoscopy with a test and it showed that my villa spore was still damaged. To my dr that indicated I am still being exposed to gluten. I don't see how.
The pain now (4 months later) can be very bad in my gall bladder. He thought it was biliary dyskinesia and wants to take the gall bladder out. I would rather not.
He is sending me to a nutritionist next monday in the hopes that he can help me.
Anyone have any ideas of what this pain could be from?
I have a VERY healthy diet and in the past year I have lost 52 lbs.
I would appreciate any suggestions from anyone.
Thank you
Severe Pain, Celiac Issue
in Related Issues & Disorders
Posted
Thank you for the nice response. My GI Dr said that he doesn't believe in food allergy testing ( because I asked him to do some). he felt they can be inaccurate.
I was tested for parasites by a naturopathic dr and my gi dr gave me an antibiotic about 6 months later just incase. So it is hard for me to stay away from definitive foods but I don't consume much sugar, dairy or meat. I have some but not much. After reading peoples posts it almost seems like I need to stay off of them 100% as a test.
I also took an acid reducer for a month through the GI dr as an experiment. No results. I am very much into herbs and natural health so I can discuss this new issue about acid with my naturopathic dr and see if there is something that she recommends.
I am so far from Big Pharma, I stay away from them. that is all the dr know. It is VERY sad. thanks again.