Jump to content

Pandoranitemare

Advanced Members
 View Profile  See their activity

  • Posts

    35

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Pandoranitemare

  1. Pandoranitemare
    Thanks for that Bubba's Mom, certainly very informative reading. I have to be re-tested in 3 months, so that will show if the iron has made any difference. I guess I have waited this long, I can wait a bit longer....It took me years to get diagnosis of the other things I have, so I guess I am used to the whole process of going through banging my head against...
  2. Pandoranitemare
    You are right about my family history, I think the same too, I would add that my daughter sometimes displays symptoms which could be gluten related too. Am I right in thinking that if there is damage, that the iron pills won't help if absorption will be an issue? At the moment I am thinking that if the iron does not help then I will have good reason to...
  3. Pandoranitemare
    Thanks for your replies.... It was just bloodwork which was negative. There has been no suggestion of a follow up endoscopy. With regard to ulcer... actually my mum was found to have low iron last year, it turned out to be due to an ulcer which turned out to be cancer (inoperable- and now terminal) So I would be lying, if that was not at the back of my...
  4. Pandoranitemare
    So according to my test results I am negative for celiac but.... I am very low in iron. This surprised me very much as although I don't eat meat (I do eat fish) I am a bit of a health nut, and eat masses of green leafy veg, dried fruit (all the high iron ones like raisins, figs, prunes etc) beans such as soya beans and kidney beans and I take multivitamins...
  5. Pandoranitemare
    I finally got a can appointment to get my test results tomorrow... Whilst it is a relief that the wait is almost over, my anxiety is really hitting the roof now! What I am wondering is, what do they look at in a celiac blood test? As I have been asked to come in to discuss the results, I am assuming the test was not 'all clear'. So I am wondering what it...
  6. Pandoranitemare
    It seems the UK is not so geared up with gluten free stuff, especially when it comes to protein bars/powder etc. I have found that Holland and Barrett own brand protein powder is gluten free (and states as such on the label) I also read somewhere that Luna bars gluten free. I have found a UK supplier Open Original Shared Link, but there is no nutritional...
  7. Pandoranitemare
    Thanks so much for the supportive replies It really helps to know that others have faced the same sort of thing. I have finally got a cancellation appointment, so will be getting my test results tomorrow! I would be lying if I said I was not very worried about what the day may bring, but I do feel a bit more positive about the fact that I have support...
  8. Pandoranitemare
    Hi, I am in the process of being tested myself. If you were to put her on a gluten free diet and she improved, it may well indicate that gluten is a problem. However, if you wanted to pursue medical testing (blood tests etc) you would then need to reintroduce gluten and put her on a 'Gluten challenge' of quite high levels of gluten for some time before...
  9. Pandoranitemare
    People in my life don't seem to think that the prospect of my having to go gluten free is any sort of a big deal...It's like they think it will be as simple as deciding not to, I don't know...drink tea for a week. I don't think they get just how huge the change would be, how gluten pervades so many things and what a learning curve it is, and why I am so worried...
  10. Pandoranitemare
    It sounds like you are on the right track. Definitely keep on eating gluten and push for the blood test. Good luck.
  11. Pandoranitemare
    Pasta is one of those foods that has a pretty good range of gluten free alternatives which are quite readily available even in supermarkets (and not too horribly overpriced compared to some gluten free foods) . It looks like pasta, cooks like pasta, and personally I think even tastes pretty much like regular pasta, so there is no need to feel like you are...
  12. Pandoranitemare
    I am by no means an expert, as I am still on the road to diagnosis....but I just wanted to say that decided to 'test my theory' and went gluten free for 1 week, and as a result had to go on a 6 week Gluten Challenge, and essentially eat as much gluten as I could stomach for 6 weeks before my doctor could then do the blood test. Everything I have read here...
  13. Pandoranitemare
    Thank you all so much, your replies have made me feel so much better I made the appointment to get my blood test results ..but as my GP is on holiday I can't get the results until the 24th of April! I will be trying for a cancellation appointment the week before, so fingers crossed though. In the meantime, what you have all said has made a lot of...
  14. Pandoranitemare
    Essentially my issue is this... I did the gluten challenge, and had my blood test, now I am having to wait till after the bank holiday weekend to make an appointment the doctor has asked me to make to discuss the results. I am expecting the worst, as I was told I would not be called in if they were normal....So I sort of feel like I am on a 'gluten count...
  15. Pandoranitemare
    I recently visited my parents and their diet is extremely high in gluten. I am still eating gluten, as I am waiting on getting my blood test results and don't want to stop in case I need further investigation, but after 2 days with them I felt even worse than usual, which I think was due to consuming even more gluten than I normally would. My whole body felt...
  16. Pandoranitemare
    That is the best thing ever!!! Your girlfriend is very lucky to have someone who is so supportive and well informed, who can also speak up with humor and eloquence to explain the severity of the condition so well. Oh...and I am also stealing that line
  17. Pandoranitemare
    Thanks ravenwoodglass, I definitely felt better when I cut the gluten out, even for a short time, which is why I decided to see my GP about getting tested...I am looking forward to getting off the gluten again, although I can't cut the gluten until I have seen the doctor (in case I need to have gluten in my system for any further tests). The fact that...
  18. Pandoranitemare
    After suffering form symptoms for a long time, I finally spoke to my GP who decided to do the blood test for celiac following my taking a 6 week gluten challenge (as I had chosen to go gluten free for a couple of weeks about 3 weeks prior to seeing her - it was the fact that I had some improvement that made me decide to get tested). So following a hellish...
  19. Pandoranitemare
    Thank you, I will do
  20. Pandoranitemare
    I bought a fitness magazine today which contained a page of snippets of advice from a personal trainer. One of which was headed 'Should you go Gluten Free?' The article then went on to say that there was a trend toward gluten free eating and that rice, corn, soya, potato, beans, barley and spelt were foods this diet allow. It then went on to point out that...
  21. Pandoranitemare
    I am a little sketchy on what the 'equivalent of 3-4 slices of bread a day' actually is... without actually eating that amount of bread. I have just been trying to make sure to have as many things that contain gluten as possible, and having horrible glutenous cereal, pasta etc as much as possible. I certainly feel like I am getting enough gluten!
  22. Pandoranitemare
    I am very new to all this, and learning as I go, but from what I have encountered, plus information from the lovely people on this site.... This is how things have been for me so far: I did a trial of being gluten free for 1 week (which did start to help with my symptoms), but I went back to eating gluten having discovered that it was very important...
  23. Pandoranitemare
    Thank you all so much. I really appreciate the support, advice and kind thoughts. I am so glad to have found this site, and that I took the plunge to sign up and post. I have been around the Internet, and around forums for a good few years, but can honestly say this is the most friendly, welcoming and helpful one I have ever had the pleasure of finding...
  24. Pandoranitemare
    I have been having increasing problems over the past few months, until it reached the point that following some online research I guessed that gluten may be the cause, so I went gluten free for a week. Whilst it didn't resolve everything, I did begin to see some improvements. However, I then discovered that in order to test for celiac the person must have...
  25. Pandoranitemare
    That is interesting... I have been taking multivitamins, fish oil and calcium+vitD supplements for quite a while, but I guess it is possible that they are not being absorbed well. Hopefully things will improve when I am done with this challenge etc and can get back on being gluten free then
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.